I've stopped talking about meningoencephalitis almost entirely now because I am legitimately the only survivor on this fucking site, shouting into the void of medical article bots

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I've stopped talking about meningoencephalitis almost entirely now because I am legitimately the only survivor on this fucking site, shouting into the void of medical article bots
If I could meet even just one other person who has had meningoencephalitis and lived I would die happy
I don't know anyone who has survived the disease that nearly killed me. I don't know OF anyone who has survived the disease that nearly killed me. Even trying to search for information it's incredibly scarce, most of the time it just pulls up things about meningitis or encephalitis, or about the disease in dogs. I've found a grand total of one study on the lasting effects, and it only ran for a year because out of the already small sample size, a large portion of them had died by then.
It feels like there's a big hole in my support system where people who can relate should be, and the chances of finding any who are still alive is so incredibly small that I've just given up on the idea. It's just me and my unique and extensive pattern of brain damage.
There's something strangely freeing, almost exciting about finally, after almost a decade and a half, having a detailed description of what is actually wrong with my brain. I can't be gaslit and lied to anymore, it's there on paper, and I know exactly what is wrong and that how it affects me is without a doubt real.
But it's also terrifying, to be faced with direct, undeniable truth. To be told "these parts of your brain are missing", "there are physical scars on these parts of your brain that will never heal". It feels more real than just "moderate brain damage", in a way that I'm not sure I ever expected to hear. No longer can I tell myself that it can't be that bad, that the reason I never got the appropriate treatment is because it's practically nothing and I'm overreacting.
It's also sad, to think that by the time I know all of this, the window for the rehabilitation that I needed, deserved, is long gone. Medically, the information has very little use to me anymore. All it can really offer me is freedom, understanding, and cold fear. I was robbed of what could have been by a system that is built to gaslight its patients, by doctors who lied to my face about the images right in front of them and subjected me to over half a life of trauma. I finally have closure, but it's so, so bittersweet.
Map shows where brain-eating amoeba that causes Primary Amoebic Meningoencephalitis is found -- mostly commonly in Florida and Texas.
When the tag for the thing that made you permanently disabled is just you and medical article/clickbait bots
Ableds: You're not trying hard enough! Mind over matter! Stop being lazy!
Me: When I was first told I couldn't walk they had to sedate me so I wouldn't hurt myself and anyone who tried to stop me trying to prove them wrong
Exactly two weeks until my 11th deathday, I feel like I deserve cards and presents for this