THE BUTTON EVENT AND WHY I STILL CAN'T STOP CRYING
The Premiere of the show the The Button Event is an enormous thing for our family. The story Todd is telling is from a time in our lives that now feels so long ago but all the emotions for me are so raw and real. It’s a rare piece of work where science and art collide where the incredibly depersonalized process of medicine juts hard against the reality of a little girl’s life and in between the gaps of rationality there are glimmers of magic and flashes of the possibility of miracles.
It all happened in Melbourne nearly 10 years ago, during that period our lives were engulfed by what was happening to our daughter through her illness, catapulted into a medical nightmare where what transpired in that short period of time determined for ever, her life and the life of our family.
When we moved to Brisbane 4 years ago the girls started school and Lola’s development, which had been so affected, had nearly caught up to her peers. We could start again, it almost felt like we could get away with being a “normal” family with a “normal” child, as in Melbourne we had been that poor family with the very sick and disabled child, so I chose not to talk about what had happened too much, sometimes it felt like I was hiding a secret.
But this week it’s all coming out, there on the stage, the events, the choices, the very intimate details of what occurred and it’s terrifying!
I am very proud of Todd taking on this challenge of telling the story because I can’t, as still now every time I go to talk about it I start to cry……so often I stay silent to stop the tears.
What are these tears about I keep asking myself, as they are so close to the surface always ready to go.
They are about the true pain that I endured as a mother watching her child go from a completely normal baby to stop developing, frozen at 8 months, who couldn’t talk, lost all spacial awareness, couldn't see a plane in the sky and who was having uncontrollable seizures every day and night.
I cry for her twin sister who was often put to the side because she was flourishing and didn’t need help from me or anyone else to talk, walk and be happy in the world so she was often left to work it out herself.
I cry a lot for all the other kids who I know who suffered similar illnesses, disabilities and massive derailments from who they could have been, whose future looked so robbed of the basic joys like having a best friend you could share your secrets with, a boyfriend that would tell them that they loved them, driving a car.
I cry for their parents who were thinking like me, the life I imagined is over now, as it looked like I could be caring for my child for the rest of their life, changing their diapers at twenty.
But I also cry with great gratitude and awe for all the amazing doctors, medical staff, early intervention carers, teachers and aides who dedicate their lives, to finding solutions, for taking risks and for saving these drowning families. You just want to hug them and kiss them and tell them how much what they have done means to you but you can’t because the professional lines need to be clear.
I also cry for my beautiful close friends and family who would just let me cry because I couldn’t speak.
I spent many days and night in the hospital at that time, staring blankly at all the other parents whose eyes were filled with tears, terror and exhaustion. But one of things that makes me cry the most was this little book in the hospital chapel. I went there to pray during one of Lola’s surgeries and in this book you could write your prayer. So I wrote desperately pleading with God with all my power, please make her safe, please make her better, please give her life back. Then I thumbed back through the book and it was the most heart wrenching thing ever, parent after parent pleading, calling, yelling please save my baby, please make them better, please fix them, so desperate and raw and unveiled. It’s stuck deeply with me that book, I probably shouldn’t have read it, as once seen you can’t unsee.
So now I’m crying because we are here now, sculptured by what we have been through, our girls, beautiful and healthy and free. I have stood in a space where medicine, magic and art have all culminated to create a miracle and that’s what this show is celebrating!! Hope, love possibility and the magic of life! Never ever give up!!!
THE BUTTON EVENT
Billy Brown Studio
18th -27th September
BUY TICKETS HERE http://queenslandtheatre.com.au/Whats-On/More-QTC-Events/The-Button-Event








