#tsuki90

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my doctor said subluxation wasn't scientifically proven.. I studied biomedical sciences and can't imagine how they can not see it while there is so much proof -_- made an appointment with a chiropractor now that does believe in subluxation in the spine, let's see how that goes.

My doctor basically had the same reaction. I’m like, how are did these people go to school for a gajillion years and like... come out believing that pressure on the literal nervous system could cause illness. 

Best of luck. 

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@tsuki90 replied to your video “Spoonies! I’m working on a lot of chronic illness/disability vlogs...”

you use marijuana candy's?? I can't smoke (suffered long damage as a child) and I am mostly using CBD oil right now but that isn't always enough so I hope eating might help and gummies would be soo cool.

Yep! Candies, cookies, crackers, icecream, all kinds of stuff. I’ve never actually smoked anything before, I’m worried because I grew up with chronic bronchitis and mild asthma, but I do have a little vape pen that luckily doesn’t cause any problems for my lungs. It’s quite mild and to be honest CBD oil was not strong enough for me at all since I’m so used to eating it (and eating it helps with the deeeeep intense pains I get and it suppresses my sleep paralysis). Keep an eye out for my video, I’ve got a huge backlog I’m getting through right now but hopefully this month or next it should finally be up.

@plastic-knives-and-forks replied to your post “I get what people say about obvious SJ trolls but the thing is I’ve...”

'Old'?????? Bro ur like 26, that is still so fucking young by normal human standards, do these people expect 16 year olds to be the deciding, True And Correct And Unsoiled force behind social shit??????

I’m 27 now and that’s considered old on tumblr unfortunately. I’m okay with that because I have accepted my role as the Concerned Momfriend but it can get frustrating when kids just think I’m an old fart who is out of touch with social justice issues even though I am affected by them to this day. @_@

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Hey New, Have you ever had x-ray's of your neck and back before you went in to look for subfluxions? Because the reumathologist checked my neck but mainly for Arthritis, So I'm wondering if they can miss subfluxion

My neck, yes. I’ve had two sets of x-rays done since my health problems got severe and the neck lump appeared a few years ago.

The thing is, they’ll usually miss subluxations because atlas orthogonality is considered “obscure” by the medical system because these people do not go to school for this specific thing. They do x-rays to look for arthritis, tumors, slipped discs, etc, things they know how to treat. Finding my atlas took some special x-ray techniques to be able to look at it. Even regular chiropractors don’t really have the tools for it. I mean, even the guy I’ve been seeing for almost 2 years on a weekly basis for intense adjustments was skeptical and uncertain and he’s like a really good doctor who genuinely wanted to help me and understands how messed up the medical system is.

As my atlas doc said when I asked her why this isn’t considered a real thing in medicine, she said, “it’s just not in their bag of tricks.”From what I’ve learned, I think they’d only actually look for a subluxation if the patient was in a bad car accident and suddenly had severe neurological problems that would make the doctors go “oh shit check their spine!” But since the association with atlas subluxation and chronic illness/disability is like, a pretty slow onset of 10-15 years, they don’t really consider it a possible source of bodily dysfunction even though it seems pretty obvious that they should rule that out before trying to treat the organs for deficiencies themselves *shrug* But now that I know what I’m looking for, even my old x-rays are crazy to look at. 

I’ve got the head tilt because my spine tried to support my head since my atlas wasn’t able to properly on its own. 

In the second one my neck is straight. It’s this reversal of the curve and the pressure that caused my thoracic spine to stick out (where the swollen bump forms, my biggest and most painful trigger point.) 

It’s easy to see here through my mouth that the vertebra behind is tilted.But again, these radiologists aren’t trained to look for this sort of thing. They literally told me after both x-rays, “you look great, you just have a muscle spasm” and I was prescribed muscle relaxants and physical therapy but when I brought these x-rays to my chiropractor he was alarmed at the completely incorrect shape of my cervical spine and that’s what he worked so hard to correct for so long. 

But, because my atlas was the source, no matter how hard he tried, my spine would go back out of place to try to follow that bone. 

Now that my atlas is straight, I stand taller, I sit up straight with ease (but I do have to work at breaking the habit of bad posture that my body is used to holding), and my neck looks visibly longer and more normal in photos. 

Hope this was informative, best of luck trying to find answers. If you want to see an atlas doc just try to use your best judgment when picking one out, because as with anything there can be some moneygrab type docs out there.

But the thing about getting your atlas adjusted is it’s basically for most patients just a one time thing. You get adjusted and your body has to do the rest of the healing itself.

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@dameronscully replied to your post “Memory foam pillow recs? Epic cervical spine pain at bedtime lately....”

I have a SleepRight SRP243 Side Sleeping pillow. It was like $80, but after having it for a year I can say it's worth twice that. I think it only would be bad if you're a stomach sleeper, even though it's made for side sleepers, I have issues when I sleep on my back.

Ooh, I’ll look into that. I’m a side sleeper and the atlas doc wants me to keep it that way for obvious reasons. 

@tsuki90 replied to your post “Sorry for the spoonie spam, trying to distract from the pain and feel...”

you shouldn't feel guilty! You help so many people by sharing your story, we are just fighting together <3

<3 I just wish other people didn’t have to feel this way too

@zavitsregularplace replied to your post “Memory foam pillow recs? Epic cervical spine pain at bedtime lately....”

well I have one of those bamboo brand pillows. it works pretty good mostly, but I'm a side sleeper so sometimes it seems to cause neck tension, usually it's fine but I feel a back sleeper would have a better experience since it's normal pillow shaped lol. but it is waaay better than regular pillows since those suckers flatten out super quick these days.

I was looking at those the other day, but decided to do more research before buying. My regular pillows are a hundred years old and flat and limp as soggy tortillas lol.

@angry-key-lime-pie-kin replied to your video “Hanging out with Jeremy is a lot of squishing and kisses #videos #cats...”

awww omg im so jealous of you for having such a sweet cuddly kitty, mine would never do that D: my old cat used to lie on my chest right in front of my face and almost smother me but she would get so comfy that i just couldn't bring myself to move her lol

Aww. Jeremy is a big baby. When he was a kitten he used to sleep on my chest and suck on my shirt by my collarbone, Every morning he has his “smoosh Mommy” ritual and he usually does it literally right when I’m about to finally get out of bed. He also does it if I’m not feeling well, he’ll just come over and squish me while purring up a storm. 

@vespertadpole replied to your video “Hanging out with Jeremy is a lot of squishing and kisses #videos #cats...”

Awww he seems so well loved! Such a happy catty ❤

He’s a good boy

@chaifootsteps replied to your video “Hanging out with Jeremy is a lot of squishing and kisses #videos #cats...”

A good old squishman

Squish squish

@zephra85 replied to your photoset “At da club eating chips by myself, having an existential crisis with a...”

Aand now revealed before us is clubbing New. Art imitating life I'm sure. :P

I don’t even remember the last time I went to a club but I can guarantee you I had a panic attack until sunrise the next day. tfw you love to dance at clubs because the energy is so fun but clubs are too overstimulating and scary and you have to explain to every guy that you are not interested in dry humping, you just wanna dance!!! fhdkjslfhlas

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@tsuki90 replied to your photoset “Some fun bg work wardrobe. 27 - Passenger Masters of Sex (schoolgirl...”

can you keep a lot of the clothing you wore at work? or do you have to buy them yourself?

They generally ask us to bring our own clothes options to save time/wardrobe, but if nothing we have works for the scene, or if they already have something super specific for us like school uniforms then they just dress us up themselves. 

The only one that was my outfit was the all white one for Faking It (minus the feather boa I borrowed from another actor to take a silly pic in). But the first pic was for Passenger’s video 27 and I fell sooo in love with the dress that they let me buy it off of them for $5.

I really miss working on The Goldbergs though, it was always so much fun to get dressed up all 80′s.

@zephra85 replied to your post “My family: Do you have a boyfriend? Me: Work is my boyfriend. My...”

Future New has forty-seven cats isn't that enough

Loool

@roddaprime replied to your post “My family: Do you have a boyfriend? Me: Work is my boyfriend. My...”

the only baby new wants is BABY ANIMALS!!! KITTENS!!! PUPPIES!!! Piggies?

Omg I almost had a piglet once as a small child. My mom visited it at the pet store every day and she was the only person it would let hold it. Her boyfriend went in one day to adopt it as a surprise but someone had already gotten it. ;( It was such a precious little guy and pigs are my mom’s fav animal. 

@faeline replied to your post “Bad fever swollen neck mode again, somehow even worse than last night.”

nooooooo *buries you in fluff* New's spine, play nice. No fighting.

Bad and naughty spine 

@spazzeon replied to your video “Me @ my brain”

i dig the horton hears a who look

I’m the goth Who.

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@squidpuke replied to your post “They should make a work out DVD especially for spoonies. Modified...”

Like a mix between an actual workout regime and yoga. :O

Yes, with low impact stuff and lots of poses to help keep the spine healthy.

More replies below

@tsuki90 replied to your post “When I’m especially sick I often just do a lot of fibro studying on my...”

When my Fibro started getting worse (as in the time I really needed to get diagnosed) my mom kept asking me if I wasn't pregnant -_- it was annoying as hell

YUckk

@puppetchainsaw replied to your post “Intense middle of the night self care because I can’t afford the ER...”

You're literally what will show up if I search up the defintion of 'Strong'.

*pose*

@lazyadmiral replied to your post “Watching a How It’s Made about goldfish??????????”

I admit I love How It's Made - it's so good and calming when I'm struggling with anxiety attacks and bad brain thoughts.

Yes, it’s very fun to watch.

@they-better-be-mysterious replied to your post “Watching a How It’s Made about goldfish??????????”

well you need a mommy goldfish and a daddy goldfish... okay i just looked up how goldfish actually reproduce and it's p interesting.

This is the one I watched https://www.youtube.com/watch?v=pYK66MSrv4k 

@they-better-be-mysterious replied to your post “@they-better-be-mysterious replied to your post “bpd-entity: it’s not...”

I always assumed it was just a severe introvert thing, and also that I make friends with unusual people that like unusual things, so if someone is "just anybody" who happens to be at a party, I'm not likely to relate to them bc there's no basis. And that makes me feel alien.

I feel this too. I just have such a hard time relating to most people and I end up feeling like “what’s wrong with me?”

@they-better-be-mysterious replied to your post “Intense middle of the night self care because I can’t afford the ER...”

you are the strongest Lord Bitch. you fight the pain like a badass.

Lord Bitch Skeleton is here to conquer.

@parlor-trick-pariah replied to your post “If there’s all these cases of cervical spine compression in...”

its a shitty mentality for an institution whose watchwords are supposed to be "do no harm"

It’s evil.

@parlor-trick-pariah replied to your post “If there’s all these cases of cervical spine compression in...”

why cure the problem when you can make more money maintaining it.

It’s BANANAS to me that they are making money off of sick people. Like how messed up is this country.

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@azuranagomii replied to your post “I haven’t taken my vitamin B supplements in about a month because I...”

Huh maybe I should start taking vitamin b

I explain the benefits in this vlog http://newvagabond.tumblr.com/post/142978519187/what-i-take-for-fibromyalgia-and-narcolepsy-318

@tsuki90 replied to your post “Finally trying to pick my new doctor. There are only two in my town...”

picking a new dr is hard, I recently got a new one and turned out he sucked big time (he didn't listen at all, even when he wanted to "Talk" About my multiple complains he was actually just complaining that I complained) So now I'm scared to go to my new doc..

Ugh, why do people like that even become doctors? I don’t understand. I’m gonna have to just go with one of these shitty ones otherwise I’ll have to do long drives :( Right now I mostly need a new doc so I can get refills on my emergency prescriptions and so I can hopefully get some evaluations out of the way as far as mental stuff.

@hikidragon replied to your post “I’m under a lot of pressure to start working full time again in a few...”

This is so awful... If only we were able to make them feel what we feel, then they'd understand

Yeah. When I try to express this we just fight more which is hard on me when my depression is hassling me already. 

@sugarcakeworlds replied to your post “I’m under a lot of pressure to start working full time again in a few...”

I would ask them to wait until you have a partner who can support you and also I wouldn't work full time

I don’t want a partner to support me and I don’t have a choice but to work full time or I won’t be able to make my payments. My family cannot support me even working only part time, which has been way easier on my body, but it’s just not realistic for me right now. .

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@tsuki90 replied to your post “The frustrating thing is that on paper as far as my bloodwork goes, I...”

going to the docter for stomach problems, Ow you're only anemic lets focus on that.. Somehow it's really hard to look beyond the results of the blood tests.

The last several times I saw my primary, she kept making me take mental health surveys and then tried to convince me to try taking antidepressants again and see a therapist. I was getting so mad, like. NO 

@o-bi replied to your post “The frustrating thing is that on paper as far as my bloodwork goes, I...”

most doctors i've met (through a relative who is disabled) are stuck in that box you mention. not taking shit seriously, not accounting for what life is like when she /can't/ take meds, when the injections wear off, etcetc. younger doctors seem to be much better about it though.

I’ve literally had a psychiatrist tell me that I shouldn’t use medical marijuana anymore because it would “poison” me. I’m like, one, how are you a doctor in California if that’s really what you believe and two, what year is this???? 

@plastic-knives-and-forks replied to your post “I haven’t had one arcade win this week and I’m in too much pain to...”

Play with me, my torb/symm skills (inb4 'they don't need skill') in ctf will win you loot :D

Yeeee

@lachryphage replied to your post “The frustrating thing is that on paper as far as my bloodwork goes, I...”

i feel this so hardcore... i'm getting so frustrated with doctors telling me i'm ok because all they do is test my blood and nothing else. i want help...

They have such a narrow way of thinking, it makes me wonder why they spent all that time going to school and learning things. The only doctors I’ve had who think outside the box and actually make improvements are my alternative doctors.

@dragonologist-in-training replied to your post “I haven’t had one arcade win this week and I’m in too much pain to...”

i'm sorry new...maybe we can play sometime over the weekend to get you those lootboxes?

Maybe I can get on, weekends I have school and work so I’m usually pretty wiped out.

@lachryphage replied to your post “It’s suddenly warm and sunny out and shark week so I spent the day in...”

Somehow our periods are synced

By following my blog you have been exposed to my pheromones 

@faeline replied to your post “Why do people even argue about trail mix?”

What is there to argue *about*? It's trail mix.

I always hear people arguing about whether or not trail mix sucks and I always see dumb articles like “Why Trail Mix is Awful”

I’m like *cronch cronch on nuts* okay? Please move on from this trail mix discourse and get a life.