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#Repost @_castlebravo_ with @repostapp. ・・・ One of the instructor candidates from CFS instructor developement running the figure 8 with a fellow candidate in the student role. Evaluation of skill is an important part of training. Growth occurs from recognition of a problem. #cfsid #instructordevelopment #icetraining
Chronic Fatigue Syndrome problems:
Do I plan my pain meds around my meals or sleep cycle?
Do you think that once you sleep 16 hours it doesn't really count as a nap anymore?
Augh! Update.
Great. Just Fan-what-the-hell-tastic. I've got ANOTHER APPOINTMENT this week. It's for my CPAP because of the severe sinus pain I get when I use my CPAP. Tomorrow. At 11:00 AM . The morning. Then, the next day, I've got physical therapy!! Then the next day, an appointment with the Pain Team -in which I'm going to ask for an OT because my hands are crap, and an anti-inflammatory that isn't an NSAID and I can take on a daily basis(does that exist? I hope so.). Then, I've got my first session of aquatic therapy. SO MUCH driving! That's four hours! :( Ah well. Chronic illnesses tend to come along with hospitals. :(
Stuck
I feel stuck. Like things are at a standstill. Things seem to be happening to me; physical therapy, appointments. But nothing seems to be happening for me. I get treatments, but somehow... I don't feel like I'm being treated. Maybe it's the waiting. All the waiting.Waiting for the better option. Waiting for something to happen, really happen, whether it be healing or just getting somewhere while I jump through all the hoops insurance puts in front of me. All the PT exercises I can't do at home, even when I want to so badly because I know it's supposed to help me. Even if I don't believe in it all the way. I still hope for it, though, with all my heart. So maybe it's that. Maybe it's a combination of all of that. I guess I'll just sit here and think about it.
The fatigue is trying to kill me. It's dragging me into a deep dark abyss while I scrape at the ground, digging with bloodied hands, trying to fight for a battle I know I can't win.
