#transepilepsy

[daily-transid-affirmation]

transepilepsy affirmations!

— You do have epilepsy !!

— Just because you don't experience symptoms doesn't make you any less valid <3

— Be proud !! You're amazing <3

all of this is plantoic

[cryptids-level290]

Could I have some tips for transepilepsy?

Hi anon, Sorry for such a long wait; we finally have some time on our hands, so we're catching up on asks. Of course we can do that! As is always for a lengthy tip post, look for the green if you struggle with large blocks of text; or to find/recognize key information. ﹒ ⁺ ₊ ✦ ﹒ ⁺ ₊ ﹒ ✦ ﹒ ⁺ ₊ ✦ ﹒ ⁺ ₊ ﹒ ✦﹒ ⁺ ₊ ✦ ﹒ ⁺ ₊ ﹒ ✦﹒ ⁺ ₊ ✦ ﹒

★ TransEpilepsy Tips ★

0) Just as we say with every transabled identity, take your transition gradually. If you do it all at once, the chances of people clocking you as non cisID are far higher and the chances of being able to transition (at least socially) will become far lower.

1) Epilepsy is a seizure disorder, but having a single seizure doesn't mean you have epilepsy. Epilepsy is diagnosed if you've had at least two seizures without a clear cause at least 24 hours apart. Seizures that don't have a clear cause are known as unprovoked seizures. Do research into Epilepsy in order to increase realistic looking transition. Here's a very helpful link to The Epilepsy Foundation. 2) There are different epileptic syndromes. Not everyone with epilepsy will have an epilepsy syndrome, and are much less common in adult-onset epilepsy. Still, it's helpful to look into them. 3) What caused your epilepsy? The cause of your epilepsy can affect how you experience it. Here's a useful link to help with figuring this out. 4) The epileptic experience is that of a vast variety. It's best to pick and plan your experience. Things to think about are: + Generalized, focal, or absence seizures + Length + Triggers, signs, and aftermath 5) Every Epileptic being has seizure triggers. Seizure triggers oftentimes are effected by what kind of epilepsy you have. Look into it, decide on some, and then Try to "Find find out" by paying attention to your "seizures" and noting down the details of what happened before. The most common trigger is bright/flashing/strobing lights or patterns, followed by stress, lack of sleep, and eating related deficits (dehydration, vitamin/mineral deficiencies, low blood sugar, ect). 6) Try to avoid your triggers. When triggers occur, or are likely to occur, allow yourself to seem nervous and uncomfortable. Ask people to accommodate you and your triggers. When you start out, say that they just make you uncomfortable or make you feel shitty physically, and that you don't know why. 7) Aura are sensory or emotional sensations that happen as a warning sign before some seizures. Recognizing and responding to yours is a tool that people with epilepsy use to reduce safety risk. Recognizing an aura does not prevent a seizure. 8) The postical state is a temporary group of symptoms that are felt immediately after a seizure, and before you feel well again. Not everyone who has seizures goes through this state, but many people do. The postical state varies in severity and in length; Common postical symptoms include exhaustion, confusion and soreness in the muscles; and the most common occurrence, according to a study done in 2020, is postical unresponsiveness. Here's a helpful visual of postical symptoms.

9) Symptoms of a seizure look different depending on the type of seizure. Seizures are given one of three classifications. Generalized, Focal, or unknown. For the purpose of this post, we'll just be focusing on the first two.

9a) Focal seizures: Focal seizures are the most common type of seizure. Focal seizures can result from [specific/certain types of] brain activity in any lobe, but are only happening in one place. There are two categories of Focal seizures: " Focal seizures with preserved consciousness. Once called simple partial seizures, these seizures don't cause a loss of awareness and responsiveness, also known as consciousness. They may alter emotions or change the way things look, smell, feel, taste or sound. Some people experience déjà vu. This type of seizure also may result in jerking of a body part, such as an arm or a leg. And focal seizures may cause sensory symptoms, such as tingling, dizziness and flashing lights. "

"Focal seizures with impaired consciousness. Once called complex partial seizures, these seizures involve a change or loss of consciousness. This type of seizure may seem like being in a dream. During a focal seizure with impaired awareness, people may stare into space and not respond in typical ways to the environment. They also may perform movements over and over..."

Here are some more resources on Focal Seizures: Focal Seizures - Mayo Clinic , Focal Seizures - PaitentInfo , Focal Epilepsy - hopkinsmedicane.org

9b) Generalized Seizures: Generalized seizures effect both hemispheres of the brain. The types of Generalized seizures are: Tonic seizures: Tonic seizures cause stiff muscles and may affect consciousness. These seizures usually affect muscles in the back, arms and legs and may cause the person to fall to the ground.

Atonic seizures: Atonic seizures, also known as drop seizures, cause a loss of muscle control. Since this most often affects the legs, it often causes sudden falls to the ground.

Clonic seizures: Clonic seizures cause repeated or rhythmic jerking muscle movements. These seizures usually affect the neck, face and arms.

Myoclonic seizures: Myoclonic seizures usually appear as sudden brief jerks or twitches and usually affect the upper body, arms and legs.

Tonic-clonic seizures: Tonic-clonic seizures, previously known as grand mal seizures, are the most dramatic type of epileptic seizure. They can cause a sudden loss of consciousness and body stiffening, twitching and shaking. They sometimes cause bladder symptoms or biting of the tongue.

Absence seizures: An absence seizure causes a short period of “blanking out” or staring into space. There are two types of absence seizures that may look a bit different. Both types of seizures are short, and people often don’t notice them at first. They may come and go so quickly that no one notices anything wrong. Or observers may mistake the symptoms for simple daydreaming or not paying attention. Typical absence seizures are the most common of the two and are shorter than non-typical absence seizures, which have both a slower onset and a slower offset, alongside a few differences in symptoms. Here's some helpful information on absence seizures.

Here are some resources on generalized seizures: Generalized Seizures - hopkinsmedicane.org , Generalized Epilepsy - Wikipedia

10) Focal seizures and Absence seizures are the easiest to transition into having. Tonic, Atonic, and Tonic-Clonic seizures are the hardest. Potential methods of transition include: + Self-Conditioning + (Safe) Dehydration -> (increases headaches, as well as headache causing sensitivities, ect) + Use of the Placebo effect (often goes hand in hand with self-conditioning)

[cakerm0n]

hey! can i have a transjuvenilemyoclonicepilepsy flag please?

transJME

transJME is a term for those who identify as having JME (juvenile myoclonic epilepsy) in a trans way.

[transidtips]

Could I possibly request transepileptic tips and transseverity tips? Thanks!!

err i’m not sure what to do for transseverity since its a little vague… but i can do transepilepsy!!

i think the most simple one would be to avoid trigger such as bright or flashing lights as much as you can :3 even having things in your filters such as “tw flashing lights” or the like can probably be euphoria inducing

if you are exposed to these, i would recommend faking an absent seizure (like zoning out or freezing up) if you do not wish to attract attention but still want the experience, but of course you can do the full seizure as well :D

it’s not a lot but i hope it helps!!

[whatevenisexisting]

The fact that there are people who want to have Epilepsy and read tips on it will never not disgust me. Like seriously. Y’all are fucking ignorant, ableist, and your identity is NOT in good faith.

Why? Because as someone who actually has epilepsy, it DOES hurt for me to see some people on tumblr want this damn condition. As I’m struggling to get through a work week, as I’m finally realizing I need accommodations, as I’m feeling frustrated because I haven’t had a seizure since April 19th, and I already had two this month.

Remember y’all, when you have a seizure, out goes your ability to drive for at least a few months. Put yourself in a small town with no public transit, rely on family to get literally ANYWHERE - and then tell me you’re “transepileptic”.

I wasn’t planning to ever drive again, but that decision DOES affect my life and let’s say I chose to drive once it was legal. Well, in my state I would have been able to drive by July but BAM. There it goes again.

Have a seizure, and you cannot drive. Now you have to find other ways to get EVERYWHERE you can’t walk to. And if it’s pouring like it is for me today? Yeah, your choice is either walk in the rain and get soaked, take an Uber for a ride that’s only 5-10 minutes and easy walking distance, or stay home.

Not everyone can rely on family or friends every single time they need to go somewhere, remember that.

And I know I’m focusing on this part but it’s just ONE aspect.

I mentioned I had a rough week at work and I did. Have fun dealing with post-seizure depression and just overall triggered depression as you work for a suicide hotline. Have fun not being able to tell 99% of your coworkers WHY you are struggling so much this week because you can’t even the say the name of your condition (and as a side note, your mom hates this and doesn’t understand - she thinks it just means you’re ashamed even though you aren’t), so yeah, they respect that and it’s your right but it would be easier to talk to them if they KNEW. But you don’t, because you barely accept your condition to begin with. (The five stages of grief? Yeah, apply them here and put yourself permanently in between denial and acceptance, also anger and depression, and have a jolly good time.)

Oh don’t forget needing time off work! Because if you’re lucky like me, you’re going to be exhausted the next day and will need to sleep all day! Which means using a sick day, and in America most people are LUCKY to get two weeks. My friend’s partner gets five days. Total. Of paid time off and sick COMBINED. So yeah, have a blast balancing what little sick time you get with needing to care for your body because sometimes you cannot recover quickly for them! You likely don’t know that tonic clonic used to be called grand mal (don’t worry most people without epilepsy don’t know this and you know you don’t have epilepsy soooo) but with grand mal, you might end up in the hospital because you can injure yourself! Any seizure that involves convulsions puts you at risk of physical (even mental, if you hit your head and get a concussion) injury, but I’m sure you haven’t thought of that part, have you?

Or maybe you have and you still want a condition that severely impacts people’s lives and can kill them, in which case you’re just ableist lmao, and insist that me being against people outright SAYING they’re faking a disorder is somehow transphobic or I’m “using the same talking points” as people against the trans community. Like stop stop STOP.

You know what the difference here is? Trans people didn’t choose to be trans, they can’t always come out of the closet because it’s NOT SAFE which surprise, might have a significant impact on their mental health. They don’t have a choice but to be closeted. Staying closeted STILL comes with consequences though. Coming out of the closet might come with consequences. There’s a reason trans people have such a high suicide rate.

As for the “talking points”…that’s just stupid because you people KNOW and SAY you don’t have this condition. You give each other “tips” for doing these symbols, or should I say FAKING the symptoms.

Me talking about the REALITIES of living with a disability is a desperate attempt to get you to stop romanticizing them. Me talking about the TRUTH of living with something like in my case epilepsy, is a desperate attempt to make you realize it’s NOT something you want.

I’M the one who didn’t have a goddamn choice for this condition. JUST LIKE trans people don’t have a choice to be trans and cis people don’t have a choice to be cis.

YOU fucking DO have this choice. YOU have the choice to get off Tumblr, out of this horrible echo chamber and ask yourself why the fuck you’re ASKING for TIPS FOR HAVING A SEIZURE.

Like for real, get off this hellsite and THINK about what you’re absorbing. This. Is. Not. Healthy.

And no, I don’t give a shit if you’re ~also disabled and okay with this~ because it’s not okay lmao. Like these are not good faith identities. Period. These people romanticize serious conditions, play into the idea that people with disabilities are faking theirs (especially if they suddenly become able to do things - “oh, jessy can do that, why can’t you?” Disabled people hear that enough already), and simply ignore the reality.

Ugh. I’m only writing this because Tumblr is a blog and a safe space to write, my therapist is sick today and can’t do a session with me, and I woke up still pretty sad and frustrated and then I thought of “transabled” people and decided to rant. Going to keep this public for now, might make it private later.

[daily-transid-affirmation]

transepileptic affirmations!

— You ARE epileptic !! ^0^

— Your identity is valid !!

— No matter what anyone says, you ARE epileptic !!

[yukipopxd]

HOW I PREPARR FOR PHYSICAL SEIZURES AS A TRANSEPILEPTIC PERS&N

This is fotr physical seizures <333

If you have a folding bed like uspush it down flat

Clear all hard objects from your bed - charger , nooks , plates , metal etc

Put stuffed animals or pillows on the bed and nightstand so you dont hit your head

IF YOU HAVE FRIENDS OVER

Ond should at the very least time your seizurde but the best is to film it to show what happened

Ondee should hold you gently from hitting your hands or face on the wall

Remeber to stay safe !!!