#ms stuff

[mistofstars]

Two hearts talking - Chapter 5 - Mistofstars - The Hobbit - All Media Types [Archive of Our Own]

An Archive of Our Own, a project of the Organization for Transformative Works

Woop woop, chapter 5 is online 🥰

This time, the company is on the run from the Orcs and Azog appears... 👀

[mcsockeye]

Yesterday I saw some old friends at a work thing and they asked why I have a cane now (it's been a few years)

Me: oh, I got diagnosed with MS and-

Everyone in a ten foot circle who overheard, simultaneously: oh, shit

[sgtpeppers]

i can't tell if my ms symptoms are flaring up because of the warmer weather or if i'm having a relapse and i'm so stressed and sad, and there's literally nothing to do but try and stay cool and hope it doesn't last longer than a couple of days

i s2g if i end up in hospital again i'm gonna hit rock bottom

[whatthesquids]

Not my first MS hug in like two years 😖😭

[whatthesquids]

It feels like friday bc i didnt work but more importantly it feels like i got a bunch of drugs iv’d into my blood and now my heart is pumping fast fast fast. Youll never guess why

[clusterbungle]

So I just realised I've completely read 3 books so far this year. I'm averaging a book a month.

I know a lot of you read way more than that and I used to read way more than that too, but then a combination of MS brain fog, intense depression, and the creeping sinister effects of social media totally destroyed both my attention span and ability to even understand what I was reading.

Like for the last 5 years or so I would pick up a book to read (because that was what i did, it's who I used to be), and I'd be lucky if I managed to read 3 sentences before I put it down again and left it for probably several weeks if not months.

I can't describe how much it hurt my soul that this huge part of me was disappearing before my eyes.

So... yeah... 3 books. I'm kinda hella proud and I'm avoiding eye contact with my own brain in case it realises and decides to stop doing the thing again...

[mcsockeye]

I don't think I'm coping with the whole terminally, chronically ill thing as well as I thought I was. And I'm kind of afraid that I'm going to be very, very alone, but I'm really having a hard time not lashing out and being wretched.

This sucks.

[irresponsible-masochist]

Managed to snag Dose 1 of a pfizer shot today. Had to drive an hour and 45 minutes one way to get it, but I got it.

Dose 2 on the 31st, so...yay?

Also, did you know that the Johnson&Johnson-type Covid vaccine isn’t recommended for people with MS because there isn’t enough information on how those two things interact and doctors can’t in good conscience recommend it to MS patients for that reason?

Because...that’s how it is, apparently.

If you or someone you know has MS and wants a Covid vaccine, make it a moderna or pfizer. Also, good luck getting those if you live in PA.