Nov 14, 2014
"You can get used to anything in life, even to being paralyzed. After a while, it just feels normal. Yet, sometimes, I still wish I could cuddle my dog."
Laura, 45 years old, affected by SMA
seen from Germany
seen from Somalia
seen from Netherlands
seen from Philippines
seen from Jordan
seen from United States
seen from United States
seen from United States
seen from United States
seen from United States
seen from China
seen from China
seen from Macao SAR China
seen from United Kingdom
seen from United States
seen from China
seen from Russia
seen from United Kingdom
seen from Czechia
seen from Spain
"You can get used to anything in life, even to being paralyzed. After a while, it just feels normal. Yet, sometimes, I still wish I could cuddle my dog."
Laura, 45 years old, affected by SMA
“The effects of a disease are not always visible. So when you’re walking down the street just don’t judge people too easily or too fast. There could be something like a rare disease hiding behind the person you see.”
Marlou. 23 years old, suffering from Fabry's disease.
"Barbies are annoying: they're so perfect that they end up making you feel like you're ugly!"
Rebecca, 8 years old, suffering from SMA
I have a Fragile-X son. In the back of my mind I’ve always had him. I realize now, I was just waiting for him.
Francesca, mother of Giuseppe, 25 years old, suffering from Fragile X Syndrome.
"Always believe in your children's potential. Stop thinking about their limits; they will find ways that we can't even imagine."
Donatella, mother of Matteo and Antonio, both affected by Fragile X syndrome.
Follow day by day, the photographic journey across Europe that want to investigate the daily lives of those who suffer from a rare disease. The needs of patients, their hopes, their difficulties, but above all their joys and their daily achievements. Support us on https://kriticalmass.com/p/rarelives