#lifewithlupus

[its-still-a-rebirth]

Survived this week after working 56 hours. I am in so much pain I wanna cry. HOT HOT showers this weekend.

[its-still-a-rebirth]

Laying here in bed next to my beautiful boyfriend, and I sometimes can’t help think about how I’ve had a whole entire life before him. We’ve been together a little over three years. Him and I have been through a lot. We have grown so much as a couple and keep getting stronger. Keep falling more in love and healing together. When me and my ex were together for 13 years and all we did was grow a part and just didn’t have anything in common. Fighting. Drug abuse. Forever trying to protect our kids..,,,,

Things in my old life make me angry and sad to think about. I just try to tell myself I wouldn’t have my four beautiful children without him. My life is SO wonderful right now. I can leave money out and know it’s not going to be taken. My kids can save money in a piggy bank for the first time, ever. I can have something expensive and not worry it’s going to pawned at the pawn shop. I can have an operation or have a flare up and if I need pain medication it won’t be stolen from me. Why did I ever live like that for so long? Why did I think staying with him would be a good and healthy for our children to see and want for themselves?!! Why was I so sick?!! So many whys and I’ll get no answer from my ex, but I can learn from my mistakes and never make them again. And try not to get so upset when you are NO help with any part of our children’s lives. Grrrrrr lol ok ok.

[lifewlupus]

[lightscamerasmashem]

View this post on Instagram

#Mood What can I say, other than I don't give up easily...... #Friday #Life #LifeWithLupus #IWontStop #Oklahoma #Spoonie #LupusSLE #DiscpidLupus #SjogrenSyndrome #Vasculitis #RA #Arthritis #AdiesTonicPupil #Fibro #OneOfThoseDays #VideoOfTheDay #VideoOfInstagram #LaidUp #StuckInBed #LupusFlare #LupusWarrior (at Claremore Lake) https://www.instagram.com/p/B0HQo8qjcy6/?igshid=ozoo1cfs5w3e

[grad201587]

Wish today was one of those days #lifewithlupus

[muff3n]

#tbt from last year Hawaiian party for my hechanova family. Lol my mom took a picture of herself right after I cut it off. She was so sad but it turns out great though!! My mom turning into Kaleesi. This year my goal is to jump into that pool. #throwback #mommydear #pah #lifewithlupus #summer #IWANTOMOVETOIRVINE (at Irvine, California)

[simivalleyhowsefoundation]

Perfect way to show how #LifeWithLupus is for the 1st day of #LupusAwarenessMonth Having #Lupus you have endless doctor appts, blood draws, hospital visits and much, much more!! Some people can not work, this is why I teamed up with #WeWinFoundation We are having our #Charity #ComedyShow on May 26th at the #IceHouse in #Pasadena Proceeds will go towards people who are greatly impacted by having an #AutoimmuneDisease that they can not afford basic living expenses. We will be picking a family a month and help them pay for #Rent #Utilities #Groceries #MedicalExpenses and more! Come laugh with #FritzColeman #EdrinaBlissGibson and #TerranceWashington Share with family and friends and see there!!!

[lupuswolflady-blog]

Living with #Lupus

Fatigue is common with lupus SLE. Learning to pace yourself can be a challenge. Determine your "lowest energy" time of day and try to put your feet up, have some tea, or meditate for ten minutes. It can boost your energy enough to get through a few more hours. Check to make sure your fiery is on target with fruits, vegetables, and healthy proteins like fish, eggs, and nuts, and fats like olive oil and avocado. If you have children, work, are in school, are a caregiver, have other disabilities - many things can factor into your energy level. Lupus is your immune system attacking your body's healthy tissues. Make sure you stay in contact with your doctor (preferably a rheumatologist, aka "rheumy") and get regular testing and monitoring done. Some people with lupus who have the malar or "butterfly" rash can tell when they will have a flare by the condition and color of the rash. This can be another sign of how your health is doing. Learn your personal symptoms and keep track of them. Write them down so you can update your doctor at checkups.