Hey Mac, I hope this finds you on a good day <3
I was wondering if you knew anything about peripheral neuropathy? I ran into it a while ago when looking up one of my numerous problems and since then have realized it could well explain many of my issues! The issue being said issues started when I was a small child and everything i'm finding with any information I can acrually parse on it is only mentioning things like Guillain-Barre Arthritis and Cancer- things either unlikely in a child of 8 or to last undiagnosed or treated for 20 years.
If you know anything or can point me in a good direction to go on a deep dive about it I'd appreciate it! I hope the rest of your day/night is gentle on you.
hey, thank you <33 this is really interesting & concerning to me because once again information about incredibly common experiences is so hard to come by – i’ve experienced peripheral neuropathy for a couple years which i’m on medication for (duloxetine, generic of cymbalta), and while i haven’t dedicated a ton of research to that specifically, i have definitely come across information when researching other conditions, and basically my understanding is it can be caused by most autoimmune diseases.
probably the first thing most people will think of from the words “peripheral neuropathy” is diabetes, which mostly happens in the feet, i believe due to lower circulation because that’s the case for most foot impairments in diabetics. neuropathy can definitely be experienced in things like (juvenile in your case) rheumatoid arthritis, ankylosing spondylitis, lupus, etc, either as a primary symptom or through secondary symptoms-the-medical-establishment-labels-fibromyalgia.
i know a lot of sick/crip spaces encourage looking into small fiber neuropathy (SFN) as well so that may be a starting point for you. an additional tactic i’d probably try if you haven’t already is like, “[something you think you might have],” for example “juvenile RA,” + “neuropathy” in PubMed & seeing where that takes you… again it’s such a common symptom that we really don’t understand enough about but that could hopefully turn up something that resonates with your experiences.
feel free to send another ask or dm me if there’s anything i can do to help! other folks feel free to chime in with suggestions if you have them. best of luck to you & i hope you find something helpful <33












