Konnichiwa @will-comply - Tumblr Blog

Oct 28: This year I want to hyper focus on my family and our home life. Strive to live within our budget, eat and be healthy, limit my personal social media. Mind my own world. Wishing to grow in grace, peace, and self-acceptance in 2020.

"Life has no smooth road for any of us. As we go down it, we need to remember that happiness is a talent we develop, not an object we seek. It's the ability to bounce back from life's inevitable setbacks. Some people are crushed by misfortune. Others grow because of it. Everything worthwhile is at first difficult.

P. Neal

Mood: Euphoric + Productive (first time in weeks)

I thought there was significance in George Harrison's bday.. I just couldn't put my finger on it until today. Ahh Feb 25... the day we signed the lease for PIFL. It's been a crazy 4 years!!!

Bon Iver and Britney Spears, #mytop10

"A ship in harbor is safe, but that is not what ships are built for." - John A. Shedd

unicorns don't exist.

thanks for the tip jinho

The Lupie Life

Another month another Lupus flare up.

I'm getting pretty tired of constantly being sick, but am grateful that I was able to enjoy Christmas and New Year before it got really bad. Currently fighting an infection from my chilblains (frostbite) that was made worse by this cold weather and my poor circulation. I had to see my dermopathologist and am on really strong antibiotics which make me nauseous.

We had to up my steroid/prednisone dosage.. which means my rheumatologist had to withdrawal me from our double-blind clinical trial (I could have been receiving a placebo all of 2014..) and I get to go into open label! So I will be on Epratuzumab for sure!

New lesson learned, my body is VERY immunosuppressed. Therefore, stop touching anyone/anything/kids/germs/ all things at Target.. and SANITIZE SANITIZE!

#Lupus #epratuzumab

good bye 2014

2014, you were a very difficult and challenging year for me. I know I will look back on you one day and really understand & appreciate all highs and lows we went through. Right now, I just want to say GOOD RIDDANCE!

I am ready for a fresh start..may this be the year I can apply a lot of what I’ve learned, continue to work on my zen, have more grace, just be in the present moment, and improve my health.

November-

Try your best to: sleep well be positive eliminate ANGER

To do: clean, simplify, declutter eat, cook moisturize, yoga, bike longer walks & fresh homemade treats for pups

Hi, how are you?

So I took a long extended blogging vacay..a lot has happened, and then again not so much at all!

Geez, I really can't remember where I left off (can't remember much of anything from my past lately). All I can recall is doing a Prim & Pretty Birthday, entertaining some Australians before Scout camp, and WHAM. I caught a virus while doing too much and then that caused my Lupus to flare horribly. I've spent all my days at home resting and I'm really liking the introvert homebody life. I just wished I had the energy that I used to have..and that I'm used to having.

The most major lesson learned is definitely adapting to this and really learn to take care of myself. It gets pretty ridiculous..

- photosensitive, allergic to UV rays from the SUN and fluorescent light, aura inducing migraines (I can't drive because of the sun glare off other cars in the daytime and at night, traffic lights glare, ugh), skin rash, hair loss..vertigo

On the positive side, my RA symptoms have definitely subsided. I can get out of bed in the morning without pain, my fingers work, I get spurts of energy that last a couple of hours, my skin is looking great, I'm sleeping normal person hours and am up by 8am!!!!! I just need to maintain this new healthy "stress free" germ free routine, it is so difficult to be mindful all the time. I still haven't been able to meditate very well and I do yoga with the TV on..

Thought I would have it together by October when I turned the BIG 3-0. Nope, not yet but trying to get there. Perhaps 2015 will bring me more wisdom and more Zen.

holy mackerel!

been fighting off a virus, cabin fever, super low white cell count. A WHOLE MONTH confined and quarantined.

Recap last month of my Lupus clinical trial

June 3rd Infusion, always look forward to celeb magazines saved for me

May 27 Infusion, the magic elixir

May 20th, got a recliner lazy boy : D

May 13th, First Epratuzumab Infusion

Bruising after my first infusion! The scariest part of my weekly infusions was when they had to get into my veins..I bruised a ton the first two weeks. Nowadays the nurse that does the blood work knows how NOT to bust my veins. I've slowly been feeling better, going out, not in as much pain. Next Goal: try the Paleo Diet, it is supposed to help with joint inflammation. Woot woot

rise and shine buttercup

"Daytime Disco" playlist

My Lupus activity has been extremely active this past year, and the symptoms have probably been the worst ever this month. Aside from the fatigue and chronic aching, I've also developed some arthritis in my hands and fingers. It is quite debilitating and some mornings I honestly cannot get out of bed for hours. I can't open car doors, water bottles, my arms even get tired when I shampoo my hair. It's crazy

Through all this, I cannot be more thankful and grateful for the kindest and most caring husband. It has also taught me that it is okay to slow down (well, for one because I HAVE TO physically) but I've really enjoyed my surges of energy and the productivity that comes along with it.

Regardless of the flare-ups and overall weakness that Lupus brings, I've managed to team up with two dear friends to work on a new business venture. Event and wedding planning! It's really kept my mind excited, busy, and my creative juices flowing.

I've also been accepted into a clinical trial for a new intravenous medication that's had positive effects for Lupus patients. Overall, I just need to hold out a month or so and hopefully I will be back to my normal energetic self : )

#Lupus #lupusawareness

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