#fibroprobs

[skreezilla]

What is a crash?

What is a crash:

A crash is a term used by chronically ill people when their bodies go into shut down.

A crash can happen at any time, it can have many levels of severity, it can last an hour, a day, a week.

A crash consists of your body going into a almost shock, you will be in severe pain usually, and have a wave of fatigue hit you. It is hard to explain, but imagine ifnyou had been awake for 24 hours, imagining how tired you are after that, now picture you then do a 2k run, in this time you have had no food.

Imagine how painful, worn out, tired, and in pain all your muscles would be after this and this is the closest you could be to what it feels like.

So this evening about 10:20? I crashed, severely crashed.

I could not get out of bed, i could not manage to see light, i could not even cope with the feeling of cloths touching my skin. I was a 9/10 on the old pain scale every joint felt like it were on fire. My skin felt like it was burning,and had creature's crawling under it.

I was so tired i couldn't even lift my arm because it felt like i was lifting a car.

This lasted too maybe 1:10am, then it went away, i felt much better.

Just remember a chronically ill person suffers this crap often, it is a horrible thing but we are use to it. Not that any of you would, but it may help you understand a little more but when we say: "sorry i can't come i am crashed" it isn't just us being lazy or giving up, or not wanting to see you. It is because we really well, not feeling very well.

[faithfitnessandfibro]

A day in the life of a fibro flare

It’s 4am. I’m so tired and wish I could sleep. My body, however, has other plans for me. The pressure from my mattress on my body is excruciating. I lay there, rolling over, hoping to find a more comfortable position. It doesn’t help. I can no longer stand the pain of being in bed so I get up. Those first few steps are hard. Shooting, throbbing, pain goes through my feet but it beats the discomfort of being in bed. I come downstairs and grab a protein bar to eat so I can take pain meds. Thankfully it’s the weekend right now so I don’t have to force myself to try and work.

I sit on my couch trying to distract myself while I wait for the meds to start working. The pain meds never fully help; they just dull my senses a bit so it’s more tolerable. Once they’ve started working I force myself to get on my exercise bike. Exercising is about the last thing I want to do when I’m hurting so badly. I’d really love to just get in the fetal position and not move. I’ve learned, with lots of experience that will only make things worse. If I don’t move the pain will become worse.  The movement of the bike actually feels good. All the muscles in my legs have felt like they were hardening and turning to stone. I can’t do a full-fledge heart pounding, sweaty workout when the pain is this bad, but it’s something. I watch TV and play on my phone while peddling (even though the meds help a bit, distraction is still needed).

It’s Saturday. I have lots of errands to run and jobs to do around the house. Those are going to need to wait…again. Some items have to be done regardless. I have to have clean clothes so laundry is done. Might not get all folded and put away, but they’ll at least be clean. My bathrooms need cleaning. My floors need vacuuming. My bedroom needs straightening up. I have to be able to let go of being able to do all I want to do. Instead I look through my library of movies I own and select one to watch. I spend the day doing not much of anything. I’ve taken meds so I can’t drive.

There are places I wanted to go, people I wanted to see. Instead I stay home. I have great friends I know I could call. I hate being “that person” though and asking for help or rides or whatever all the time so I don’t. I spend the day watching mindless movies and shows and forcing myself to get movement in. Thankfully the day before I had stopped on my way home from work to pick up take out. I have food to eat that only takes my microwaving to prepare. Eating, watching TV, taking pain meds, and some low-impact movement; that’s how I occupy my day.

The day is finally over, and I’m still exhausted from the minimal sleep the night before. Between the pain meds all day and the sleep aids I’m about to take I think “surely I will sleep!” I also decide my couch sounds more comfortable than my bed tonight. I start off laying on my right side. That side always hurts the most for some reason but I have to start that way until the Ambien starts to kick in. I lay like that until I can’t stand the pain anymore and then switch to the left side right before I fall asleep. I get a solid hour of sleep before waking up for the first time. It’s time to switch sides again because the pressure has gotten to be too much. I decide I need to add a muscle relaxant to help knock me back out as the pain is only intensifying. The next several hours are spent waking up every 45-60 minutes and trying to get comfortable again. I move to my bed; hopeful the change will make a difference. The night continues same as before. Nothing much has really changed. I try to decide if I should just get back up. I check the clock. It’s 4am…

[flagsphotosandfood-blog]

I love when my mom offers to help me clean my room cuz it's hard to do myself when I'm sick and flarey. What I really don't love is when she comes in and starts picking things up and moving things and doing things without talking to me- it makes me so anxious!!! And if I ask her to stop she yells at me and tells me it's why nothing gets done. If I try to explain my anxiety she just yells more and says over and over how she doesn't understand how THAT could make me anxious 😞😞

[hippie-nerd]

Showers are so much work.

[jordie819-blog]

Sleep? It's not like I need any.. Who needs to function normally anyways

[skreezilla]

Second fall of 2015! So again, getting off the toilet legs drcided nope.... not today karl, not today. And stopped working and feeling. So i went into a heap i managed to land on my shoulder and protected my head. And hit my right arm and hip hard... luck right arm has low feeling but the shoulder and hip hurt like fuckerybugger. i muat admit a little more than tired of this bull shit. Like,lots of people don't get how shit it is living like this. I am late for work as usual and i know people there are sick of me being late and i am sure people think i am just lazy. :/ blerg. The whole legs stopping working thing is also getting worse when i have bad pain days too... must admit a little worried on this. It is fine then out of no where 1 or both legs just give up, i lose all feeling in them and they just collapse. Then after 2-5 mins i regain feeling in them but they are so painful and it takes about 15 mins before i can walk again. Drs have no clue why it happens and blame it on either mini migraines or a black out type situation where pain gets so much my brain switched them off...

[skreezilla]

New meds are helping with pain, really dulling it. How ever i feel all paranoid and anxious. It is only my 2nd day on them so giving i t aome time. The other isue is that i can't focnus my eyes... Also when i close my eyes im om the bus and i see people in the empty seats. It is really freaky.

[skreezilla]

I managed to fall asleep at around 5 am today... because of pain. -_- uuuuhggffuckidtittywankmuffins! Then alarm woke me up at 6 for mefs..took lots... fell asleep till 8:40.. now nerd to get to wotk. Todat is going to be awful.