Shakin' like a Shake Weight

[b3ck17-deactivated20200813]

To the young people, who got into politics for the first time and may be disappointed by the results, I just wanted you to know: You have to stay encouraged. Don’t get cynical. Don’t ever think you can’t make a difference.

President Barack Obama (via b3ck17)

[tricks-for-blog]

Do you have epilepsy and can't have gifs on your dash?

There’s are several ways to turn off all gifs on your dashboard.

If you have XKit, you can download the “Disable Gifs” extension.

If you want to (permanently) disable any gifs on the web, follow this handy guide (works for Firefox, Internet Explorer and Opera).

There is a Chrome extension that pauses all gifs until you click to start them.

Know more / other ways? Please share!

[zombriibrii]

ER doctors “privately” conversing your case in front of you:

While you’re all like:

[zombriibrii]

I have non epileptic seizures. What is an epileptic seizure like?

Well, to be honest this question is kind of throwing me through a loop. I’ve never really thought about the difference before. To be frank, I don’t think I know the difference for sure. I can tell you about my seizures though.

Epileptic seizures happen when there are abnormal surges of electrical activity in the brain. It’s a total bummer. It’s a lot like when lightning hits a power-line and all the lights get really really bright right before they burn out. Too much energy will cause the light-bulb to stop functioning properly. That’s the way I look at it at least. When my brain gets a little too electric to function properly my lights go out haha. Most if not all of my senses become impaired in some form or another and most times I do lose consciousness and even lose control of my bladder. They also believe that certain cases of epilepsy are genetic. My Uncle is epileptic and his Aunt is as well and I’m sure there are more. I don’t know if non-epileptic seizures can be genetic or not. 

What I do know is how epilepsy is diagnosed and how it differs from non-epileptic seizures. A doctor will perform an EEG (electroencephalogram) on the patient who is said to have/show symptoms and signs of seizures. If a person has epilepsy the scan will show the abnormal electrical activity in the brain and where it is starting from. That is of course if it is not a generalized seizure, in which case your whole brain lights up like a Christmas tree. This is because a generalized seizure covers the entire surface of the brain rather than a specific location. If the person does not have epilepsy the scans will look different, how different exactly I’m not sure. I’m no doctor, I didn’t go to med school. If the scans don’t show that epilepsy is the cause of seizures the doctors will probably put the patient through a lot more testing such as; blood-work to rule out infection and to make sure the liver and kidneys are functioning properly, stress tests, they may make the person speak with a psychologist to see if the seizures are a result of mental trauma. 

Now they say that treating non-epileptic seizures with epileptic medications can have serious side effects buuuuttttt truth be told they have very serious side effects on almost everyone. I’ve lost a lot because of my medications and I need them. I’ve lost weight, hair and teeth. I break bones easily, bruise easily. Can’t stay awake through the day but can’t sleep more than a couple hours at a time. I’m never hungry and always tired. So if you have non-epileptic seizures and have the choice to stay away from these medications I strongly strongly urge you to find another way. Don’t eat this poison if you don’t have to. 

[zombriibrii]

For people who think they need to put wallets in our mouths...

Don’t, just don’t. Don’t put anything in our mouths and don’t restrain us. Please and thank you. 

[zombriibrii]

Tina Fey demonstrates three stages of a seizure and gives them fun nicknames!

1. Aura - The start of a seizure, a warning sign. Where you try to get somewhere safe but its like you’re moving in slow motion:

2. Ictus - The physical seizure:

and/or:

3. Postictal - After the seizure, when you come back to consciousness and you’re just like, “FUCK”:

[zombriibrii]

You know you’re epileptic when your medication costs more than your rent.

The cost of pharmaceutical medication got me like:

Switching to marijuana got me like:

[zombriibrii]

Oh hey, I look different...again. (:

[zombriibrii]

Medical Marijuana

What's good hoodrats?! I first want to apologize that I often disappear. I am sincerely sorry and if you don't forgive me, I would understand. For now though I am back and am looking forward to catching up with everyone! Before I start posting my usual, wildly hilarious and offensive posts I wanted to bring up something that I believe to be very important. 

What do you do when you're told that there is a drug out there that will save your life, a drug that will enable you to live a normal life and what do you do when you're told that you can't have it?

You raise hell. You fight for your life. 

Medical marijuana. The miracle drug, cannabidiol (CBD). I know it continues to be a controversial topic but I don't give a shit who I upset with where I stand on this. Let me explain my position on the topic. When I started to run out of options in terms of treatment some of my doctors kept telling me to smoke (marijuana) on a daily basis. So I did and guess what happened? I didn't have a single seizure. Then they decided to start me on a new medication. With high hopes, I stopped smoking... 

I went into status within days and almost died. 

Whenever I talk about this I get very mixed reviews, what makes me angry though is the people who say, "Well you can't just be high all the time. That's no way to live." No way to live? Are you kidding me? No way to live. I know whats no way to live, in a decaying body that wont allow me to function. On medication it takes everything in me, every fiber of my being, every ounce of give a fuck to just open my eyes in the morning. If I'm not on medication I seize so much that I lose my ability to even speak properly. Is that any way to live? 

I had horrendous issues with my antiepileptic medication which is why I turned to marijuana in the first place. The drugs were ruining my body from the inside out. Just to give you a rough idea on what was happening to my body, some of my teeth fell out (right out of my head at random times. One time I was eating some watermelon and half of my tooth fell right out. Another time I was simply talking), my hair was falling out, hair completely stopped growing on my body, I was living with crippling pain and confusion, my weight dropped a dangerous amount... A year ago the doctors told me that all they could do was "keep me comfortable" no one told me though, that keeping me comfortable meant steadily pumping poison into my body until I die. Steadily killing me from the inside out, instead of leaving me be to let nature do it's thing and decide what it wants to do with me. I made a decision that many many many people told me was very stupid and dangerous...

I went off of all medication. 

I did not stop cold turkey, don't worry I wasn't that stupid. I told my doctors that I was doing this, with or without them. Of course, as the great medical professionals that they are, they protested. They tried and tried hard to guide me in any direction but the one I was heading in. I stood my ground though and I stood as tall as my aching bones would let me. I made it about a little over a week off of the medication before I ended up in the hospital. So I was faced with the decision to seize until I go brain dead or go back on the medication that I believe will surely be the death of me. 

Let me quickly explain that I understand completely the medical risk I took. I know what I was doing. I know you may be thinking that it was suicide. It wasn't, it was the exact opposite. I wasn't trying to die, I was trying to live. I was trying to feel kind of okay. I don't expect anyone to understand my decision but I would hope that people will respect the decisions I make with my own life and body. 

I am back on the medication. 

I want to be taking CBD or smoking by the daily because it has clearly worked for me in the past but it is illegal where I live. You need to be put on a list, you need to wait and see if you're sick enough. I am one of the unfortunate where pharmaceutical medications do not work to control my seizures properly. I am also living proof that marijuana works. I fully support the research for CBD. Basically, in short, I know that marijuana helps prevent seizures. It also helps many many many other conditions. It does so much good, lets get this shit legalized everywhere.  

I will do what I have to, to be able to live. I will fight as hard and long as I need to. I will sign up for research. I will do whatever it takes. I will live. 

Stay spectacular and try not to seize the day,  I'm hopping on the cannabis caravan. xoxo<3(:

[zombriibrii]

Dear Anon, the tumblr app on my phone wouldn't let me answer you and attach a photo. To answer your question I have bit my tongue multiple times. One time so bad it slightly split the end of my tongue tanks to my crooked ass tooth. I look like a wannabe lizard hahah. I've never gotten stitches on my tongue, I just did a sea salt water rinse five times a day until it healed. Hurt like a mofo but it did eventually heal.

[zombriibrii]

In case you were wondering, I am in fact ridiculous all of the time. Not just on my blog.

[zombriibrii]

Calling all epileptics!

A few of you asked me to write about epilepsy and relationships. Is there anything specific you want me to talk about? Send me some questions! Nothing is too personal.

www.zombriibrii.tumblr.com/ask

[qjusttheletter]

Well, if people were educated, then my seizures wouldn’t scare them. On top of that, why is their education more important than mine? Andyou guys should quit using the word spaz. It’s - well, it’s more than a little offensive. Spaz, retard, freak - quit it. 

[captainfantasticspastic]

Alright anon, how about this? I’ll stay at home shut up in my room if you board your own ableist self up too! Your words so far more damage to others than a seizure victim causes by accident. Not all people can help seizures. Do you think we WANT to have them? Do you think it is FUN? And you wanna talk about scary. It’s a hell of a lot more terrifying for the person having the seizure, let me tell you.

[zombriibrii]

Dear Anon,

Go choke on lightning and tell me how it tastes. If we hid everything or hid from everything that scares us we would not improve as a society, we wouldn’t learn anything and people would get hurt and that’s not ok. It’s people like you that hold other people back and that shit is 100% unacceptable. I will not stop living my life because it bothers you. Read a fucking book.

[zombriibrii]

I fucking hate when I wake up from a seizure and someone is screaming.

Dear Screamers, 

My head feels like it has been run over by an eighteen wheeler, eighteen times. If you don’t shut the fuck up I’ll hit you with a commercial truck. I don’t care if I don’t have my CDL or a valid drivers license for that matter. I will steal a very large motor-vehicle and hit your crazy ass with it. Understood? 

Sooooo

and

[the-seizure-blog]

Dear tumblr, why do you hate people with epilepsy?

no for real. just go to the epilepsy tag and scroll for a bit. I DARE YOU. what is supposed to be a tag meant for people with epilepsy to communicate and share information has been turned into attempted murder by flashy gifs. sure there are legitimate posts put there by us. but you can’t look at them without running the risk of running into every flashing gif known to man. 

Please tag your flashers, and fast paced repetitive gifs. but do not put them in the epilepsy tag more appropriate tags could be seizure warning, epilepsy warning or trigger warning. take your pick. sounds simple right? but there are still people who fight us with this finding this task affects them to much to take a few seconds to tag a gif

first off this guy is over reacting, we do not ask that you tag EVERY GIF we only ask you tag, bright,repetitive,fast, flashing images, if for example if it is just a looped animation  it should be fine (unless it is as just described). second tagging a gif takes only 2 seconds, and seems alot easier than learning to disable software. 3rd alot of people  have already taken this precaution. BUT they cannot do this on the tumblr app. finally if you are able to tag it epilepsy and potentially kill us. you can stop doing that and instead tag it appropriately. 

and finally we have these people

just terrible, what is funny about this? “DUR that guy has epilepsy so I’m going to send him a flasher so he will fall on the floor and twitch, and foam at the mouth, and pee himself, and stuff DUR.” luckily the person did not have photosensitive epilepsy, or this could’ve been a tragedy.

by now you are probably asking yourself Why should I care? it is my blog I can post what I want why should I cater to these people? We are not trying to tell you what you can and can’t post, we are asking you to take 2 seconds out of your day to tag your gifs. 

Just think about this. You are not affected at all, but if a person with photosensitive epilepsy see’s your gif, they could have the seizure that turns into another seizure that they don’t wake up from. or they could fall and hit their heads against a table and bleed out. or they could have a seizure, not show up to work, get fired the next day. REAL LIFE SHIT just because you didn’t want to tag your gif. 

I’m sure I will get hate mail for this, but this is something that needed to be said. 

[zombriibrii]

This is my new favorite thing.

[zombriibrii]

Just curious, but have you ever been considered for brain surgery since your meds don't really help you?

Yes and I've been thinking about it more and more lately but it is my brain and I'm honestly afraid to let anyone cut my head open. I've heard of many successful stories, some of which from some of my dear followers but I can be a big baby sometimes hahah. Have you had brain surgery? How did it go for you?