#bedbound resources

[chronicillnessresourcelibrary]

All the 'Get Prepared' Resources Collected So Far

A masterlist of all of the resources I've collected so far under the #get prepared resources tag – from suggestions on items to gather into a spoonie toolbox for your bed bound days to tips on how to prepare for surgery or travel...

Getting prepared for spending a lot of time at home/in bed:

The bed kit – Tumblr post by @ghost-kings-court-jester

The chronic illness toolbox list for people who are largely housebound or bedbound – a Tumblr post started by me on my main and added to by many wonderful people

Getting prepared for going out:

The 'go bag' list – Tumblr post by @dearchronicme

Tips for Incontinence (this article is aimed at seniors but hopefully there's still something useful in here for people of any age)

Getting prepared for surgery:

Surgery: A Lived-Experience Guide – article by Arthritis NZ with tips for preparing for surgery (some of the info may be specific only to arthritis surgeries or only to New Zealand but may still be useful to people with other circumstances)

Getting prepared for emergencies:

Fire evacuation for people with limited mobility – a Tumblr thread started by @teaboot with a great addition from @ravynfyre

How Wildfire Smoke Affects Health and How to Cope – an article by Harvard Health with tips for how to keep yourself as healthy as possible when wildfire smokes affect your region

This is a topic I'd really like to expand so if you know of a good 'get prepared' resource, please send it my way – asks (including anons) and DMs are always open or you can tag me in a Tumblr post ✌️

[chronicillnessresourcelibrary]

Housebound and Bedbound Activities You Maybe Haven't Tried

A bunch of ideas I've found for people who are housebound/bedbound that aren't just the usual "try knitting"...

Learn something new – investigate a new topic, learn a bit of sign language, start memorizing all the countries on a map, pick a historical figure and see what you can find out about them, etc.

Watch something you wouldn't normally watch; you might discover something new you like

Send an ask to all your mutuals (think of something different, personalized for each person)

Start a new, themed Tumblr blog

Start a new Pinterest board

Read a random Wikipedia page – WikiRoulette

Find out what happened on this date in history – on Wikipedia or Britannica

Join Goodreads (or an alternative), and mark off and rate all the books you've read (maybe even write a few reviews)

Write online reviews for movies you've seen recently

Search for quotes you like and write them down / blog them

Create a masterlist

If you're good at finding info, ask your friends, family, or mutuals if they need help tracking down information

Search for a new online community, join, browse, and offer help/support

Try writing a fanfic – it doesn't have to be good and you don't have to show anyone

Try writing poetry – this doesn't have to be good either

Put on some music and try to learn more of the words

Webtoon has a bunch of free (indie) comic series to read across a range of genres and some of them are short enough to be well suited for people with high fatigue and/or low attention – Webtoon website | Android app on Google Play

Find the website for your local volunteer centre/support organization and see if there's any ways you can volunteer from home (there are more and more opportunities like this being developed)

Write image descriptions. There are a lot of memes, photos, and gifs shared every day that don't have IDs and you could add one in a reblog. I've also heard of discord servers where people volunteer their time to write IDs.

Create plain language translations of news or concepts/info (check out Autism against Fascism, a group that makes plain language articles about fascism and antifascism)

In case you missed it, there's also The Bedbound Activity Masterlist (three blog posts full of ideas, including low-sensory and low-energy activities) and a few ideas in this ask post.

[chronicillnessresourcelibrary]

The Bedbound Activity Masterlist

Bored spending another day bed-rotting? Don't worry, an amazing person called Sky Stanton has got a bunch of ideas for you!

> Part 1 (on Medium)

> Part 2 (on Medium)

> Part 3 (on Medium)

An audio version is also available on Soundcloud (via the part 1 link)

The Bedbound Activity Masterlist: Part 1

A list of 22 things a bedbound person can do to pass the time when lying in their bed unable to move, open their eyes or listen to audio.

[chronicillnessresourcelibrary]

if you could offer resources on things to do while housebound, i’d be forever grateful 🙏

I need to find more but there is this one...

The Bedbound Activity Masterlist(s); it's got three blog posts full of ideas.

There's also this post that has tips for knitting if you have chronic pain.

And you've probably already thought about the standard suggestions like colouring and various crafts but have you considered painting rocks or making bottle cap badges (see also: this link)? Or try digital collage – sign up for a free Canva account (which you can use on any device) or use one of the many free online programs and just mash some pictures together. It might not be a long-term hobby but it might add some entertainment.

I will be looking for more because I've realized this is a gap in my posts and I understand the boredom and frustration. I will tag them all as #housebound resources and #bedbound resources if you'd like to follow those (or for anyone coming to this post in the future).

And if anyone has any recommendations, please feel free to send me a link or tag this blog ✌️

Thanks for the ask!

[chronicillnessresourcelibrary]

Exercises for Dysautonomia

Many people with dysautonomia are told to exercise by their doctors, but how do you do that when you can barely stand up? Dysautonomia International has a how-to guide for basic movements you can do in bed or while seated...

⚠️ As this page says, before you begin an exercise regimen to help manage your symptoms, you should check with your doctor and get cleared to exercise.

Dysautonomia International: Exercises for Dysautonomia Patients