#spoonie update

[the-spoonie-life]

Sorry for the long absence, life’s been hectic and I’ll do a full update soon.

However I’m still off work sick and have decided to start selling my art on Redbubble:

artTAZtic Shop | Redbubble

artTAZtic is an independent artist creating amazing designs for great products such as t-shirts, stickers, posters, and phone cases.

Please check it out, I know not everyone can buy things and things might not be to everyone’s taste but even shop views help if you can.

Thanks everyone and sending lots of spoons

Anastasia

[one-of-the-birds]

Health/Life Update

8/16/18

As many of you know already I’ve been dealing with joint pain for little over a year now. I’ve been poked, prodded, and tested over a dozen times throughout this past year and was finally sent to go see a Rheumatologist.

Today was my second visit with my Rheumatologist. We went over all the blood work results and broke down what everything means. Turns out I have an autoimmune disorder (or at least have the markers for one) along with being diagnosed with Hypermobilty Fibromyalgia (along with a few markers/traits of Lupus which will be monitored very closely). Apparently I am double jointed throughout my body? That was news to me! Now that we finally have a diagnosis we are now able to treat or at least give me drugs to help ease my pain which I am thrilled about!

Another thing that happened today was that my mother was diagnosed with Ductal Carcinoma. Which means she has breast cancer. Luckily the type she has has a success treatment rate of 90% and while we didn’t catch it in the early stages like we thought it wasn’t in the late stages either. We are staying as upbeat and positive about this situation as we can, but at the same time we are bracing ourselves for a tough year or so...

We aren’t even close to being done on our house. We were actually supposed to be finished with the remolding and construction about two months ago, but due to outside variables that we can’t control our crew has fallen behind. We aren’t sure if we will be stopping the construction in order to save up money to help pay for my mom’s treatments or not... Money is so tight to begin with that it wouldn’t surprise me if we did.

So yeah. That is what is happening in my life. As I’m sure most of you will understand I will be a bit out of it for a little bit just while I let everything set in and I’m able to process everything that is happening to my family and I. I will greatly appreciated any support you feel comfortable giving. If you wish to send a prayer of health to your Deities please feel free and/or if you want to do a spell of health or just a general support spell please know I would welcome either one with open arms.

I know I have a few spell requests that are sitting in my inbox. I promise I will get back to you with your requests as soon as I can! Please just be patient with me.

[the-spoonie-life]

brief inactivity

hi spoonies,

sorry for the lack of posts but for the next few days it is quite likely the blog will be inactive as my carpal tunnel is flaring up big time and it hurts to even move my fingers in the slightest of movements at the moment and I have a 2000 word essay to write as well as exams to revise for. I will try to get back to the blog in the next few days but just need to rest for a bit.

Wishing you lots of spoons 

-AP

[the-spoonie-life]

50 Spoonie Life posts

Fellow Spoonies I would just like to thank you all for all your support yet again. We have officially made it to 50 Spoonie Life posts on this page and I would never have done it without the likes and reblogs along with the occasional comment.

To the 39 of you who currently follow this blog, thank you.

Please feel free to send me a message at any time, I would love to get to know some of you and have people provide ideas for future posts as I currently work by self. I would also like to apologise for the infrequency of posts but as a spoonie myself I am not always able to post and I work about 4 days a week often on a late shift. I go to university in September so will work out a schedule for posts then.

Wishing you lots of spoons.

-AP

[fightingfearnotpain-blog]

Well I saw my GP today

She thinks literally my only issue is sever iron deficiency. Which is hilarious. We haven't told her all about my other stuff because it's really not worth the effort. But the good news is that we finally have me on a supplement that allows my body to methylate and so my body is getting iron properly for the first time in 8 years or so (with the help of other supplements). Which means I won't have to have iron infusions!!!! WOOH!

[littlegayeyas]

Spoonie Update Time

So I've had a bit of a rough week but ultimately the result is the doctor is refering me to the rheumatologist and doing blood tests for RA (which is what he thinks I might have). But he also says I can keep using whatever pain relief and support that helps so it looks like the crutches are here to stay and this is one for the long haul.

[diaryofaspoonie]

hi guys, just a quick check in! as you may know, last week I went on a very active adventure camp. I was very doubtful I'd keep up, but they had said I could dip in and out of activities as I wished. well, it went amazing! I did EVERY activity. granted, a lot of it had to be adapted a little and I've suffered, but I did it. I've made amazing friends and I go off for week two, which isn't quite so adventurous but still active, later today after having the weekend to regenerate. rock climbing, cliff jumping, kayaking, abseiling, raft building, bushcraft and archery are just some of the things I managed to do, as well as a LOT of walking on my crutches. yes, I've suffered with worse pain and fatigue throughout the week, and this weekend, but I DID It. I'm super excited to start week two :D