I hate how lonely my IST makes me feel.
People in that Facebook group have had symptoms for less than 5 years. I've had mine for 22 years.
They all act like their life hasn't changed. I'm finally Somewhere that I can accomodate myself.
They will do anything to be cured. I've come to terms this is permanent, but there are things to help.
They all can take medication that helps. I've chosen to not be on medications because they either made no difference or made me feel worse.
Mine is paroxsysmal. I still haven't met anyone who also has paroxsysmal IST.
The way they talk makes it sound like it's the structure of their heart itself. Mine is under the Dysautonomia Umbrella, so my heart structure is fine.
I feel like I can't contribute to the group or Ask questions because how different I feel from the rest of them, so I'm almost ready to leave and not find another group.