Normally we try & find a positive in every day, but for last 10 days i have struggled. And there are times of down and darkness in everyones life but the journey Eve has been through in 3 yrs has been extremely tough, a lot of the time i just want people to see how well she does and how brave she is. We went to appointment about her spine (scoliosis (twist & curve)) it has unfortunately progessed 15 degrees in a year, which is fast and at that rate puts her a risk of her first spine operation at under 5. These are life threatening operations and its painful beyond belief, added to 3 life threating diaphragm operations she already been through. I will have to come to some sort of peace with it, but for now it fills me with sadness. #cdh #scoliosis #nhsoperation #nhsmillion #kids #vent #tracheostomy #surgery #surgeon #hope #faith #family https://www.instagram.com/p/BtbZJ-8AFy_/?utm_source=ig_tumblr_share&igshid=1tu3boqhpw4sh