#lovingkirby

[loving-kirby]

In Case I’m Away

How to help Kirby if I am away from home at bedtime.

Kirby gets very tired at the end of the day.

There is a few things he needs to help him be more comfortable at night.

#1 Place Kirby’s buffalo-checked blanket at the foot of the bed.

#2 Go to the freezer, and locate an ice pack in the lower right basket.                  Kirby will place it on his shoulder with your help.

#3 Open a package of Hot Hands located in the nightstand top drawer.                  Kirby needs these for his finger tips to help with circulation.

#4 Check the nightstand to be sure the thermostat remote is within his reach.  Kirby’s internal temperature fluctuates and he needs it near.      

Kirby is strong and capable, he just needs some extra assistance when he gets tired. I am always happy to help, and I am always loving Kirby!

[loving-kirby]

You Don’t Look Sick!

Multiple Sclerosis is often an “unseen” disease.

Kirby hears it all the time, “you don’t look sick”.

He never says he is “sick”, he refers to it as a condition or affliction.

YOU DON’T SEE WHAT I SEE

Kirby was laughing in this picture, because he was struggling to focus.

Sometimes we laugh to keep from crying.

His vision is impaired due to a lesions near the occipital lobe of his brain.

YOU DON’T HEAR WHAT I HEAR

Kirby is always in charge of the remote while watching television. 

Another side effect of MS is tinnitus, a constant drumming in the ear. 

YOU DON’T FEEL WHAT I FEEL

This was Kirby’s birthday, he was excited to received copper compression socks from our daughter.

He often has pain and heaviness in his legs.

Kirby is very loved, over the years he has received many gifts geared at alleviating his discomfort.

I’M NOT DRUNK, I HAVE MS!

This is one of Kirby’s favorite lines!

He is so wonderful, I just can’t stop Loving Kirby!!