#spooniething

[inkstainsonmyskin]

Cripple astethic

is spilling a coffee all over your white hoody because , spasm!!

[inkstainsonmyskin]

That CP-Moment #1

Sooo. I'm having a bit of a moment here, wanted to share it, just because. I'm currently reading a bunch of articles and studies about how CP affects the body. I already knew most of those things, because I've had CP since birth, but recently I've been expiriencing more fatigue and trouble sleeping, so I read up on it and noticed something: Nearly all the articles seam to focus on the caretaker, rather than the person who acctually has CP ???? What??? Why?? What's this ablelist crap?? Like I get it most people who have CP have had it since birth or a young age, so it makes sense for there to be a lot of parental advice, buuuut the kids need resources too and what about if you're a teenager and you're just trying to figure shit out??? And yes a lot of people who have CP need care takers, even sothere shouldn't just be articles for caretakers. I feel like so often people think more about the caretakers, friends and loved ones of the disabled then they do about the disabled person themselves. I mean at the end of the day, it's not the caretakers that live inside the bodies that have CP. At the end of the day, the person most affected by a disability is the disabled person.

[inkstainsonmyskin]

Spoonie frustration

Y’all I’m so over being disabled today. Usually I honestly don’t mind because I have a great life that’s well adapted to my needs. I have a great community around me. All is well.

But then: some days I literally can’t and I wonder why it suddenly gets sooo hard?

Theres an accessiblity issue at work. I don’t have the spoons to get into it but basically it’s ableist as fuck and also requires further planing on my part.

I don’t know. Sometimes it’s just hard. Any tips for dealing w Spoonie frustration are apriciated. Spoons and love to you all.

[inkstainsonmyskin]

My bones feel heavy, my feet are sore and breathing takes a bit more effort than it should. So I'm going to do the only thing that I know helps ease this pain. I'm going to be kind to my sweet sweet body. It works so hard to keep me alive and save.

[inkstainsonmyskin]

Things I need to hear right now #1

Your pain is not your fault. Sometimes even if you do everything right, take your meds, sleep enough, rest enough your chronic illness will knock you down. That's normal and you can't always do everything right anyway. You're human.

[inkstainsonmyskin]

Spoonie Thing #1

Oh my god. Its so coooooold. It rained like craaaaazy and because of the chair my legs got really wet and now they are just coold and it kinda burns? Wtf?