Chronically [NOT] awesome

23|FIN|| Spina Bifida/Meningomyelocele and Hydrocephalus since 1993 Chiari malformation since 2012 I also have PCOS and other stupid things. Instagram: chiariwarrior06

[bob-belcher]

a detailed list of things I hate:

hot weather

high temperatures

heat

warmer than average conditions

[rubyetc]

an honest review of my medication taking habits

[disabilityuserboxes]

this user has hydrocephalus

[yeschronicallyawesome-blog]

Random person: well this medication you're taking is just treating the SYMPTOMS of your disease, it's not actually helping you

Me, internally screaming: I have a CHRONIC illness. THERE IS NO CURE. I will take what I can get.

[lavender-lily]

Why do people feel the need to tell people with chronic pain and/or illness that “you always hurt/feel like shit” as if that makes you less in need of sympathy rather than more Like I’m so sorry that my constant suffering has exhausted your supply of compassion That must be really hard for you

[cementforbones-deactivated20171]

fuck you.

[spooniestrong]

When you're feeling ok, and then out of nowhere, your body's like:

[a-dull-aching-pain]

Things not to say to a spoonie.

“It won’t kill you getting up early.” They don’t know what fatigue is like. But It actually feels like you’re dying.

You take as many naps as you need to get through the day.

“At least it’s not cancer.” They’ve have no idea what you’re going through, so please don’t act like you do.

Just ignore those idoits, who don’t even know what the word “chronic” means. Just think of things that make you happy.

“You don’t look sick.” What do you think “invisible illness” means? They’ve obviously never felt ill, because then they would know, it doesn’t always make you look different.

You’re beautiful, whether you think so or not.

“You’re not disabled, I don’t see a wheelchair.” Not all disabilities are visible.

Just because you’re disabled, it doesn’t mean your not a hero.

“I hope you feel better soon.” I know it sounds like they’re trying to be kind. But a “chronic illness” is something that will never go away. So they’re just making that person more depressed.

You have other people with chronic illnesses you can talk to. They understand.

“Why are you so lazy?” A disabled person has a limited ablity to do anything. They’re not aware of what you’re going through.

These people don’t understand how much effort you put in, day in, day out. You go at your own pace.

Feel free to add more.

[disabilityhealth]

When I want to do stuff but my illness has other ideas

[Gif of a cat slowly sinking into a cardboard box as the lid it was sitting on gives out.]

[qoa]

[headedforshore]

Reblog this if you have a disability and you are willing to answer any questions anyone may have about said disability.

[whatshouldwecallme]

When someone asks me what's going on in my life

[totally-relatable]

[disabilityuserboxes]

this user has hydrocephalus

[shit-abled-people-say]

Shit Abled People Say #376

“Why is your memory so bad? You’re so young! You have no excuse, you don’t have alzheimers, amnesia, or brain damage!”

[cerulean--blues]

Me, to my headache and the incoming nor'easter:

[sunflower-cane]

dont use my disability story as your life lesson.

dont use my struggle as motivation.

dont use my pain to help you through yours.

I do not struggle for you.

I am not in pain for you.

My disability is not about you.

[yeschronicallyawesome-blog]

[yeschronicallyawesome-blog]