I save all of my medical records, my complete medical record is like a 1000 pages long. I've also spent a lot of time reading my medical records and doctors notes trying to connect things that my doctors didn't think were significant. One time I spent like 10 hours looking for old medical records from when I was 7, 8, and 9 in storage at my parents. I only ended up finding 5 pages from 1998-1999 but the things that they said were a huge help and gave me a lot of answers to the how and when I first got sick. Most of my medical records from when I was very young were thrown out, but once I was about 16 I started keeping my own records because I knew that my mom wouldn't. If you don't have copies of your medical records then I highly recommend getting them. So often doctors have not told me test results because in the context of their singular specialty an abnormal result seemed insignificant, but in the context of ME/CFS they become very significant. Good luck, dear <3