#kaftrio

[amayikes]

I never post myself but

I just got Trikafta/Kaftrio after a year of sueing the government for it

I'm cured??? I'm effectively cured???

I'll never have to be in the hospital again? I'll laugh without a coughing fit for the first time since I was fourteen? I'll spend a DAY without a coughing fit for the first time since I was 20? I'll have the lung capacity to sing? And to walk long distances without pain? I'll gain weight and muscle mass and feel less breakable? And holy shit I'm so excited for how much energy I will have, I am willing to be surprised by the discovery so many issues were due to cf, like maybe my fatigue will go away? Maybe my sleep will improve? I'm also kinda scared. What if I get skin eruptions. What if my taste buds change. What if I have debilitating headaches and dizziness. But fuck it, it's worth it.

For the first time in my life I'll have to think about retirement. For the first time I'm terrified of dying because now I'll get to live until old age. I'll grow old, guys. I will grow old.

I'm- just holy shit. I'm still processing this.

[lifeofacfsurvivor]

I've been on Kaftrio for a year now! 🥳

Still haven't had a hospital admission since last January. Bless the NHS.

[lifeofacfsurvivor]

My doctor is actually pissing herself because I haven't done treatments in 3 months and my lungs are 66%. She can't even argue with me to do treatments because I'm doing so well off them. Like I'm having the best lung time of my life 🤣

[svtturlan]

Mucoviscidose : un traitement innovant, le Kaftrio, généralisé aux enfants en France

https://www.francetvinfo.fr/sante/mucoviscidose-un-traitement-innovant-le-kaftrio-generalise-aux-enfants-en-france_5551815.html

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[chillyarticles94]

an innovative treatment that significantly improves the lives of patients

an innovative treatment that significantly improves the lives of patients

This new treatment raises immense hope: that of transforming cystic fibrosis into a stabilized chronic disease. This hope is called Kaftrio, an innovative treatment combining three molecules, targeting the origin of the disease. It offers a better respiratory capacity, a better life and makes it possible to avoid lung transplants. However, the Kaftrio is not accessible to the greatest number of…

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[mypositiveoutlooks]

Personal trainer and Thor lookalike with cystic fibrosis can now laugh properly, thanks to life-changing drug

Personal trainer and Thor lookalike with cystic fibrosis can now laugh properly, thanks to life-changing drug

A personal trainer living with cystic fibrosis—also known for his resemblance to Thor, the superhero played by Chris Hemsworth—can now laugh for the first time without coughing. And it’s all thanks to a “life-saving” medication. Ben Mudge, 31, from Northern Ireland, United Kingdom, was diagnosed with cystic fibrosis at birth, but it didn’t affect him for much of his childhood. However, he grew up…

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