#dysautonomia

[heather-moss]

people with energy-limiting disabilities should be immune to greasy hair

[sidewalksofthesky]

I tend to be more lightheaded and have higher heart rates spikes when standing after I eat lunch at work. Because POTs, and blood goes to my digestive system so there is less of it for the rest of me.

My doctor recommended smaller, more frequent meals.

But I am having trouble picturing what that looks like and executing it.

I already have so much trouble with figuring out what to eat and obtaining/making it. Grocery shopping is my most dreaded chore. I would prefer if I didn't have to eat/had some affordable human kibble every meal. And the tension of wanting to not eat animal products because they make me sad but I usually don't feel satiated after a vegan meal. History of having an eating disorder doesn't help either. And while I don't have MCAS, I've also been trying to pay attention to if there is a pattern between migraines and what I eat. And my acupuncturist said to focus on warm, cooked foods instead of raw, cold foods and drinks.

[iknewshedmakeagreatpilot]

Dysautonomia is weird bc what do you mean I felt nauseated until I sneezed and now I feel fine?

[waifu-of-hargon]

hell is empty and all the demons possessed certain people and renamed themselves dysautonomia.

[harpuppie]

if i do the substance, will my other self still have my chronic illnesses and mental disorders? i need a version of me that can do washing

[siriuslikethestarr]

being chronically dehydrated with dysautonomia is not for the weak

[hypermobilesolutions]

If you live with POTS, you’ve probably learned that symptoms fluctuate.

But many flares follow a pattern: Feel Good → Overexertion → Crash → Lay In Bed To Recover

Practical daily adjustments can interrupt that cycle.

Strategies that make a real difference:

• Pacing Pick 2-3 Things To Get Done Each Day • Elevate legs when resting • Avoid prolonged standing when possible • Eat smaller, balanced meals • Be mindful of heat exposure • Build strength gradually (especially lower body)

These aren’t dramatic interventions But they can help reduce symptoms

Comment 💙 if pacing has been a game-changer for you.