#fgimd

[iamokaynowdeb]

The Mitochondrial/Motility Journey

#MitochondrialAwarenessMonth Sept 22 our online/ offline awareness day! How do I tell you about my mito? The easiest way is to describe how your organ systems behave when you age. Yet in a mito malabsorption dx my bones were 86 yrs old but I was approximately 40 (when this began.) my hearing & eyesight declined. I had cataract implants way earlier than you would anticipate. My GI issues … at…

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[ddst33]

#Gastroparesis is #GP a #MotilityDisorder behaving like a rude, uninvited, insidious large parasitic Monster of crab 🦀 grass #Green4GP with tentacles 🐙 from top to bottom.

[iamokaynowdeb]

Chronicling Our 2019 Into 2020

Chronicling Our 2019 Into 2020

Chronicling our 2019 into 2020

Chronicling our chronic journey of advocacy with truth empowering us forward. Our warriors of decades gather to usher the end of 2019. We open 2020 with chronic chronicled hindsight, purposed intent for research, treatments,quality of life and care, while seeking cures for our chronic communities. Our motilities with paralysis varies as does our treatment plans to…

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[iamokaynowdeb]

How to Make our Voice Heard

How to Make our Voice Heard

https://www.iffgd.org/ “Make Your Voice Heard!”

A guided suggestion for helping us to engage with our congressional representatives.

You are invited to join the thousands of patients and their families, nurses and physicians, researchers, and members of the public working to raise critical awareness for all those suffering with a chronic digestive disorder by asking your Members of Congress to…

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[iamokaynowdeb]

We Are Who We Are

We Are Who We Are

The acceptance in a reality we have no control of is a freedom of a tapestry. This tapestry’s threads has beautifully woven threads. They hold us in our lives with Peace, positivity, Grace, Strength, optimism, steady growth, in all we say and do from hour to hour. We can breathe past our physicality in spirituality to live fully above a reality reflected in chronic bodies often diagnosed with…

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[iamokaynowdeb]

Second Place - What It Could Mean

Second Place – What It Could Mean

Stand tall

All is not lost

There will be a record keeping

All is kept in its place

A close second is not an embarrassment to our tomorrow

It is a marker for Justice

She will come

Ever so slow, it may seem

Like Josephus

back in his day

accounting His days

There is always a close second

Like in “The Social Network”

The movie about Facebook

All may seem like it’s wonderful, in dollars and cents, but…

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[iamokaynowdeb]

Our World Today

I feel at a loss, not as a chronic warrior of incurable illnesses, nor with my advocacy over adversity from day to day in prayer to keep my mind and thoughts in a peaceful strength of optimism and positivity. No, while challenging, I feel secure within my warrior journey. I may lack energy or health, but I am optimistic and positive about my day, hour, minute, moment. I am at a loss to understand…

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[iamokaynowdeb]

@reprickcrawford @rep_stevewomack @repjimsensenbrenner < — thank you for your original sponsorship dear Sir! Millions who suffer w/ layers of #chronic illnesses are requesting the empathy and change this Motility Bill represents for our communities! We seek relief from malnutrition, dehydration, nausea, vomiting, pain, constipation, diarrhea, and a multitude of other symptoms related to incurable illnesses which vary in severity and degrees. We are asking you to #cosponsor #HR1187 our bill which is also your bill impacting all Motility issues #IBS #FGIMD #Gastroparesis #CureGP you would want no less for a family, friend, acquaintance or human being suffering from a lack of nutrients due to a failing/malfunctioning/ broken digestive tract. We all want better #treatments #research #QOL #QOC & #Cures #HR1187 w/ centers of excellence creates a platform for us to begin this process! We need a #GutShot where we are all on the same page, sharing research and information to help us work towards better treatments. Creating more centers of excellence and more specialists in our communities to serve all of us. We need Doctors who understand the necessity of hydration fluids and how they are literally lifesaving for so many in our community on many levels. The accessibility to IV fluids can keep #chronic warriors out of the emergency rooms. They (IV-fluids) can stop the damage being done by chronic dehydration to our organ systems. They also help with constipation when you are unable to take in fluids by mouth due to nausea and vomiting. There are other ways to help #Chronic #warriors like #MitoCocktails #CBD oil or #medicalmarijuana all are topics which should be looked at from the viewpoint of what will help the #QOL #QOC a treatment plan for #incurable #illnesses progress w/ a particular treatment should be viewed through the patient’s eyes. #empathy helps us agree even when we disagree 🧤💚🛶🧤💚 agree w/#empathy @gimotility @digestivehealthmatters @aprilgqg @bundytr5 @mcbanecarolyn @us_pain_foundation @monitakespics @mo_2013_ @steventrotter @crystalephillips @jonesborosun @melissaadamsvanhouten @daisymariebonilla @andersoncooper @bravoandy @laurenglowss @kark4news https://www.instagram.com/p/BoMXGQdHX8K/?utm_source=ig_tumblr_share&igshid=tfpbqidg0mg1