#lupussle

[kirasunshine]

#everythinghurtsandimdying But really, Everything hurts and I’m dying. #lupusawareness #lupus #lupussle #sjogrens #fibromyalgia #fibro #chronicillness #chronicpain #chronicillnessadvocate https://www.instagram.com/p/BncCc6AACRr/?utm_source=ig_tumblr_share&igshid=wdteo3f9rq2f

[kirasunshine]

For those who do not understand, let me explain. This is a law that only a couple of states have. It means if you are chronically ill, and you have run out of options, course of treatment, you have the ability to have assistance to keep you comfortable till you pass. You have the ability to say, I am ready to go. If you are not in chronic pain, have been in a horrible accident leaving you completely helpless and more of a vegetable you will not understand why this law is even in existence. We fight everyday, but after years of fighting, you are mentally and physically can not handle it anymore. This law would do the same type of assistance to someone who is dying of things such as cancer or leukemia.

[kirasunshine]

Depression with body image.

Before I got sick I’d work out two hours about four times a week. I loved sweating I loved the pressure on my muscles. As I began getting sick I was stuck in bed for six weeks straight. As the years have gone my body has been getting weaker and weaker. I try to keep up by moving and cleaning, vacuuming, dishes, laundry. But what you don’t know is, after I vacuum I have to sit for 15 minutes not to pass out. I can PULL laundry down the stairs, not carry it. I can’t carry the laundry up at all. I have to sit to fold it put things in piles so it’s simple to move my husbands clothes from mine. Doing dishes is something small but it’s a toll. I get very hot from the water, my back starts hurting and I have to stretch my back multiple times and my hands start to cramp from moving them so much.

That being said, walking has become hard. I use to be able to do bleachers at 18. I’m 26 and I’m lucky if I can walk around the block without pain. I get so happy I do an extra lap and realize I pushed myself too hard and end in a flare the next day not able to move at all.

I swear A LOT more since I’ve gotten sick. The funny thing is it’s not in my armpits m. It’s in my staple, under my boobs, and the back of my neck. I’ve had to put a window air conditioning system in our bedroom window next to my side of the bed because I get so hot.

Far distances come with how far and do I choose a wheelchair or a walker. If I’m running into a store quickly I can go without my walker. If I go to a mall, I need my walker so I can sit and stretch out my legs. If I’m going to something with a lot of walking (Disney World) I have no choose but to use my wheelchair. I can get out and hold on to the wheelchair to stretch from sitting but it’s painful.

I can’t get my heart rate up without passing out. My muscles can’t take a normal workout. I want a personal trainer so badly but I can’t afford one. Someone who can tell me wen to stop because I don’t know when to.

Last night I stood in the mirror and cried. How did I go from 130 to 200 in seven years? I have stretch marks every where, my thighs are thick, I have too big of triceps, and my love handles are bigger than my ass.

I did start dieting last week. I hoping this can help with the pain. This body makes me so sad. I don’t know if I’m more upset about the inside of my body not working or the outside being so ugly.

[lindgrenjulie]

Minus chronic headaches, chest pain and Anxiety and depression… freaking wonder I’m still standing vertical #lupus #lupusawareness #sle #lupussle #kidneytransplant @selenagomez #ahousewifecom https://www.instagram.com/p/CY2H9kiN70J/?utm_medium=tumblr

[lindgrenjulie]

Just got this from @cultbeauty @supergoop #sunscreen good for people with #lupus #sle #lupussle #yay #awesome #beautyblogger #ahousewifebeauty #beauty #skincare #beautyhaul #ilovebeauty #ilovebeautydk #ahousewifecom # NoPaidPartnership #NoPayedContent #NoDiscount #AllBoughtContent #influencer https://www.instagram.com/p/CHU3FHVDpmQ/?igshid=162qr2b8rf4x7

[lindgrenjulie]

When your medicine bill is $4336 (30000kr) in one year 🥴 #lupus #lupussle #sle #slelupus #kidneytransplant #kidneytransplantrecipient #kidneytransplantsurvivor #kidneytransplantlife #chronicallyill #chronicaldisease #ahousewifecom https://www.instagram.com/p/B86HWptjNiM/?igshid=4o199al3ml6m

[beautifulrosebutterfly-blog]

Prednisone

I got put back on it been awhile since I was on it

[ambizness-blog]

Fuck Lupus #ButterflyRash #lupus #sle #lupussle https://www.instagram.com/p/Bt97x0NHOF1/?utm_source=ig_tumblr_share&igshid=5nu3mn4tnkrp