#dysautonomia

[thatbluevampire]

At the endocrinologist and I’m NERVOUS

[otherwaybabe]

how do we know that dan has dysautonomia? is it because of the blood pressure/fainting issue?

Cause he named it in the second Mukbang and the 27th Phodcast Phatreon section. Orthostatic Hypotension which is a form of Dysautonomia.

[pots-dreams-and-salty-schemes]

Absolutely fighting for my fucking life with an extreme adrenaline dump today. I’ve been having chest pain all fucking week

It is the most frustrating and most terrifying thing to not know what is a major medical emergency and what would be considered normal for you. I have no idea if I should be fighting for my life in the ER right now or if it’s normal and I should tell myself this will pass. If they’ll actually even be able to do anything for me or if this is all bullshit I have to tell myself to get used to

It’s so scary and frustrating and sucks so so so so bad. I hate this so much.

[autisticslp]

I think I deserve a silly little game show host following me around making terrible jokes if I’m always gonna be forced into ridiculous challenges like “get ready for bed without ending up on the floor” or “water plants for ten minutes without fainting”

[necrosystem]

One of many exhausting things about being disabled is the gratitude were expected to have. Especially toward the oppression.

This is mostly just vent prose. I'm not looking for reassurance or anything. Ok reblog.

I have to be grateful to the doctors for allowing me that test. For allowing me the results of that test.

I have to be grateful for my diagnosis, if I get it. Whether that diagnosis is right or wrong.

I have to have appreciation for the shitty ramp outside the building with the narrow door (I don't even need a wheelchair but seeing poor accessibility for mobility aids pisses me the fuck off)

I have to be grateful for the "ADA accessible" table in the back of the restaurant, where one's chair may or may not fit and is going to be in the walking path for everyone else so the person in the chair gets bumped constantly, at best. Let alone other folks with mobility issues tripping over the other disabled people for this reason.

I have to be appreciative that the sidewalk exists, despite being a hazard to walk on for even the most abled of people.

I have to be grateful that the flashing lights aren't more intense and that someone put the warning sign under the flashing gif.

I have to be grateful that I don't "need" more accomodations. I'm surrounded by filth I can't clean up, but the home health aid company determined I am not in need of their services! Yay. :(

I have to be grateful there's options to help me accommodate myself. It only took 30 years of being yelled at by my parents for having clothes in the floor that I discovered I can just throw my clothes on a rack that cost nearly 1/4 (One Quarter) of my monthly income.

I should be thankful that the local government gives me $400 to go towards my bills.

I should have gratitude that my family lets me keep $200 of that so I can buy necessities like soap. And I should be happy that the guilt over buying $65 computer monitor for the old second hand PC that was graciously donated to me isn't eating me alive! Yippee.

I should be grateful that my lawyer and the social security administration are giving me a second hearing so they can determine whether or not I deserve $995 a month for the rest of my life.

I should be grateful that poor people housing exists and if I'm approved after the years long wait list they'll only take some of that paltry sum I might or might not get.

I should hold, in my unusually rapidly beating heart, the gratitude for... Oops! Lost what I'm supposed to be grateful for because of the brain fog and dissociation.

I should be grateful I'm not brain dead, even though I literally can't write full sentences some days!

I should be grateful my 4-6 widespread body pain isn't a full 10/10 or worse.

I have to be thankful that I am given a grain of rice from the King's (I mean president, we are a free country after all!) banquet.

I should be thankful, with every ounce of my suicidal soul, that I am not dead!

Peace and love on planet Earth.

[longhaulerbear]

Fwd: Warning: This Zebra May Overheat

[hypermobilesolutions]

Do you feel worse when standing but aren’t sure how to explain it?

Tracking heart rate and blood pressure can help you see patterns instead of relying on memory.

Women with hypermobility often experience: • Dizziness on standing • Vision changes • Palpitations • “Wired but exhausted” feelings

When you track consistently (same time of day, similar hydration state), patterns become clearer.

Things to look for: • Sustained heart rate increase • Symptoms that correlate with HR spikes • Blood pressure changes

Helpful tips: • Track for several days, not just once • Note hydration, sleep, and stress • Bring written logs to appointments

This isn’t about self-diagnosing — it’s about giving your provider clearer information.

Objective data can shift conversations from “maybe anxiety” to “let’s evaluate autonomic function.”