#disability shit

[pigeon-poet]

born to read, forced to be so fatigued that I can’t keep my eyes open even though I really want to read

[a113cowgirl]

Idk if I’ve actually told tumblr/my mutuals about this, but during my year+ long absence, some fuckshit happened and now I’m on a feeding tube pump every day.

Apparently it’s not normal to violently vomit, shit yourself, and have excruciating abdominal pain any time you eat/swallow anything (even just like… an ibuprofen and a gulp of water…)

BUT I’m super happy rn because I was just accepted into a really good Palliative Care clinic :)

[sopranoentravesti]

As someone with EDS (not hEDS)… people with EDS are like the people with ADHD but for physical disabilities. Like why are we so obnoxious. Shut up.

[naomichimarufuji]

I'm so fucking annoyed. My new psychiatrist never sent my refills for my stimulants to the fucking pharmacy so I have to call them in the morning to get my shit filled because I don't have any. On top of that, my fucking insurance is refusing to pay for my injection that I was supposed to take 5 days ago and now I have a nasty migraine that may require a fucking nerve block.

I want to scream. I hate this. I hate this so fucking much.

[actuallyyangxiaolong]

I've recently realized that I want to learn abt medicine and the human body bc I have lots of things wrong with me and I don't like being uninformed and having no base of knowledge to work from

...but unfortunately I was too busy being the most mentally ill person alive during high school biology to learn anything so I have to start from square 1

[gucciguccigarbage]

One thing I don't think I've seen talked about much when it comes to the autonomy of disabled people is like. How much we're restricted by medications that have to be taken at strict times? Like. No matter how much I might need it, I can't decide to sleep in on a given weekend morning- because I have to take a certain med every 12 hours and if I'm off by more than a half hour, I'm screwed. And I feel like that's one of those things a lot of people take for granted? Like sure under capitalism we're all chronically sleep deprived but at least most people can have a day they don't have to wake up at a certain time.

[stephaniedola]

so idk if i even posted it here but i got my EDS/POTS official diagnosis the other week. i think i didn't post about it because i was so convinced it would just disappear?

I've been fighting for my EDS diagnosis for like a decade and when my rheumatologist put it in my chart he told me it was medical neglect that no one had diagnosed me, especially in the last few months since the POTS came on

so yeah i had my physical therapy consult yesterday and literally having a diagnosis in my chart already vastly improved my experience

like not only do i have to worry less about not getting taken seriously in general but

the woman told me i might even be able to get a wheelchair through insurance now that its in my chart

[curiousemwanders]

However, with chronic pain, which has no obvious external cause and becomes a part of the phenomenological self, when others react with disgust, it is as though they are reacting with disgust towards the individual with chronic pain. This is especially the case when combined with wider ableist social structures that reinforce the ‘better dead than disabled’ message underlying ‘sympathetic’ statements along the lines of ‘I wouldn’t be able to cope if I were like you’.

Using Pain, Living with Pain, in Feminist Review By Emma Sheppard