I’ve been doing a lot of research on albinism lately. I’ve learned about the many different subtypes I hadn’t known before, as well as the challenges that come with the lack of pigment, not only in the hair and skin but also in the eyes. Nystagmus, photophobia, and much more. It’s fascinating to discover so much about a condition you don’t usually hear about every day.
I want to be as informed as possible when writing and creating this story. I want it to represent people with albinism, while also reflecting my own personal beliefs, feelings, dreams, and much more through Luka’s perspective, beyond the subject of albinism itself. However, I still feel that I haven’t yet gained the depth of knowledge about albinism that I’m aiming for.
I would love some help with it! I am very interested in knowing more about it and hearing about peoples personal experience with albinism, to make Luka’s story as real and comforting as possible. Not only for me, but for everyone.