McKenzie’s Fight Against AFM @afmcantstopme - Tumblr Blog

I am incredibly excited to share that I have been accepted into the Institute for Youth in Policy Summer 2026 Fellowship Cohort! With just a 5% acceptance rate for this cycle, I am honored to join the next cohort of emerging policy leaders. I can't wait to endeavor in policy research, connection, and learning to build myself into a prepared cross-sector innovator. Looking forward to what's next!

#choosekindness #mydifferenceisbeautiful #teamkenzz #thisisafm #YIP #Policy writing

It’s been a week, we have several appointments locked down and are successfully getting life set up more. I’ve started more projects that I’m excited about, I believe that the projects have potential for real change but I’m hoping to get them set up with more people before I announce for real. I will say that one is a social community on Discord and several others. I’m hoping to create a connected community, not just random projects.

I’ll probably have most of it set up in a few days.

I’ve been putting all of my effort into these.

Everything is going quite well; I really am making progress and I’m hoping it’ll all come together! I hope I’ll have news about it soon.

It’s going to be a jam-packed month but a great month!

I wish everyone well; I’m fine but it makes me happy when plans work out!

#choosekindness #acuteflaccidmyelitis

#choosekindness #mydifferenceisbeautiful #teamkenzz #thisisafm #superhero #soundcloud

It’s been a while since I last posted! My botched bilateral tibial osteotomies in 2023 ruined my life mostly. I put all things at a stop because I lacked motivation and was anxious about doing anything but things are coming together! I’m 18 years old now and we’re getting various integral doctors appointments done, I’m graduating, we’re getting a Cleveland clinic trip scheduled, and getting scans/procedures/new doctors set up. I’ve had a rough go of it but after my district dismissed me to tell me that no homeschooling ever got you a diploma; I’m officially graduating despite everything that happened. It’s going a lot better as of recent. My wheelchair that I got years ago, I still can’t use because it’s hard to set up five hours for wheelchair adjustment that’s an appointment that’s impossible to set up. I can’t sit up much because of how my hips are, my back of my chair needs to be very specific to fit me. We have several wishlists that I need to shrink but haven’t yet. We’re working on getting things for my graduation. It’s all scattered at the moment but things are good. My main missions at the moment are finding volunteering options virtually, working on creating a program that I’m researching how to do safely, and I don’t know; just thinking and figuring things out. We’re looking into hospitals in California too for my chronic pain and broken bones. This is scattered but life is doing better, I also have this new haircut that I love but I think that’s it. I’ll leave this off by saying that there’s a ton of new work by amazing people at Youth Journalism International. You can go check them all out below!⬇️

Home - Youth Journalism International

#choosekindness #teamkenzz #thisisafm #rare disease #disability #blog #mydifferenceisbeautiful #youthjournalism #homeschool #high school #graduation #quadriplegic

Hi guys! I’ve had a good week. I’m doing something tomorrow that’s going to be a good suprise! I’m releasing a cover on Wednesday! We found out we have to be in Philadelphia for Shriners on September 28th-October 1st. They’re doing just an evaluation. To see if I’m a candidate for a tendon transfer. Also I’ll have an EMG. My wheelchair is so messed up it hurts being in it but I can’t get a new one yet. It’s an adult chair modified for a child. Anyways see you later!😊😘❤️💙💚🖤💜🧡 #choosekindness #teamkenzz #thisisafm #mydifferenceisbeautiful

Hi guys nothing really has been going on but I’m trying to write that song! I GOT MY STRATOCASTER TODAY IM OVER THE MOON. It’s a guitar FYI. I’ve strarted to do some therapy. 1 thing I’m excited for is the stranger things season coming out July 4th. I painted a thing for my aunt. On the day of my brother who dieds birthday. OUR RAMP WOULD NOT DEPLOY!

We had to do it manually eventually it worked but it frustrated me! Anyways I’ll see you later guys 😘😘❤️💜💚🖤♥️🧡💛💙

#choosekindness #teamkenzz #thisisafm #mydifferenceisbeautiful

Hey everyone!

I’m doing ok having surgery 25th.

I saw Secret Life of Pets 2!

It was hilarious and good.

We got ahold of somebody that could help my dreams come true! It’s awesome and I’ve been having nausea a lot badly.

1 day I even needed formula which is unusual for me!

I felt like I wanted to throw up but with AFM I can’t.

My hand has been getting tired really fast I don’t know why.

I have been watching Netflix a lot.

Anyways guys. My hand is getting tired so I love you all bye!❤️💙💜💚🧡💛😘

#choosekindness #teamkenzz #thisisafm #mydifferenceisbeautiful

Singing Riptide by Vance Joy

Hi guys! Turns out I do have a nurse and I have G/J tube surgery on the 25th! It will be a day procedure. Tomorrow I’m graduating 5th grade I’m excited! I am at grade level because I have this amazing teacher that has helped me so much! Today is my brother AJ’s birthday! He died when he was 4 months old and died from severe chronic lung disease. He would have been 20 today. I miss him but today my dad went out and painted his grave stone! Also he put birthday decorations at his grave😊 Anyways I hope you all have a great week and have fun! Love you all bye 😊😘💚❤️💙💜💛🧡 #choosekindness #teamkenzz #thisisafm #mydifferenceisbeautiful

Hello everyone! I’ve had a kind of good week a lot of pain but otherwise I’ve had a great week. Watching America’s got talent and then The In-Between. I had to cancel my eye appointment no day nursing currently. I hope you all had a great week I had Sunday/Tuesday school😂 Anyways I love you all😘♥️🧡💛💚💙💜🖤 #choosekindness #teamkenzz #thisisafm #mydifferenceisbeautiful

Some of the happiest moments in my life have been when I am sick in the hospital—honestly. And think about the implications of that because I have lived the kind of life that all of you spend your entire lives running from. I’ve been sick and dying my entire life. And yet, I am so proud of my life. What does that say? We’re waiting to be healthy; we’re waiting to be wealthy; we’re waiting to find our passion; we’re waiting to find our true love before we actually start living! Instead of looking at everything that we have—looking at all of the pain, looking at all of the sadness, looking at all of the beauty, and making something with that. That’s how innovation happens.” ~ Claire Wineland, Klick MUSE New York I love this quote.

Hi guys it’s Mother’s Day! I have had a great day no nurse. My mom is amazing, smart, strong, and picks me up. She’s the best😊 Played with my friend! I think having an amazing mother is really important! I hope you all have a great day! I can’t describe how much I rely on my mom. Anyways coming out with a Mother’s Day cover tomorrow love you all shoutout to all the mama bears out there love ya bye 👋💜💙💛🧡❤️💚😊

#mydifferenceisbeautiful

Hi guys! I have had a nice few days! I go to the GI dr today. I have the wheelchair clinic tomorrow. I’m making a YouTube video vlog today. Plus it’s NURSE AND TEACHER APPRECIATION WEEK!!! I love my nurses and teachers they help me so much and I just wanted to make this post to say appreciate everyone in your life before it’s too late. I love everyone in my life so much. I hope you do too! Anyways I will see you guys later bye 💜💜💜💜💜💜💜💙💙💙💙💙💙💙💙❤️❤️❤️❤️❤️❤️❤️❤️❤️🧡🧡🧡🧡🧡🧡🧡🧡💛💛💛💛💛💛💛💛💛💛💛💛💚💚💚💚💚💚💚💚💚. Pictures are of 2 of my nurses at the hospital couldn’t find ones of me with my teacher sorry 😐

Hi guys I got awarded the creative sketchbook project from healthbeme! I’M so ecstatic I get to be a part of a healthcare movement!!!!! Sorry I can’t type much but FYI I can’t flip through the pages myself that’s why we did it this way. #choosekindness #teamkenzz #thisisafm :Video description me showing the creative healthbeme project that I colored FYI I’m sorry it took me so long I color slow😩

Today’s post! Requested by @hyperpotsmama !

Ok today’s subject HOW GREAT ARE NURSES! NURSES SAVED MY LIFE they don’t play cards in their spare time WHAT DO YOU THINK THEY DO PLAY CARDS WHILE DOING CPR. WHY WHY WHY NURSES ARE GREAT NO MATTER WHAT YOU SAY SO YEAH BUH BYE!

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McKenzie’s Fight Against AFM