#transepilepsy

[daily-transid-affirmation]

transepilepsy affirmations!

— You do have epilepsy !!

— Just because you don't experience symptoms doesn't make you any less valid <3

— Be proud !! You're amazing <3

all of this is plantoic

[vampydollrockstar]

tips for trans epilepsy? tysm!

TRANSEPILEPSY TIPS

Carry a medical ID (you can easily make a fake one, i can help with it as well), phone, emergency contact.

Make medication schedules for yourself, sleep hygiene, managing triggers

If there are any lights, show stress maybe exhaustion

Try saying things like “Let’s sit farther from the stage lights”

Show relief after long seizure-free periods

Describe gently, what's happening to you (ver. without medical terms)

Exhaustion, foggy thinking, headache, emotional vulnerability, need for rest or quiet

Describe what's happening to you with medical terms:

Seizure:

Abnormal electrical activity in the brain.

Epilepsy:

A condition involving recurrent, unprovoked seizures.

Aura:

A sensory or emotional warning sign before some seizures (smell, feeling, vision change, déjà vu, etc.).

Postictal:

The period after a seizure, confusion, fatigue, headache, etc.

Trigger:

Things that increase seizure risk (stress, sleep loss, flashing lights, etc.).

Breakthrough seizure:

A seizure that happens despite medication.

Absence seizure:

Brief lapses in awareness (blank stare).

Tonic-clonic seizure:

Stiffening followed by rhythmic jerking (used to be called “grand mal”).

Focal seizure:

Seizure starting in one part of the brain.

Generalized seizure:

Seizure involving the whole brain.

medication:

Antiepileptic drugs (AEDs) or Anti-seizure medications (ASMs)

Medications used to control seizures.

Keppra / Lamictal / Depakote / Topamax / Tegretol

Common brand names of ASMs. (Use carefully in writing; don’t suggest dosages.)

Titration

Gradually increasing or decreasing a medication dose.

Side effects

Fatigue, dizziness, mood changes, cognitive fog, nausea.

Therapeutic level

Blood concentration where the medication works effectively.

Non-epileptic events

Events that look like seizures but have non-epileptic causes.

Diagnsotic terms etc

EEG (electroencephalogram)

Test that measures brainwave activity.

MRI

Imaging test to look for structural causes.

Epileptiform activity

Abnormal patterns seen on EEG.

Spike-and-wave

A common EEG pattern linked to epilepsy.

Refractory epilepsy

Epilepsy that doesn’t respond well to medication.

Seizure focus

The brain area where seizures begin.

Status epilepticus

A prolonged or repeated seizure state, medical emergency.

Epilepsy varies widely pick a realistic pattern:

Generalized, focal, or absence

Frequency

Triggers

Medication side effects (drowsiness, concentration issues, mood changes)

[cakerm0n]

hey! can i have a transjuvenilemyoclonicepilepsy flag please?

transJME

transJME is a term for those who identify as having JME (juvenile myoclonic epilepsy) in a trans way.

[idk-who-we-are-anymore]

Transabled dysphoria sucks :(

Ugh, we need to affirm our transepilepsy, but how?

Like genuinely, affirm us or give us tips pls-

[transidtips]

Could I possibly request transepileptic tips and transseverity tips? Thanks!!

err i’m not sure what to do for transseverity since its a little vague… but i can do transepilepsy!!

i think the most simple one would be to avoid trigger such as bright or flashing lights as much as you can :3 even having things in your filters such as “tw flashing lights” or the like can probably be euphoria inducing

if you are exposed to these, i would recommend faking an absent seizure (like zoning out or freezing up) if you do not wish to attract attention but still want the experience, but of course you can do the full seizure as well :D

it’s not a lot but i hope it helps!!

[whatevenisexisting]

The fact that there are people who want to have Epilepsy and read tips on it will never not disgust me. Like seriously. Y’all are fucking ignorant, ableist, and your identity is NOT in good faith.

Why? Because as someone who actually has epilepsy, it DOES hurt for me to see some people on tumblr want this damn condition. As I’m struggling to get through a work week, as I’m finally realizing I need accommodations, as I’m feeling frustrated because I haven’t had a seizure since April 19th, and I already had two this month.

Remember y’all, when you have a seizure, out goes your ability to drive for at least a few months. Put yourself in a small town with no public transit, rely on family to get literally ANYWHERE - and then tell me you’re “transepileptic”.

I wasn’t planning to ever drive again, but that decision DOES affect my life and let’s say I chose to drive once it was legal. Well, in my state I would have been able to drive by July but BAM. There it goes again.

Have a seizure, and you cannot drive. Now you have to find other ways to get EVERYWHERE you can’t walk to. And if it’s pouring like it is for me today? Yeah, your choice is either walk in the rain and get soaked, take an Uber for a ride that’s only 5-10 minutes and easy walking distance, or stay home.

Not everyone can rely on family or friends every single time they need to go somewhere, remember that.

And I know I’m focusing on this part but it’s just ONE aspect.

I mentioned I had a rough week at work and I did. Have fun dealing with post-seizure depression and just overall triggered depression as you work for a suicide hotline. Have fun not being able to tell 99% of your coworkers WHY you are struggling so much this week because you can’t even the say the name of your condition (and as a side note, your mom hates this and doesn’t understand - she thinks it just means you’re ashamed even though you aren’t), so yeah, they respect that and it’s your right but it would be easier to talk to them if they KNEW. But you don’t, because you barely accept your condition to begin with. (The five stages of grief? Yeah, apply them here and put yourself permanently in between denial and acceptance, also anger and depression, and have a jolly good time.)

Oh don’t forget needing time off work! Because if you’re lucky like me, you’re going to be exhausted the next day and will need to sleep all day! Which means using a sick day, and in America most people are LUCKY to get two weeks. My friend’s partner gets five days. Total. Of paid time off and sick COMBINED. So yeah, have a blast balancing what little sick time you get with needing to care for your body because sometimes you cannot recover quickly for them! You likely don’t know that tonic clonic used to be called grand mal (don’t worry most people without epilepsy don’t know this and you know you don’t have epilepsy soooo) but with grand mal, you might end up in the hospital because you can injure yourself! Any seizure that involves convulsions puts you at risk of physical (even mental, if you hit your head and get a concussion) injury, but I’m sure you haven’t thought of that part, have you?

Or maybe you have and you still want a condition that severely impacts people’s lives and can kill them, in which case you’re just ableist lmao, and insist that me being against people outright SAYING they’re faking a disorder is somehow transphobic or I’m “using the same talking points” as people against the trans community. Like stop stop STOP.

You know what the difference here is? Trans people didn’t choose to be trans, they can’t always come out of the closet because it’s NOT SAFE which surprise, might have a significant impact on their mental health. They don’t have a choice but to be closeted. Staying closeted STILL comes with consequences though. Coming out of the closet might come with consequences. There’s a reason trans people have such a high suicide rate.

As for the “talking points”…that’s just stupid because you people KNOW and SAY you don’t have this condition. You give each other “tips” for doing these symbols, or should I say FAKING the symptoms.

Me talking about the REALITIES of living with a disability is a desperate attempt to get you to stop romanticizing them. Me talking about the TRUTH of living with something like in my case epilepsy, is a desperate attempt to make you realize it’s NOT something you want.

I’M the one who didn’t have a goddamn choice for this condition. JUST LIKE trans people don’t have a choice to be trans and cis people don’t have a choice to be cis.

YOU fucking DO have this choice. YOU have the choice to get off Tumblr, out of this horrible echo chamber and ask yourself why the fuck you’re ASKING for TIPS FOR HAVING A SEIZURE.

Like for real, get off this hellsite and THINK about what you’re absorbing. This. Is. Not. Healthy.

And no, I don’t give a shit if you’re ~also disabled and okay with this~ because it’s not okay lmao. Like these are not good faith identities. Period. These people romanticize serious conditions, play into the idea that people with disabilities are faking theirs (especially if they suddenly become able to do things - “oh, jessy can do that, why can’t you?” Disabled people hear that enough already), and simply ignore the reality.

Ugh. I’m only writing this because Tumblr is a blog and a safe space to write, my therapist is sick today and can’t do a session with me, and I woke up still pretty sad and frustrated and then I thought of “transabled” people and decided to rant. Going to keep this public for now, might make it private later.

[daily-transid-affirmation]

transepileptic affirmations!

— You ARE epileptic !! ^0^

— Your identity is valid !!

— No matter what anyone says, you ARE epileptic !!