Sep 29, 2018
please don't die too soon mommy
i know you coughed up blood mommy
and im so very sorry, for what i don't know
all i really know is that i don't want you to go
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seen from Canada
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seen from China
seen from United States
seen from Malaysia
seen from Netherlands
seen from Poland
please don't die too soon mommy
i know you coughed up blood mommy
and im so very sorry, for what i don't know
all i really know is that i don't want you to go
Register or donate today to be part of Ohio State's movement to end pediatric cancer.
Hello fireflies! I apologize for my long absence- college will do that to you. However, I’m happy to let you know I’m still writing and trying to do big things!
I’ll cut to the chase- Some of you know that, aside from poetry, I am a future nurse and current researcher who is passionate about improving outcomes for kids diagnosed with cancer. This year I’m participating in a fundraiser called BuckeyeThon to raise money for the very research I participate in!
With every donation of $10 or more, you will receive
a handwritten custom poem on the topic of your choosing OR
a handwritten copy of your favorite poem of mine in the mail
a cute graphic of the poem
a thank you card and some dried flowers or stickers or whatever else I can slip inside
all of my love
This could be a fantastic holiday gift for you or someone you love, and for a cause close to all of our hearts. Message me with any questions or if you decide to donate!
This is why we are running and asking for your help! Scarlett has a (very) mild cold and even so, with her CF, she needs an additional 18ml of antibiotic on top of her normal 12ml... Here you can see the meds she needs on a regular day plus her 'cold meds'. Today she will have had a whopping 44.85ml of liquid medication, several scoops of creon (the granule's you you can see), high calorie milk, plus physio for a total 45 minutes. All that for a very well CFer. Can you imagine if she had additional complications? This is why we run. We want to do our bit to help find a cure. Not just for our baby girl, but for everyone. Please, if you can donate even 25p, you will be making a world of difference. Please also share - raising awareness is just as important. All our love, Laura, Matt and Scarlett x https://www.justgiving.com/crowdfunding/ScarlettCFRun
Shameless Plea!
Hi all!
If you’ve been following me for a while you will know that my daughter, Scarlett, has been diagnosed with Cystic Fibrosis and will undergo treatment for the rest of her life.
Whilst all things considered, she is very well, she still requires a lot of help and support from our Hospital and the Cystic Fibrosis Trust charity here in the UK.
Matt and I want to do our bit to help and have booked in to complete an Obstacle Colour Run in June and we would be so very grateful if you could donate any spare cash you may have.
I can’t run to the bottom of my garden so I’m already training and already pooping my pants about it...
There is more about our story on here: https://www.justgiving.com/crowdfunding/ScarlettCFRun and of course I will post regular updates on here as well as the justgiving page.
Also if you have any questions about CF then by all means ask away, I would be more than willing to answer any you may have.
Also, also - if you could reblog this post and help raise awareness, that would be incredible!
All our love,
Laura, Matt and Scarlett
Had to do myself a little table of meds for her feeds as I was drowning in bottles, syringes and medicines when trying to organise her last, first and second! And this is just a regular day, not including the physio. 😩 my poor brain! 🙈
A friend of my wife's died today. Of the same disorder my wife has. At least she's not in pain and she's not lonely anymore, I feel that but I curse this world and I curse the powers responsible There will be a reckoning
Remembering Lauren and Jordonne
Remembering Lauren and Jordonne
About a decade ago, I was really ill. The symptoms of Cystic Fibrosis had reached severe levels. My lungs were failing, and I was malnourished and underweight. I was admitted to hospital at least 5 times a year, for 2-3 weeks at a time. I hadn’t been admitted much before that and I was scared. While I was there, I met two girls who also had CF, and who had been brought in for hospital admissions…
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