Sep 19, 2015
Usher Syndrome Awareness Day
In honor of our friend Sarah, I would like to call attention to Usher Syndrome Awareness Day.
Usher syndrome is a relatively rare genetic disorder caused by a mutation in any one of 10 genes resulting in a combination of hearing loss and visual impairment, and is a leading cause of deafblindness. Usher syndrome is incurable at present.
I am posting this in support of awareness and hope. For more information, go here. And if you are able to, donate. It’s a very worthy cause. And please check out the awesome people who are running a marathon in Alaska today to raise awareness.
