#gi dysmotility

[ellie-ana]

Today's food fail:

I ate 1 paper cup glass noodles which is 1g fiber and 160 kcal and super low fat and protein. So good for a gastroparisis diet, if tolerable.

Glass noodles burned in my stomach a bit like heartburn but not exactly the same, a MCAS reaction thing, and it caused constipation, and extreme bloating.

It was so nice to eat something else tha sweet potatoe and salted crackers, for once.

Food win:

I ate 2 home grown organic strawberries, too they were so delicious 😋 I know I can tolerate.

[ellie-ana]

I had a massive reactive hypoglycemia crash/hangover, it took me over an hour to recover from the fatigue.

Which made me realise a lot of my fatigue throughout my life is likely from reactive hypoglycemia episodes, and my over eating episodes I have suffered with all my life is also due to then undiagnosed reactive hypoglycemia caused by dysautonomia and GI dysmotility, and MCAS.

Mentally it is difficult to adjust to all the massive changes I had to make the past 2 years, but realising that all my over eating and fatigue and irritability and chronic pain, clumsiness, extreme bloating, constipation and allergic reactions, is not all in my head and not something I have caused myself, as I have always been told as a child and teen. I just did it for attention, no one would do this amount of pain and discomfort to themselves.

I am healing myself and all the trauma around my different needs due to my disabilities, the more knowledge I gain about my disabilities and how they interact, the easier it is to let go of the trauma of all the gaslighting I have had prior to finding answers to all my health issues.

I have never had a normal relationship with food, and I never will, and that is okay, because I am born with GI dysmotility, MCAS, reactive hypoglycemia and dysautonomia due to hEDS, so I can't eat normally as it will have serious long-term consequences, and it could be deadly.

Realising this is healing my food relationship, and my beliefs about food and health, my diet isn't healthy for anyone but me, and it isn't healthy for me always but it is the best I can do, and that is all that matters.

Being able to eat less than a K-pop diet, during flares is okay, because I can't exercise, so I don't burn as many calories. I am petite in hight, so I don't need a lot of calories to hit the healthy range, that is also a bonus.

I love food as much as everyone, my ability to eat and digest is just super low, even with daily laxatives.

I am starting to accept my many disabilities and the limitations they comes with, and learning to live within the limitations and stop fighting them, the more I fight my limitations the worse my disabilities becomes.

Just because I don't fight my disabilities, doesn't mean I have given up, quit the opposite, I take care of my needs so I can do more of what I love, and stop getting worse all the time.

[ellie-ana]

I have eaten/drunken 10-15g fiber, low fat and low protein in 5 small portions, for 3 days and I feel better, I am not extremely bloated all the time, I look 5 kg thinner, I can sit down for longer without bloating and pain, my acne is clearing up, my digestion is way better.

I eat/drink approximately 1.100-1.200 calories a day lead a life with very little movement (electric wheelchair and needing a lot of rest for my disabilities), I am only 4'11 so I don't actually need more calories at best weight for my body and disabilities and my activity level, which means that I likely won't need a feeding tube for a long time and only of my disabilities that affects my digestion worsen.

This is a massive relief, and I just have to come to terms with my very limited diet because it works!

[vampireboinyx]

I am so tired of living like this. I am in constant pain 24/7. My stomach is always hurting, the nausea never goes away and gets worse every time I eat. I have diarrhea 7-15 times a day.

After 5 years of this and every year being able to tolerate less and less food, getting more sick, and currently with no answer as to why, my GI doctor gave up on me and my dietician has me on a fully liquid/puréed diet. I wish we could figure out what is wrong with me. All we know is that I have symptoms of SIBO, I have IBS, GERD, multiple food intolerances, and slower than normal GI motility.

I’ve had so many tests and procedures done and everything comes up normal or unremarkable. I feel like I’m going to be like this forever and I’m only going to get worse. I can’t imagine how much worse this could get unless I stop tolerating anything besides water.

Right now I’m able to stomach enough liquid/smoothie/purée to get between 1200-1300 calories a day which is still good. But the only time I feel no pain, no nausea, have no diarrhea, is when I am doing a water fast. I just hope we can figure things out soon. I’m tired of doctors saying they will help me find answers and then just giving up when things don’t make sense.

Once my parents get paid, I will be able to pay for my dietician to order me the GI-MAP from DSL. Hopefully that will give us some answers and we can figure out our next step. I’m just scared because I’m starting esthetician school on September 15th and I can’t afford to get sick in the bathroom and lose hours during that program. I just hope things start looking up soon. There has to be a reason for all of this.