Letters to my Epilepsy

[thatepileptic-blog]

I’ve started walking places during seizures, like no, sit down bitch.

[thatepileptic-blog]

Epilepsy makes life hard, but I have to admit some of the best laughs I’ve had are when I’m seizing.

[thatepileptic-blog]

I think my brain needs to realise that calling everything a bitch when I’m having a seizure, will in fact, not help.

It also makes people angry.

[sunflower-cane]

Your illness has not made you ugly

Your feeding tube has not made you ugly.

Your ostomy has not made you ugly

Your cane has not made you ugly

Your wheelchair has not made you ugly

Your oxygen has not made you ugly

Your wig/your bald head has not made you ugly

Your teeth or lack of has not made you ugly

Your body has not made you ugly

Your medications has not made you ugly

Your rashes, blemishes, scars and bruises has not made you ugly

Not being able to shower has not made you ugly

Flashbacks and paranoia has not made you ugly

Changes in your body and brain has not made you ugly

Having seizures has not made you ugly

Your trauma, depression and anxiety has not made you ugly

Your hallucinations, brain fog, and confusion has not made you ugly

Your lack of control over your body, brain, mood and life has not made you ugly.

Please never feel ashamed or ugly about what your illness has done to you, no matter what it has changed it can not change the beauty that you have, so even if you feel like youre not beautiful right now, please remember,

You are beautiful and your disability can never take that from you.

[fuckepilepsy]

Giveaway update:

I’ve finished reviewing the tags. Now I’m going through my own blog, double-checking the numbers. 321 posts, folks. I mean, only about half of those got a number, but that’s a lot to sort through.

[fuckepilepsy]

I FOUND A DUPLICATE NUMBER

It was 69. 

[fuckepilepsy]

Found another one! 119.

Always double-check your work, kids.

[fuckepilepsy]

I’ve taken down the urls of every participant (thirty-eight of them). I’m going to go to each of their blogs and see if there’s anything I missed.

Four and a half hours I’ve been doing this. I think I better make myself a pizza.

[thatepileptic-blog]

Put all of the cheese on it. 

[thatepileptic-blog]

do y’all ever feel like you’re actually on top of your shit, only for everything to crash back down again?

[fuckepilepsy]

I am now beginning the hunt for any lost EpileptiCon posts. First I’m going to scroll all the way through the tags. Then I’ll go to each participant’s blog and do a little scouting around. I’m going to be especially attentive to those who weren’t able to get their posts into the tag.

Again, I ask you to message me and let me know if I’ve missed one of your posts. There was a lot going on this week and Tumblr only permits so many notifications on the dash at one time.

I don’t know why Tumblr does this. For a couple of you, I can’t even tag your url. 

Hopefully this will only take a few hours. Please be patient with me, I need to make sure that no one gets left out.

[agentjohnson]

LGBT

LPlease

Go

BFucking

TVote

[fuckepilepsy]

Dear fellow epilepsy-havers, I would like to know about your interests and hobbies. The things you love and indulge in to bring you comfort. Your special interests. I ask because indulging in my guilty pleasures and practicing my hobbies really goes a long way in stabilizing me, and it at least feels like it helps keep the seizures away.

[thatepileptic-blog]

I love Ice Skating. It feels like it levels me out. But it’s also not the smartest hobby considering how fast you go on knife shoes, on which I seize very often. I also like knitting, and I can’t hurt my fingers with it because they’re already numb!

[fuckepilepsy]

Perhaps you’d like to try ice hockey? I mean, if you’re going to get your shit wrecked on ice, you might as well do it getting hip-checked while trying to drive to the net.

[thatepileptic-blog]

I love ice hockey, but I can’t feel my hands much anymore so I think I’d be pretty shit.

[thatepileptic-blog]

Well fuck me sideways.

This dumb bitch forgot to tinker with her settings, so the gifs that flash like they’ve been possessed by the devil just automatically start.

@fuckepilepsy

[fuckepilepsy]

Dear fellow epilepsy-havers, I would like to know about your interests and hobbies. The things you love and indulge in to bring you comfort. Your special interests. I ask because indulging in my guilty pleasures and practicing my hobbies really goes a long way in stabilizing me, and it at least feels like it helps keep the seizures away.

[thatepileptic-blog]

I love Ice Skating. It feels like it levels me out. But it’s also not the smartest hobby considering how fast you go on knife shoes, on which I seize very often. I also like knitting, and I can’t hurt my fingers with it because they’re already numb!

[thatepileptic-blog]

Epilepticon has me somewhat inspired and irrationally angry at the same time.

@fuckepilepsy since #epilepticon ain’t working like a lil bitch

[fuckepilepsy]

Did you make this?

[thatepileptic-blog]

Yeah! Nothing too exciting tho as I was sleep deprived.

[fuckepilepsy]

Follow-up question: is that, in fact, your hand?

[thatepileptic-blog]

Can confirm was drawn based off of my hand. So I am flipping off everyone who sees it.

[thatepileptic-blog]

Epilepticon has me somewhat inspired and irrationally angry at the same time.

@fuckepilepsy since #epilepticon ain’t working like a lil bitch

[fuckepilepsy]

Did you make this?

[thatepileptic-blog]

Yeah! Nothing too exciting tho as I was sleep deprived.

[thatepileptic-blog]

Six word challenge

No, I won’t try that diet.

Sometimes I just shake, it’s fine.

Why do I need another EEG?

Don’t put shit in my mouth.

I will literally fight my brain.

I’m sorry I don’t remember that.

@fuckepilepsy

[fuckepilepsy]

EpileptiCon Giveaway Reminder

We’re up to five people now who for some mysterious reason can’t get their posts to appear in the tag. Make sure you check the tag to see if your posts are appearing. If they aren’t, tag my url in your posts so I get a notification. That way I can reblog your coolass EpileptiCon post and slap a number on it for the giveaway!

[thatepileptic-blog]

I don’t want to deal with my epilepsy today, but the fucker still comes at me

Tumblr y u no work @fuckepilepsy

[thatepileptic-blog]

Epilepticon has me somewhat inspired and irrationally angry at the same time.

@fuckepilepsy since #epilepticon ain’t working like a lil bitch