#systemic sclerosis

[ferretly]

So, uh, does anyone here have (systemic) scleroderma? The last post was from a year ago 💀 but I may as well ask.

[craftycrybaby]

i don’t talk about this on here but I have systemic sclerosis and the colder months really do me in. no exaggeration I am in so much pain everyday its impossible to not be suicidal just bc the pain is never ending.

I use topical lidocaine to control so of my pain but it literally eats away at my skin and makes it more sensitive. just bumping my finger feels like hitting an exposed nerve. it’s so embarrassing bc it hurts so bad I can’t stand. I’m so self conscious of how other might feel uncomfortable seeing me in so much pain. I know I shouldn’t but I do

idk it’s just tough sometimes

[loonyloopylupin96]

coronavirus is concerning

it’s concerning for people with the frequently mentioned conditions

and for those with rare conditions which aren’t understood? unprecedented.

[burythecarnival]

*ghost screams into pillow* the american healthcare system makes me want to walk into the lake & never come back. i have a new med that will cost over $800/month because NEITHER of my fucking insurances will cover it.

i am particularly weepy, i think because my crippled ass had a nasty fall two days ago & am a bit concussed. and my pain is fucking nuts. and i am mad at many things right now.

any help is not expected but immensely appreciated. thank you so much for your genuine care 🖤👻

cashapp: $dryboneslive / venmo: dryboneslive

paypal: message me for email

[burythecarnival]

cashapp: $dryboneslive / venmo: dryboneslive

i want just one fucking morning that i can somewhat steadily sleep. even though i am exhausted & the number of my prescriptions have reached level 9,000...i went super saiyan & all i got was this stupid sleep deprivation.

i am in so much pain. i also received some concerning results with my most recent blood work & ANA panels. i am obvs used to being ill but this is potentially really bad & i am a bit rattled.

if anyone feels up to helping with noms the next couple of days (there is no way i can stand long enough to cook), it would be incredibly fucking appreciated. it is also prescription day for a few of them; i am grateful those can be delivered at least. as always, absolutely NO pressure. times are rough for plenty of us. i just thank you for the genuine care, seriously 🖤👻

cashapp: $dryboneslive / venmo: dryboneslive

[burythecarnival]

i woke up to a negative bank balance along with a flared-up spine & i keep getting weepy. this is dumb, things are dumb. i am going to medicate & hide under blankets while listening to the rain with the cats. whenever things are going relatively ok, days will pop up that make me feel like a fucking waste of space. i know that is not how i should feel. still.

if anyone is able to help pop me back into the positive, i of course would be immensely grateful 🖤

venmo: dryboneslive / cashapp: $dryboneslive

[burythecarnival]

*yawns and stretches after a depression nap* golly, it sure seems like a nice evening to send me monies because you like my content & think that i am fucking adorable 🥺👉👈

venmo: dryboneslive / cashapp: $dryboneslive

(also i fell...again...in the shower yesterday right on my spine & am confined to couch-bed. seriously, even if you can't help, you guys caring matters so fucking much to me 👻🖤)

[burythecarnival]

hi hello, well met my sweet tumblrites 🖤

i am having such a bad fucking time. any help with meals today & tomorrow would be incredibly appreciated.

an antipsychotic was added to my endless list of medications; i am having a bit of a dangerous reaction... like, i thought i was going to have to call an ambulance in the middle of the night because i felt like i was having a fucking heart attack then came too close to fainting.

i will be off the antipsychotics for today & tomorrow but, am trying to rest as much as possible. standing & cooking sounds like some sort of hell. nothing is expected, everything is appreciated 👻💋

cashapp: $dryboneslive / venmo: dryboneslive