@sickyvicki - Tumblr Blog

painkillersandicecream

diocletianscabbagefarm

Travis the map-shaped mimic

#she looks so done with him lmao

tinymindstinythoughts

I’m ready to Marie Kondo this fucking body. This spine does not bring me joy

big-gay-bird

Would be willing to reblog this if you deal with Chronic pain and/or identify as Spoonie?

I’m really struggling right now and I just want to find folks like me to follow so I feel like less alone.

sweetlilbobatea

dad-arts

Chronic Pain - Mixed Media

03.30.2019

youngchronicpain

me at my bastard spine: my friend, you are truly the fucking worst. please stop screaming at me.

peepuddle-deactivated20230124

having a body causes me so much agony i wish i was just a floating entity with no physical form

positivity-in-pain

10/10 would not recommend

spoonie-humour

“You’re too young to be so sick!”

“You’re too young to be using a mobility aid!”

“Why do you rest so much? You’re so young!”

[gif: Hades from Disney’s Hercules saying “I know! I know. I know. I got it. I get the concept” while his hair flares from blue to red]

6/7/19

I had my cystoscopy on Tuesday (2/6) and the urologist couldn't see any obvious issues with my bladder, and couldn't give me an explanation for the 23 UTIs I've had since my operation in August 2017, and for the pain I've had every single day for the last 3 years.

The only explanation he could give me was that I'm "just another teenage girl" and shrugged, as if having this many UTIs is as universal experience, as if being bed bound in pain is something that every teenage girl deals with. As if every teenage girl cries after going to the toilet, because peeing sends their bladder into spasms and causes intense pain. I was (and still am!) furious, but was still coming round for the anaesthetic and so couldn't convey that.

Unfortunately, the urologist I saw on Tuesday and my usual consultant hold the same views, and I'm wondering whether it's worth finding a new one, who isn't just going to write me off and leave me suffering.

I now won't see anyone again for six months, which means six more months of pain and antibiotics. I was hoping to get some answers now, so that when I go to university in September I'd have a diagnosis and would be able to get the accommodations I need easily.

somethingelse317

"Try to avoid stress" has to be the most bullshit piece of medical advice ever

commonant-deactivated20220614

yknow

18/6/19

Today I was told to seriously consider having surgery on my spine.

I saw the spinal consultant, who did an x-ray and then compared it to last year's scan, and commented on how my scoliosis has gotten worse over the last year, and will probably continue to for a while. He also said my spine is starting to twist slightly.

The pain I get in my back and legs is my body trying to cope with the curve, my left leg working harder to keep me upright when my body naturally tilts to the left. This is why I have had difficulty walking recently, and why it's gradually getting harder and harder to do things and go places.

Although the surgery won't fix my back, and it won't necessarily stop the pain, it'll stop my spine slipping any further and causing any more damage.

I'm meant to start university in 2 months time. I'm supposed to be moving out of home.

I'm 19 years old and am currently waiting for a date for my 4th surgery, and then I have to decide if I want surgery on my spine too.

I have to decide whether I want to go to university, or if I want to save my back.

2 weeks ago, I was celebrating because I had finally finished my A Levels, after having to retake the year due to health issues, and struggling for so long just to get to class. And I did it. I fucking did it.

And I thought it would get better, I thought the doctors would have a solution before I went to university.

And now this comes up.

And I am not coping. At all.