I owe an apology to all of you
I owe this to everybody on here. For the last year I have been posting on here and getting great help from everybody on the Cystic Fibrosis tag since I had been clinically diagnosed in January of 2013 and they started suspecting I was affected with the disease in 2006.
Last week, I received the news that they had tested all main genes and even though I was border line with the sweat test, they told me I was misdiagnosed. Therefor I do not have Cystic Fibrosis, just similar symptoms. Why, because I have an inflammatory disorder. This is all they know so far. There is something in my body that attacks my organs. The lining of my lungs, the airways in my lungs, my sinuses, my pancreas, my heart, part of my GI system, my UTI and my spleen have been affected with scaring (which is why they thought I had fibrosis). I am on a Prednisone trial right now and might be on it until they can figure out what is causing this, if the trial works.
I am really sorry if this is upsetting some people, as this was not what I came here for. I came here to get some answers on being diagnosed so late and on what was to be expected. I was treated with CF for 14 months, and all I learned was how strong you guys are.
Now that doesn't mean I will not continue fundraisers for CF, because I now have so many friends that have this aweful disease, and since you guys supported me in my worst parts, I will never turn my back on you.
