“Many ask us a question about Stefán’s health, so I asked him to tell me about the state of affairs without sacrificing anything.
Now 14 days of hospitalization of Stefán is completed. On June 7, three liver metastases were removed and afterwards, he received an infection that lasted for a week in hospital. Stephen has cholesterol (Cholangiocarcinoma), a rare and low-research disease. It was a disgrace that in Stefáni, metastases should be found as soon as he went to a major operation (Whipple) in early October 2016, as the primary tumor that broke from bile duct to the breeze was removed.
The disease is now advanced, at Grade 4, and therefore, its life expectancy is unfortunately significantly impaired.
Medication is not in sight when the disease is so far, experiments are being made with drugs and life-longing conventional and non-traditional therapies around the world, but the answers can not be received as yet. Conventional chemotherapy also does not deliver results that can be promised when this is the case.
Metastases of this disease can sometimes be removed by surgical procedures, such as the operation that Stephen went through for half a month, but it is unlikely that he will suffer more when the disease recovers or that it becomes quite feasible due to the placement of a trauma. About this little can be predicted at this moment. We hope the best.
It was unbearable to tell our children that their dad would not be an old man and that the time we were together was scarce. Taking the hope that their dad will ever recover. The trust of your children does not make you save, even when it seems unreal. It has been a relief to know that they have not been concealed. If someone thinks that children are not able to have meaningful conversations about death, life and existence, then the same goes wrong with many things.
A vigilous priest at the Children’s Hospital brought this hard encounter with me and the four children and did it beautifully and with enormous professionalism. I could not have done it without him.
Our family and friends are all over the state of affairs and each one takes on these heavy facts that are faced with us. It’s surprising that if you’re stuck in a scene in the midst of a catastrophe - the sun is shining right now, just as nothing has gotten to it - how can it be? Life is no problem.
I would like to thank Stefán, the nurses and all the staff 13-G for the publicity in recent days. Great people all together. I would also like to thank the unexpected friend that I acquired on a bench outside of the hospital for the confidential conversation, the guns of a coach who went to the rallies with Júli and Steina in the hall of the National Hospital and the nightly smile that smiled at me when I went home at night.
Although the chances and statistics are not in our favor, and Stefán’s candle burns quickly, we will not stay with it and be scared of fear. We know that time is precious as never before and we have eaten to enjoy him as well as we can. Death is strange - life is nothing but magnificent!
I would like to express my warmest regards to us - they are priceless.
If the media appreciate these writings, I kindly ask that headlines be steered promptly and carefully.”
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