seen from Malaysia
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For the Disability community, losing Alice Wong is like losing Ursula Le Guin or Octavia Butler. She was a powerhouse, a pioneer, and a mentor to many. She taught me so much. And always reminded me what we were fighting towards, as well as against. I miss her clarity, bravery, and joy.
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NOTE: I wrote this for a guest issue of a pretty well known international fashion/alternative magazine in 2023. A good friend who was asked,
"No escape for us. Just diving into the cracks, descending amidst the realities of cleaving to that which maximises life. Nothing to be saved, nothing to be fixed, just embracing necessity. Constantly alert and responding to environments that were never made for us; tracking the minute shifts, the ebbs and flows, the precipitous crevasses and thrumming near-burnouts of our energy levels. The way flesh meets not-flesh and becomes reconfigured, where strategising over food and drink intake becomes an absolute requirement when we explore a new place; rationing fluids if there’s no bathroom, no place to change catheter or clothes. Scouting the potential rest-spaces as if it were a military exercise, like an expedition to the desert, the warming but still extreme North Pole. All amidst a major city, a human hive. Roads and pathways have cambers and cracks unseen and unfelt by those flowing through the concrete canals on upright feet. The so-called Anthropocene looks different down here, closer to the curvature of the Earth. Disabled people know what it is to be owned by earth, by a slope, by a lip, a root, a threshold, by wet grass. The golden sands of summer’s relief grasp wheels, catch canes, bog them down. It’s enough to make us realise we are not on land, but in land, embedded and entangled. What if, then, the human project is one of insulation?"
Wrote this in 2023 for a fairly well known international art-fashion mag. They didn't end up using it.
In 2024, in the face of resurgent Fascism(s) and climate change, it is critical to re-think our attitude to vulnerability with the help of dis/ability embodied knowledge and ACTUAL cyborgs.
A database of books, fiction and non-fiction, focused on highlighting disabled characters and authors.
There’s a new disabled literature database in town, y’all!
If you’re looking for books by disabled authors or that feature accurate representation of disabled characters, be sure to check out the Discriptionary! They have books from every genre under the sun and include descriptions of what disability is being represented in a book and how. If you’re looking to learn more about disability this year, check this database out!
[image description: black background with white text. Coming August 15th. Poems about maladies, medicine, and mortality. Presented by Swimming with Elephants Publications. A Duet of Dying by Shanna Alden and Erin Schick. Black and white MRI photo of femurs and thighs.]
@chaoticaggro and I co-wrote a book of poems about illness, trauma, and death that’s out next month and available for pre-orders now.
PRE-ORDER LINK: here
[Description: a blue and purple ombre book has title in purple that reads When The Chant Comes. Above, a yellow black and white banner says BOOKRIOT.] #whenthechantcomes Wednesday: My book was featured on @bookriot’s “100 MUST-READ BOOKS BY #QUEER AUTHORS.” Honored to be listed among memorable and sharp writers of all genres. 👏🏽✨🌊
#qtpoc #queerpoetry #spoonie #criplit #transgender #lgbtq #genderqueer #poetrybooks #KayUlandayBarrett #queerbooks
#CripLit Twitter Chat Publishing Online: “Crips in Space” Special Issue Thursday, May 11, 2017 4 pm Pacific/ 7 pm Eastern You are invited to the eighth #CripLit chat co-hosted by novelist Ni…
Upcoming #CripLit Twitter Chat
Publishing Online: “Crips in Space” Special Issue
May 11, 2017 4pm Pacific/7pm Eastern
Hosts: @disvisibility @nicolaz Guest hosts: @ChaiKovsky @thedeafpoets
On May 11, 2017, the co-partners of #CripLit, novelist Nicola Griffith and Alice Wong, hosted a chat about "Crips in Space," the latest issue by The Deaf Poets Society. This chat gave people a chance to ask editors from DPS about their process. Questions from the chat listed at the top.
”#CripLit chat: Accessibility & Online Publishing with The Deaf Poets Society”
For our fifth #Criplit chat for disabled writers we’re trying a slightly different format. We’ve invited editors and staff from some of the leading disability-focused publications to co…
