Today, December 1, marks World AIDS Day, and what better place to spend it than in a South African clinic helping the area at the epicentre of the epidemic. Witkoppen Health and Welfare Centre held a ceremony commemorating those who are affected by HIV as well as those who have fought and died due to the deadly virus. One of the speakers at the ceremony mentioned how she and one other doctor were the first at Witkoppen to treat HIV, holding HIV clinics on Tuesdays and Thursdays about 30 years ago. At this time, there was no treatment for HIV. As she mentioned, they would treat complications such as tuberculosis and pneumonia, but after a short amount of time, all patients would die. She said it was the most difficult time of her career.
Today, patients and doctors are far more fortunate. Doctors are able to prescribe treatment that, if taken on a regular basis, will allow patients to live normal lives. Adhering properly to the medication almost completely takes away the possibility of transmitting the virus to partners and children. It was also announced yesterday that trials will begin in 20 months on 5,400 HIV negative volunteers for an HIV vaccine. This may be a huge step towards preventing new HIV cases, which are said to happen at a frequency of 1,000 times per day here in South Africa.
Furthermore, a new initiative by UNAIDS for South Africa has been put in place called 90-90-90 by 2020. This means that the goal by 2020 is: 90% of people should know their HIV status, 90% of those whom are positive should be on treatment, and 90% of those on treatment should be virally suppressed. Currently, 66% of South Africans know their status, of those who do know they are positive, 55% are on treatment, and 87% are virally suppressed. Therefore, their is still a huge issue and 90-90-90 will be difficult to achieve.
For people living in the Western world, it is difficult to understand why people wouldn't get tested or get treatment once diagnosed. It improves your everyday life, prolongs your lifespan, protects you from other diseases, and protects those around you. The issue is, African culture is completely different, and so are the living environments. Many people have no money, are not educated about the facts or are afraid of the stigma that comes along with HIV. For example, a woman will test positive for HIV but will not disclose to her partner. The reason for this is the partner will blame her for bringing the HIV into the household, and may beat her or throw her out onto the street. Of course, the truth is that many times the men are bringing HIV into relationships, putting young girls in particular danger. Nevertheless, the woman will not take her medicine because she does not want her partner seeing the pills and figuring out she is HIV positive. This not only puts both of them in danger, but it also puts their children in danger, especially if the mother is breastfeeding.
Luckily, there are programs like A FRESH Start which educate, test, support, and protect babies from this outcome. Unfortunately, however, there are times when it is out of our control. Witkoppen currently treats about 350 children with HIV, some with mothers in care and others without. These innocent children have been infected before really having been given a chance in life. It breaks my heart to see these kids at such a young age having the health complications they must endure due to the infection. To make things worse, many of their parents or guardians cannot afford to have them come to the clinic anymore due to a fee increase at the clinic. Up to date, the children have been able to get care even if their caregivers were unable to pay. Beginning in January, however, everyone will have to pay to be treated or else sent away. This means that children would have to attend a government clinic where free care is available. The issue is that these clinics do not have adequate resources to treat paediatric HIV patients and they would be in great danger. It really does not seem fair to me. Healthcare is a human right, especially for an HIV infected child.
As a result, I am working with Lauren Cohen (founder of the Gift of Hope and A FRESH Start), Dr. Holly France (Paediatric HIV specialist), and other staff members to accommodate the mothers and children who cannot afford to come to the clinic anymore. Although it is hard to imagine for most of us, believe me when I say these people literally live on the bare minimum. Many rely on monthly income that couldn’t buy me 3 meals at McDonald’s, let alone support a family.
Please visit this link (http://www.giftofhopeusa.org/goh-oursuccessstories-lerato-and-nyiko.shtml) and read about Lerato and Nyiko (pictured above), two patients whom I see frequently at the clinic. This will give you an understanding of what these patients are going through, and how you can help them. If you have any questions please let me know, and if you know anyone who is looking to make a difference in someone’s life, please share this with them.