#potssucks

[lettersbyash-blog]

Being normal sick while chronically ill is a special kind of hell. 😩

[lettersbyash-blog]

Frustration!

Can we please fix our medical system and insurance now?! Having to fight for insurance to cover needed specialist care and specialists requiring a deposit that is 1/3 of my yearly income just to be seen the first time is absolutely unacceptable.

[potssucks]

Actually I can't tell if I'm nervous or if it's my meds. Midodrine does this sometimes

[potssucks]

Nervous abt cat's health (he's probably fine) so naturally my whole body is reacting and I'm having a slight fever. Who designed this. This is not good design

[findinglifessilversun]

Dysautonomia is an invisible and chronic condition, meaning people affected by dysautonomia look just fine on the outside. . Having an invisible illness is extremely frustrating in that we often get judged as being undeserving of accommodations we need. Because dysautonomia often impacts young people - preteens, teens, and young adults - people around us see a young, lazy person instead of a disabled and struggling person. . Sometimes, I'm fine. Sometimes, I need to plop myself down on the ground in public because I misjudged my ability to walk. Sometimes, I need to use the riding cart in a store because I can't walk that long and Dan can't push me and a cart. Or he's not with me. Sometimes, I need to use my own wheelchair - a transport chair - because standing still interspersed by walking makes me feel like I'm dying (no exaggeration). Sometimes, those cute knee highs I'm wearing are compression socks and are the only reason I'm still able to smile and carry a conversation. Sometimes, I've overheated when it's only 70°F (21°C) and am at risk of passing out. Sometimes, I'm freezing cold when it's 70°F (21°C) and need all the blankets and all the heaters. Sometimes, I'm just fine. ... Check out my latest blog post to learn more about dysautonomia! 💻 findinglifessilversun.wordpress.com/2017/10/04/what-is-dysautonomia (Or click the link in my bio and click on the post title: What is Dysautonomia) . You can get this sweatshirt on my Zazzle shop! It's super comfortable! 💻 zazzle.com/FindingTheSilverSun (Then click on "chronic illness" and you'll see all my designs! I do have dysautonomia specific designs too.) ... ... #DysautonomiaAwarenessMonth #DAM2017 #dysautonomia #POTSsucks #stopPOTS #MakeSomeNoiseForTurquoise #ChronicIllness #ChronicConditions #InvisibleIllness #MakeNoiseForTurquoise

[findinglifessilversun]

October is dysautonomia awareness month! 💙 Dysautonomia is an umbrella term meaning a malfunction of the autonomic nervous system (ANS). The ANS controls all the automatic functions of the body, such as: blood pressure, heart rate, temperature control, digestion, and more. Literally everything your body does without you needing to conciously think about it is controlled by the ANS. . When the ANS malfunctions, it can impact any and all of these automaric systems. . Dysautonomia is more common than MS (multiple sclerosis) and Parkinson's combined, yet almost no one has heard of it - including medical professionals. Getting diagnosed is a challenge in and of itself, let alone getting proper treatment! . Please join me this month in spreading awareness for dysautonomia: #MakeNoiseForTurquoise 💙💙💙 ... ... #DysautonomiaAwarenessMonth #DAM2017 #dysautonomia #POTSsucks #stopPOTS #ChronicIllness #ChronicConditions #InvisibleIllness @dysautonomiaintl

[lettersbyash-blog]

OMG, I want to scream! I've had a "normal people sick" virus for the past week that has aggravated all of my chronic illnesses. I can't seem to get better and I haven't hardly slept in almost two weeks. I gave in and took some medicine for my chronic illness flare pain to try and sleep some tonight but the medicine is keeping me awake. All I want to do is sleep!

[lettersbyash-blog]

Ugggghhhhhh

I have a midterm to write and tons of other homework but haven't even been able to sit up straight for more than 10ish minutes today. Uggggghhhhhh!!!!!!!! Can't my body try to sabotage itself at a more convenient time?!