Well, the migraine has settled back in, and since the other pain is just creeping up, I can actually feel it, instead of just experiencing the effectors. These things really hurt. It's centred at the base of my head, where the spinal cord attaches to the brain. There's pain and tension there, and it spreads out, wrapping around the sides; despite being very light, the arms of my glasses add pain points to it, so do the pads that rest on my nose. There's pain up at my temples too, stretching across my forehead.
My psychiatrist suggested seeing if they'd widen the points where my eyes focus, the pupil's distance apart, to see if that helps. I think given that there seems to be some pressure behind the eyes, I'm going to send a message over the GMC website private message system to the eye doctor I see there for my diabetic eye check ups about that. I'm still several months away from when I can replace my glasses, I think, but if he says that it's a good idea, I might call my insurance to see if it can be done early, given the circumstances.
But considering they're refusing to send me to John Hopkins for the EDS stuff, I'm kinda not holding my breath on that.
The spinal pain is starting to settle in again as well. The triad section of my back is uncomfortable again, even with the yoga stretch that the Yogi Joint Comfort tea had on the side of it; don't laugh, it's a legit yoga stretch. It was sort of a reminder when I saw it that the stretch existed.
It feels like more than just the L4/L5 pain now that it's slowly creeping up. I think the psuedo-fusion that was spotted in the CAT scan between L5/S1 may finally be becoming an issue. That was a natural thing, something not caused by my car wreck, that apparently my body just did a some point, possibly as early as in the womb, or shortly after. The left side of the lower L5 vertebrae and the upper S1 vertebrae are just extremely close, and appear to be fused together; they're not, which causes them to sometimes scrape against one another, but otherwise they may as well be.
Of course, my feet are already hurting too. Small bones wiggling around when I try to put them up on stuff unless I put them up with the heel touching whatever I'm resting them on. And they wiggle back into place when I put them flat on the floor again. Always the small bones, and always the feeling like the "growing pains" they got when I was a kid. The "growing pains" that never stopped. That's kinda the huge thing that keeps me from believing that it's just Fibromyalgia causing the problem. I've never read anywhere about people with just fibro still having "growing pains". And I do. Mostly just in my feet, but sometimes in other bones/joints. It's not right.
But, I get to play the waiting game with my primary care physician's office. And wait for the genetics survey to make it back to them, so I can get an appointment, and discuss with them how narrow a chance it is they can diagnose EDS. Maybe I'll get lucky and they can convince my insurance to send me to John Hopkins or the EDNF clinic at Greater Maryland.
...so far, I'm not getting lucky with that, aside from my ER visit.
On a not pain related note, I started the testing to try and figure out what day-to-day things trigger my erythema multiforme. I have strips with little nodes of allergens on my back, and it's kinda making me feel like a cyborg. Very Matrix-like, even if they're not in the same array as the Matrix. Some of them itch a little. Some sting a little. Some burn very faintly. My sinuses are going a bit haywire, and my spots (the bullseye targets that actually never 100% fade anymore) are slowly darkening. I'm kinda paranoid about what's going to happen because I have to wear them till Wednesday at 1:20 PM when I go back in to dermatology.
The spots have only gotten really bad once. The first time they appeared, due to a drug allergic reaction. They went necrotic in roughly 12 - 14 hours. It was pretty horrifying. I noticed skin sloughing weird at 7 PM one night, and by about 8 AM the next morning, I realised they were necrotic and it was ER time. Needless to say, if the spots get to the open wound stage, I'm saying fuck it and going to the ER even if it's before when the modules are supposed to come off.
That was really the only time the EM was painful. Hopefully it doesn't come to that.
