Discover Top Posts Tagged with #left sided colitis

Mile 147

I haven't written in a while. For a little bit, everything was the same with me and I didn't really have much to write about besides my every day life which, honestly, isn't that exciting. But now a few things have changed regarding my health. My Endometriosis seems to be under control. The Mirena IUD is doing a pretty good job. I bled maybe a little less than a month ago though, which was still pretty painful but the period itself was VERY light. I only bled for... 4 or 5 days and after the first couple, the pain slowly went away. That is the only bad thing I can say about it. Well, I seem to be having a bit of an acne issue but that I can deal with! However, my UC is... a bit more complicated. I swear, it's like a ping pong game between my major diseases. When one is fine the other is like "My turn!" and starts fucking with me. I've been bleeding and having a ton of mucous in my stool and I've been having more diarrhea than I would like to. Obviously none would be ideal but at least I still have SOME solid bowel movements. So I am going to see my Gastro soon to talk about it. I really hope my Humira is still working and that it's something else, that I don't need to find a new medication because I really like Humira, it doesn't give me nasty side effects like most of the meds I've been on. Besides all of that, I won't be able to see my Primary until April. My appointment got pushed back for some reason and that's... not good. It's REALLY hard to get my meds refilled without actually seeing her because no one at that office seems to do it right. We call, leave a message about the meds and that I need another prescription cause the refills ran out, and then nothing. No calls back or anything because either no one heard it or something. It's frustrating. The phones there are a hassle too and it's almost impossible to get through to the office. So yea, just resting a lot and playing video games and trying not to overexert myself too much. This Christmas has been the most activity I've done in a LONG time because my sister came to visit, which was extremely amazing and made me very very happy! And I am pretty proud that I only had to stay home for ONE day, when there was an activity planned, because of my UC. I did pretty well, had to take my pain meds at times but not nearly as much as I was fearing I might have to. So I'm very happy about that and I'm just happy that I got to spend time with my sister again! I missed her so much! And thank you, body, for not acting up too badly! Anyway, I hope everyone had a great Christmas, Hanukkah, Kwanzaa, or any holiday you celebrate(d) during the break and onward till New Years! <3

#UC #ulcerative colitis #colitis #Left Sided Colitis #ibd #Inflammatory Bowel Disease #Crohn's #crohns disease #Endo #Endometriosis #humira #spoonie #IUD #mirena #mirenaiud

Mile 144

I am really nervous... I am having trouble sleeping and my uterus and stomach are cramping up. I'm nervous because this is the first time I'm relying on someone else and myself to take me to a doctor's appointment. What if I'm late? It's nearly impossible to see my Doctor and if I have to reschedule, I won't be able to see her till another 3 months! Which would be REALLY bad because I NEED medications refilled that I CAN'T just refill over the phone. And my Mom left me her card to use instead of cash (Yes, she trusts me that much. There is no way in hell I am going to spend her money on stupid shit I don't need since the whole family relies on it as well as me). I am incredibly nervous about that because, even though she gave me her pin number and permission and blahblahblah, I will have to sign her name and... obviously I am not my mother. But she says "They won't care! They have seen us both there a thousand times and it's just for their records. Besides, they want the money more than anything, seriously, it won't be a problem." Ugh... It would have been so much easier just to give me cash for the appointment. I have used her card and had to write her signature before for things but never for an appointment, only for things at the grocery store. I just don't want them denying me and then me having to reschedule or something... If worse comes to worse, maybe I can borrow money from the friend who is driving me but I really don't want to do that. I think that's what I'll do. I'll have my friend wait in the car for me till I know if I can pay or not, just in case, then once I know I am able to pay, I can have him leave and then pick me up later. That sounds like a good idea! Yea.... Ugh, still nervous as hell though!

#IBD #ulcerative colitis #colitis #Left Sided Colitis #Crohn's #crohn's disease #crohns #endo #endometriosis #uterine disease #uterine fibroids #chronic disease #chronic illness #doctor #Primary Doctor

Mile 142

Another Mirena IUD Update and overall update. ENDOMETRIOSIS I have been bleeding less and less. My discharge is becoming much more clear and it's becoming more rare for me to see any trace of blood or bloody clumps/clots. I still get painful cramps but my Gynecologist said it could take up to 6 months from the time of insertion for that to completely stop. There IS a foreign object inside of my uterus after all. I'm just glad my bleeding has slowed significantly! This is definitely a good sign! IBD (ULCERATIVE COLITIS) My UC has been acting up really bad lately. I don't think it's because of the IUD though. I think I'm just having a bad flare up. I've been having bright blood in my stool and because it's not a lot, I'm suspecting either a small fissure or an internal hemorrhoid. There isn't any pain around my anus, so the likely-hood of it being a fissure isn't great. I've had a fissure before and it was pretty painful. However, internal hemorrhoids I can never feel. Besides that, the pain from my UC has been incredibly intense. I've been getting nauseous a lot resulting in vomitting and there has been a lot of mucous in my stool. Just today, I had excruciating pain and when I went to the bathroom, my stool was covered in thick mucous. The pain also got so intense I felt I could have passed out. There was very little blood in that episode though. I see my Gastro soon so I will have to tell her about this and see what's going on. Maybe something I ate DID NOT agree with me? Or maybe it's something else? Either way, it's making my progress slower. Overall, I've been doing fairly poorly. I've been incredibly exhausted all the time and it has fucked up my sleeping schedule. I want to sleep constantly but I try to force myself to stay awake. If I let myself, I would sleep all day and night and only wake up to eat and drink and go to the bathroom. So I occupy myself with games, TV shows and movies. It also keeps my mind distracted. All of this physical stress is taking a toll on me mentally. I wouldn't say I'm depressed but I am sad... Sad and frustrated and angry and so many other emotions that I just can't express them properly enough through word. Anyway, I see my doctors soon. My Primary on the 2nd of October and my Gastro the next week of October. I will do another update then. Until then, thank you so much for all of your support and for following me on my journey so far. You have no idea what that means to me! I love you all!! Till next time!

Mile 140

Mirena IUD Update

ENDOMETRIOSIS Though it hasn't been that long, I did want to give an update since SOME things have changed. I am still bleeding, however, it HAS gotten lighter and I have more days where I notice I don't bleed at all. The consistency of my bleeding is thin, stringy and chunky, kind of thick. It's a very dark brown. I'm hoping that as the weeks go on, I will eventually stop bleeding all together. The amount of discharge is still exactly the same as it always has been. Speaking of discharge, sometimes when I wipe, it will be tinted brown in color. I'm assuming that it's because of my bleeding since this has been happening for the past month and a half (Since that is how long I have been bleeding for). I am still having trouble with pain unfortunately, but I JUST got this IUD on the 19th, if my memory is correct, so I am not expecting any miracles. It will definitely take a while before the pain starts to get any better! I'm just glad that the bleeding is getting lighter! IBD (ULCERATIVE COLITIS) My UC hasn't gotten any worse! I am still having solid BM's as well as diarrhea sometimes, though the diarrhea is sometimes caused by trigger foods which are... basically my own fault for eating OR for other reasons (Such as eating what was previously a safe food but decided to become an unsafe food). Since the pain is still present, it still causes my UC to act up but nothing too severe. Again, I'm hoping that once my Endo pain starts getting better, so will my UC pain and diarrhea episodes. There is absolutely no blood in my stool and the only time I notice any mucous is when I have a pretty severe episode, which is uncommon at this point. Right now, my UC is doing pretty well thanks to my Humira and the IUD hasn't interfered with it at all! I am crossing my fingers that once the IUD 'kicks in', my UC will be completely in remission! On another note, I am going to assume that this can also be applied to people with Crohn's Disease and other forms of IBD. I would think that when it comes to an IUD (or other forms of BC), the type of IBD you have wouldn't matter so I hope that people with Crohn's/Crohn's Colitis/Etc can also take some information/advice/whatever from this!

Mile 136

I tried writing this post before and it got deleted (I was hitting backspace and instead of actually deleting what I wanted to delete, my fucking browser decided to just go back... Thanks), which is incredibly frustrating since it was quite a long post. So I won't be talking about Colorado. I may sometime later, but I am going to focus on my health and try and remember exactly what I wrote... again. My Ulcerative Colitis is doing much better. The infection and flare ups have subsided and it only acts up now when my Endometriosis acts up and when I bleed. My Endo, on the other hand, is not doing so well. The birth control pill that I'm on is not helping at all. It's making everything worse. The surgery removed a great majority of the growth, but I'm still having a lot of pain and severe bleeding. While on the pill, I have bled 3 times (not counting spotting) and I have been on it for ALMOST 3 months. The first time lasted 10 days, the second lasted 7 and third, which just ended today, lasted 12 days. This most recent time I also shed large chunks of my uterine lining. As instructed, I have NOT been taking the placebo pills, so I shouldn't be bleeding at all. Spotting should be normal, but this is definitely not spotting. I will talk to my Gyno about all of this and definitely make a change to something stronger and hopefully something that will stop my periods all together, which is what we want. Because the goal is to not have any periods at all, not periods that last 10+ days! They talked about an IUD, but I'm a bit scared to try that because of the way it's put in. I'm afraid of perforation and the possibility of that not stopping my periods as well. There are a lot of things I'm really concerned about but there's very little left for me to do. I can't go back on Lupron since it didn't work for me and Depo-Provera caused me to gain an extreme amount of weight, so that's a very poor idea. Pills have NEVER worked and I have tried many in the past. I can't try the patch because I am about 5 pounds over the weight limit for that. I guess I will just have to wait and see what my Gyno says when I see her. I'm seeing a different woman, someone more experienced with Endo, so hopefully that helps. It's just all very frustrating...