May 17, 2020
We see you rare families #wearerare #raregiveback #rarebrain #schizencephalyawarenes #schizencephalyawarenessday #Schizencephaly https://www.instagram.com/p/CASLGzKBDB9/?igshid=vr97octowgr6
seen from South Korea
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seen from United States
We see you rare families #wearerare #raregiveback #rarebrain #schizencephalyawarenes #schizencephalyawarenessday #Schizencephaly https://www.instagram.com/p/CASLGzKBDB9/?igshid=vr97octowgr6
http://wearerare.org/2020/02/06/rubys-story-age-13-south-wales-uk/ We want to hear your stories. If you want to share your rare journey with us please write us [email protected] Meet Ruby, her story reminds us that we are our children and family members best advocates. By bravely sharing stories with others, you help people understand the world through the eyes of others in this world that are defying odds and doing amazing things. We as parents, friends, loved ones and activists are the voice for the voiceless and we hope you join us in celebrating the life a families that are facing rare conditions across the globe. #raredisease #rarebrain #neuroscience #neurology #polymicrogyria #cerebralpalsy https://www.instagram.com/p/B8OoA6OBjtz/?igshid=11pk6h6ervi64
https://www.bonfire.com/im-aware-i-am-rare/ I'm aware we are rare shirts, sweatshirts, and designer tees! #unicorns #rarebrain https://www.instagram.com/p/B00ykJBBVqA/?igshid=d5774ndnravu
#raredisorder #wearerare #rarebrain #Schizencephaly #lissencephaly #anencephalyawareness #hydrocephalus #brain #neurology https://www.instagram.com/p/B0bAyjTBhER/?igshid=1931fo84ownad