More Health (fucked)Updates
So, recent diagnoses and what’s being done about them:
1.) Chiari Type 1 (the whole brain-trying-to-escape-skull thing that’s compressing my spinal cord). On a new med for that, to see if it’ll reduce the pressure in my skull without the need for surgery. It makes my extremities tingle, makes me sleepy, and gives me dry mouth, BUT I also haven’t had a migraine since I started taking it, just a few more-or-less tolerable “normal” headaches.
2.) Some kind of auto-immune thing. Trying to figure out what, specifically, and waiting on a rheumatologist appointment and probably 600 more blood draws for that. According to my primary doctor, my ANA is “the highest [he’s] ever seen.” So that’s, uh. Special. I might have lupus, despite the famous Dr. House wisdom that “it’s never lupus.”
3.) Pretty significant vitamin B12 deficiency, getting weekly shots for that. Bleh.
4.) Also deficient in D3 (how? I take multivitamins and go outside regularly) so I get to take softgels three times a day now.
5.) Gotta find a lawyer for disability stuff, since they didn’t fucking wait until after the neurologist appointment to make a decision on my application. :P
6.) Gotta ask my endocrinologist if getting T is even possible at this point, and if it’s not, what to do. It’s really looking like T is my best option for getting relief from my Hell Periods™ since I’m not a good candidate for basically anything else. Apparently increased estrogen can actually make some autoimmune things worse, lololol.
Incidentally, here’s the current tally of things caused by/related to the Chiari Malformation so far:
- scoliosis + herniated discs in lower spine
- chronic radiating nerve pain
- chronic severe migraines
- maybe the cyst in my brain
Gosh, wouldn’t it have been nice if literally any doctor ever had sent me for an MRI and found this shit sooner? c: c: c: But nah, my chronic pain is tooootally caused by just the scoliosis and having flat feet. $50 shoe inserts and 6 physical therapy appointments per year would have fixed me right up. Totally. Fuck you, California medical system.
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