hihi !! new account because i& lost my& last one , but i&ll get straight to the point . this might get into vent territory so i&ll cut it off just in case !!
i& am in debilitating pain 24 / 7 . i& have a high heart rate + high blood pressure , and my& joints always hurt . my& toes , ankles , knees , hips , entire back , shoulders , traps + neck , and the base of my& skull always hurt , with my& sensitive areas being knees , hips , and neck .
along with this , i& am always fatigued . i& wake up around 10 and go to bed around 8 [ when i& can ] , and am never able to fight off my& tired feeling .
after almost two years and two canes later , my& mother brought me& to the doctor . i& go , do my& physical , get my& blood + urine drawn the next week for every test BUT the one i& thought they'd do [ a crp for inflammation ] , and i& go home and wait .
nothing . they said i& was sick , on my& period [ blood in urine ] , and dehydrated , and nothing else .
now everyone in my& house is acting like im crazy .
i& dont know what to do , and every time i& think about it , i& cry . two years of waiting for ... nothing . i& cant stand without support , i& was kicked out of band for my& inability to march correctly , and i& cant go up / down the stairs without falling .
it hurts . living hurts . my& partner and friends are the only ones who believe me& and my& family is treating it like its all in my head , that im& working myself up over nothing . that life is supposed to be like this .
it isnt , something in me& KNOWS its not . something in me& knows that this is not normal , and every time someone says that they go even a few minutes without pain i& just want to curl up and cry .
standing hurts right now , laying down hurts right now . i& barely have enough energy to make this post because my& fingers are cramping and i&m so fucking tired . its 2am , way past when i& sleep , and i&m up crying because i&m in so much pain .
i& just need advice , feel free to scroll .
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