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oozey mess

ellievsbear
One Nice Bug Per Day

Andulka
trying on a metaphor
Today's Document

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RMH
noise dept.
cherry valley forever
will byers stan first human second
d e v o n
DEAR READER
we're not kids anymore.
occasionally subtle
taylor price
art blog(derogatory)
styofa doing anything

JBB: An Artblog!

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@uniquelyunable-blog
Goodbye tumblr!
This blogs new host site!! Unfortunately whilst I've loved tumblr I wanted a more professional looking blog so that my writing would be taken seriously. It would be great if you could follow as I've imported the majority of my old most popular posts on there. This blog will shut down in 24 hours. Keep in touch via twitter @chickonwheelz Thank you.
BLOG ON THE MOVE.
For those who are interested I am moving my blog to a new hosting site. It will be Wordpress and I will inbox all my current followers the new URL. Thank you.
Landoc: Crap Doc!
Hello everyone, So today I had my spinal appointment with my new consultant at Landoc Hospital in Cardiff. My appointment was at 9:45 so as you do with the nhs I went in at 10:30. We were led into the consultation room to wait for the specialist (who shall remain anonymous throughout this post) and had to wait a further 10 minutes. So the specialist waltzes in with the medical student in tow, after he's introduced himself to my mother and sister he turns to me and says 'Do you think your spines changed in the last two years? We'll have a more indepth conversation later' I answered yes and was hurried off for a scoliogram (it's an x ray sitting up.) we literally saw him for 5 minutes. We had to wait a bit but eventually it was my turn. The off putting thing? The radiographer looked like the murderer in 'The Lovely Bones' (sorry, it was the only way I can describe him). that was along and arduous process of manovering. FYI JEGGINGS HAVE POPPERS. Yes, I got a slap on the wrist for that! So after a hasty and well held in wee, we had to wait for the specialist to call us back in. I noticed that a boy my age, in a chair with a film crew. (Turns out they were Cardiff media students and they were filming some documentary) We then called back into see the specialist, having to wait another 10 minutes. Then I nearly blew my gasket. He asked me 'why are you in a wheelchair?' You'd think he'd read my history and the referral physio sent wouldn't you? So I said 'cerebral palsy?' He looked at me like I was making it up. He asked my mother how we'd got the diagnosis and she said an 'MIR when she was two' and he looked ya her like she was a piece of shit. He showed me my spinal x ray and there's a small change from 2012 'but I'm sure (sic) that's not the cause of your pain and I'm unsure as to why you're still getting pain.' He said this as if I'm making all this up. Anyway, he felt down my spine hard and I wanted to explain to him about all my symptoms but he didn't seem to give a shit and he kept talking over us. I got round to mentioning to mentioning my pelvic and hip pain so he pressed on my pelvis and he didn't even care when my eyes watered with pain and I grunted in pain. Guess what he said? 'Go to x ray' So I had pelvic x rays and an old bag of malteasers mum found in her bag and we had to wait again for a consultant because my specialist 'was in a meeting'. I kid you not. Back into the consultation room and he rushes in and says 'there's nothing on your pelvic x ray so we're sending you for an MIR' (Something good I suppose.) So my mum turns to the consultant and asked 'what about pain management? Codeine is not sufficient anymore, she's not sleeping and he says quite rudely 'don't you think if there was a magic pill your daughter would've had it by now and anyway, you're under a different health board so I can't prescribe you anything anyway.' How I bit my tongue I don't know. 'Whens the MIR likely to be?' The answer? 'Not this side of Christmas.' Fucking great, seeing as I'm supposed to be an emergency case. Then it was a 'we'll contact you soon, bye bye now' and shown the door. ---------- Hydro later on. I saw my physioist and relayed this whole saga and was shocked that we were treated so badly. She's referring me again to the same hospital and a new consultant or a new hospital all together so I'll have to go through all this again soon. Also SHE'S referring me to pain management clinic, writing a report for school to okay hoisting and writing me a special considerations letter for exams all of which THE SPECIALIST SHOULD HAVE DONE. To top it all off I was only in the pool for 15 minutes as they'd over booked with kids. I spent more time being hoisted in and out than actually having therapy. Zippedy do frickin' da. (I didn't really mind because I was in pain but ya know it's the principal) Hopefully she'll ring tomorrow. We're also complaining about the consultant. So to be honest I've had enough. I just want some answers and soon
Seeing the spinal surgeon today. Shitting myself
I'll keep you posted, literally.
I've been promising you blog posts and they'll come soon I promise.
NEWS!
So physio came to school today, after my one to one had to lift me on the toilet, after I had to take meds and after she had to lift me back in my chair after sitting on a normal one. Exhausting!
So, the assistant physio came in and explained like, everything. She got me to show her how me and my one to one cope with transfers and she could see that we were really struggling. Anyways, got on the bed and she lifted my legs to try and help me on the bed and I was in agony. It felt like someone had scalded me, I did cry.
So anyways after a discussion about the accessibility of my house and how mums coping. I went back to class.
I get home and I heard the most beautiful sound I’ve ever head; mums ringtone for the physio’s!
My mother is a very strong lady and to be honest I thought she was going to start crying on the phone. It was kind of cringey listening her to relay our saga but it had to be done.
The head physio was mortified especially with the little/no help social services are providing us. She’s also very pissed off that Bristol hasn’t received my referral.
What’s being done: A temporary/permanent hoist is being given to us until my surgeries. I’ve been given a hydro block from the 6th of November
I've been referred to all the specialist spinal units in Wales. I'm having a full assessment next Tuesday I've been referred for MRI scan If we haven't heard about the adapted house by November 6th then we are to ring her and then she's going to ring the council and demand we move in ASAP. So somethings being done now. It's made me less depressed. Taking more codine now, hot water bottle and blanket time. Thank you my friends for all your support.
My inbox will be open for two hours. Everything will be answered and published.
I'm so bored just do it. m-x2 millerlite426 wheelchairwhit @wheelchairproblems
Trying to explain to people about your condition.
Person: can you walk then?
Me: no
Person: so are you paralysed or something?
Me: no I can't walk unaided and I can't use a walker 24/7
Person: but you can walk!
Me: yes. If you look at it that way
Person: so don't say you can't walk then!
Me: but I can't.
Person: yes you can! Stop being lazy and use your walker more.
Me: alright then, I'll do that and you take the stairs instead of using the lift.
Person: *walks off in a huff*
Hi, I was wondering if you and or another wheelchair users would like to help me with my senior project. I'm in a wheelchair and i need other people in wheelchairs opinions and thoughts on how able body people treat disabled people. All i would need if for us to skype so i can ask you a few questions. I will be recording to the skype call to use in my senior project. Please i really need other disabled peoples opinions and thoughts!!!!! Btw i love your blog
Hi yeah I’d be up for it. I’ll post this so other people can see it and let you know if they’re interested.
Just give me some details and we can figure something out!
IM IN,
People who are surprised to see someone in a wheelchair be out and about so late… at 8pm.
Sorry but I am sort of this stereotypical person. I get tired way too easy. I love to be tucked up in bed with my book and a TV series and to be sleeping by 10.am. I'm sorry but it makes me happy. The thought of going out late at night exhausts me, unless it's to a theatre or something, then I make allowances.
disabled children need to know that they’re worth more than being inspirational objects for abled adults
YES!!!
Two more reasons to love Carol Rossetti’s pictures collection is because it adresses disability and it portrays women with disabilities too. I’m so excited that the first one has my name on it!
I love this.
hey, i was wondering if you (or any of your other followers) could give me some advice. i'm 20 years old, and i've never had a boyfriend. i know a lot of it is because i have so little confidence when it comes to approaching guys, because i never think they'll be interested in me because my CP seems to be intimidating. how can i gain more confidence and make people see that i'm worth getting to know on a different level?
Hi, Emily! :) I always read you, and I know you’re feeling troubled about this lately, that’s why I wanted to take my time to give you a good answer. I’m sorry it took so long but I had a busy week.
You must know that I’m about to be 23 years this month and I’ve never been in a commited relationship either. Even if I’d like to have boyfriend because it would be nice to have that kind of complicity and intimacy with someone that you can’t get from family or friends, it isn’t good to push things just because some social conventions say so. Having a boyfriend is not the “be all end all”. Love life is just a part of emotional life (an important part, but don’t give more importance to it than the necessary).
You are still beginning your life. You are only twenty. Maybe another girls our age have already a huge amount of stories to tell, but that doesn’t mean you are late for the “boyfriend distribution”. After all, what matters is not the quantity but the quality. I get sad on Valentine’s day too, but we shall not rush things to happen.
I know that disability makes everything harder. That’s why I’ll share with you this very fragile part of myself with the purpose of making you believe that you can be loved and cherished with your disability: when I started liking boys I noticed that they always liked my friends, but they never liked me. Most of the times when they talked to me they did it for me to help them to hook up with my friends. So I was always the best friend, never the girlfriend. But from time to time some boy liked ME, not my friend. I was so insecure that I started thinking shit like “but my friend is prettier, and I’m disabled, he must be joking, WHY DOES HE LIKE ME?! he has bad ortography after all”. I turned down every boy that actually liked me. I still do. I friendzone the nice guys and drool for the douchebags that treat me bad. The point in this is that even if I couldn’t answer why, boys liked me and they still do and it seems that they will like me for long (thank God). And I’ve had two wonderful fuckbuddies and they’ve made me feel the sexiest woman on earth. My disability hasn’t been an issue for these guys as much as it has been an issue for me. If my experience is not enough for you, here in Tumblr i’ve met wonderful women who are disabled and have successful relationships. Believe me when I say that disability is not the problem. You’re right on that about the self confidence. But don’t you worry, child. That can be fixed! Here are some tips ;)
-Embrace yourself. If there’s something you can do to make a better version of yourself, do it! (Exercising, taking care of your appearance, wearing make up, eating healthy, having a hobby, studying, practicing sports, religion, whatever you like).-It’s important that you feel comfortable and attractive because that’s perceived by others. Wear clothes that you like and make you feel hot. Start getting used to feeling beautiful and sexy on your skin, it doesn’t matter how your style is.-Always be authentic. Do what you like to do. Sooner or later you’ll meet people with common interests, and that’s a great way to start a friendship that could become into something else. -Get busy, don’t think too much about having a boyfriend and let people get to know you in your “natural habitat”. If you think too much about it you’ll get nervous around boys and they won’t get to know the real you. Also, despair isn’t attractive as it gives the message of a needy personality. Boys can smell a desperate girl like dogs. -Stay cool about your disability, think about it as an ice breaker. Last: be yourself.
I hope this was helpful. Write to me any time
Great advice.
Forever reblogging
A blind Hogwarts student who finds her own way of navigating classes such as potions, using the back of her hand held over the cauldron and the various sounds made by the potion, to help gauge temperatures. She mentally counts to get the timings right. For things like transfiguration, or charms, friends show her the wand movements by holding her hand and moving it in the correct gesture. Her books also come in braille editions. She also gets permission to bring her guide dog to school.
Submitted by Anonymous (via hiddenhogwarts)
DISABLED HOGWARTS STUDENTS. CAN THIS HAPPEN PLEASE. JK ROWLING PUT A DISABLED CHARACTER IN PLEASE. I BEG YOU. I'LL GET MY WHEELCHAIR TO LEVITATE.
Had to post this. @ravenlovely452
Great Halloween costume ideas!
Virgin mobile 😂