Designer Babies and Ableism
Though Octavia’s Brood was full of many amazing stories, there was one that stood out to me in particular. Hollow, written by Mia Mingus, is about a population of people with disabilities, called “Unperfects,” who were banished from Earth and sent to a planet called Hollow. The Unperfects end up building infrastructure and start living on their new planet even though the intention of the remaining population of Earth meant for them to die off. The reason that this story stuck with me is because I can see this scenario happening in our near future. With the invention of “designer babies,” parents can effectively pick and choose the genes that will go into their future child. The concept of designer babies is extremely problematic and ableist because as parents elect to design their babies, genes that express Down Syndrome or blindness, and many other traits, can be deemed as undesirable traits, and they will most likely be replaced with “good” and “better” genes. In an already ableist society, further pathologizing those with disabilities can lead to a terrifyingly discriminatory future.
In this video (https://www.youtube.com/watch?v=XVMfQNe7U7w) covering the topic of designer babies, one of the news reporters already uses ableist language to discuss genes that carry diseases, “Editing out a ‘bad’ gene and putting in a ‘good’ one.” Though one could argue that diseases are not inherently good, who is to say that someone with a particular disease is any more or less valuable than someone without that disease? As discussed in Trans Bodies, Trans Selves, operating under the medical model of disability is ableist and discriminatory. I truly hope that more choose to embrace the social model of disability so that our society does not end up like the society/societies in Hollow.
Sources Cited
Mingus, Mia. Octavia’s Brood: Science Fiction Stories from Social Justice Movements. Ed. Walidah Imarisha and Adrienne Maree Brown. Oakland: AK, 2015. Print.
Erickson-Schroth, Laura. Trans Bodies, Trans Selves: A Resource for the Transgender Community. Oxford UP, 2014. Print.
The thing about media reporting on gene editing and the prospects of designer babies, is that they don’t present it clearly or correctly. If parents were allowed to use gene editing such as CRISPR cas9 for example, this would largely be used for genetic diseases that leas to either miscarriage or infant death. Because while its easy to extrapolate this to think parents would be able to edit their future child’s genome to make them taller or faster or smarter, the technology and understanding of genetics just isn’t there. This technology would be exceedingly useful for parents who are carriers or afflicted with genetic diseases that they don’t want to pass down to their children, or genes that would be lethal. Beyond this, no doctor or researcher would have a hope of passing this by an ethics committee. because unless the disease is strictly genetic, and not a complex disorder, gene editing is off the table. beyond this, it would be VERY expensive for parents to be able to access this sort of technology. It’s expensive currently to go in for in vitro, and that’s simply eliminating embryos carrying lethal diseases or those with different chromosomes than what the parents want etc. However, is it useful to think about why people are so obsessed with designer babies? yes. But will it likely be a reality? no.
--RX sav-blogs










