2017.
I haven’t talked to my dad in months aside from his voicemail. He called me today. It’s New Year’s Day. You know what he called to talk to me about?
My weight.
PUT YOUR BEARD IN MY MOUTH
sheepfilms

@theartofmadeline
Not today Justin

oozey mess

Janaina Medeiros

No title available
AnasAbdin
wallacepolsom

PR's Tumblrdome
let's talk about Bridgerton tea, my ask is open
Today's Document
Mike Driver
DEAR READER
Xuebing Du
dirt enthusiast
NASA
YOU ARE THE REASON
Aqua Utopia|海の底で記憶を紡ぐ
No title available

seen from Malaysia

seen from United States
seen from Italy

seen from United States

seen from United States

seen from Canada

seen from Türkiye

seen from Spain
seen from United States
seen from Malaysia

seen from United States

seen from United States
seen from Hungary
seen from Brazil
seen from United States

seen from United States
seen from Malaysia

seen from Malaysia

seen from United States
seen from Germany
@atnatnatn
2017.
I haven’t talked to my dad in months aside from his voicemail. He called me today. It’s New Year’s Day. You know what he called to talk to me about?
My weight.
Let me crack this blunt Slow it down for a second Break it down, ooh She said, “let me lick this blunt” Slow it down for a second Break it down, ooh We deserve, we deserve We deserve, a smoke break We deserve, we deserve We deserve, a smoke break
This album is perfect.
“Life will break you. Nobody can protect you from that, and living alone won't either, for solitude will also break you with its yearning. You have to love. You have to feel. It is the reason you are here on earth. You are here to risk your heart. You are here to be swallowed up. And when it happens that you are broken, or betrayed, or left, or hurt, or death brushes near, let yourself sit by an apple tree and listen to the apples falling all around you in heaps, wasting their sweetness. Tell yourself you tasted as many as you could.”
Louise Erdrich, The Painted Drum
2017.
This is the first year since '12 where the new year doesn't mean a new hospital, another surgery, a hopeful doctor, an experimental infusion, novel techniques, pending lab results, clearer imaging, open medical trials, new FDA scheduling, second opinions, supplemental therapies, etc. For the first time in a long time, I get to choose what I look forward to in the upcoming new year. It feels heavy, but I am ready.
Six months ago I had a total hysterectomy for stage IV endometriosis with severe bowel involvement. It took 14 years of "bad periods" to get a diagnosis, which only came by chance after losing my right ovary to torsion. Untreated - my disease progressed to the point of pulling my entire uterus to the right of my midline and tangling itself into my small intestines. It took an OBGYN, a GI, and general surgeon four hours to dissect my uterus off my intestines. I was infertile before I went to the OR that morning. On top of endometriosis, I had countless doctors tell me, "women under 40 don't get adenomyosis." At 25, my uterus biopsy came back positive for adenomyosis. The sick thing about this is that this wasn't an experience unique to me. Women go through this every day. As I always say, the world hates women. Last week Johns Hopkins Hospital shared a video that said surgery shouldn't be the first course of action for endo. If you have (or think you have) endometriosis, do not accept bullshit advice like this. Surgery should absolutely be the first course of action. Push for better care. Push for surgery. Push for excision. Push for solutions, not band-aids.
Right from the start I knew You’d set a fire in me And I’d rather be sad with you Than anywhere away from you…
From the beginning, I was told I was a best case scenario.
I had forensic evidence, sober unbiased witnesses, a slurred voice mail, police at the scene. I had everything, and I was still told it was not a slam dunk. I thought, if this is what having it good looks like, what other hells are survivors living? I’m barely getting through this but I am being told I’m the lucky one, some sort of VIP. It was like being checked into a hotel room for a year with stained sheets, rancid water, and a bucket with an attendant saying, No this is great! Most rooms don’t even have a bucket.
After the trial I was relieved thinking the hardest part was over, and all that was left was the sentencing. I was excited to finally be given a chance to read my statement and declare, I am here. I am not that floppy thing you found behind the garbage, speaking melted words. I am here, I can stand upright, I can speak clearly, I’ve been listening and am painfully aware of all the hurt you’ve been trying to justify.
I yelled half of my statement. So when it was quickly announced that he’d be receiving six months, I was struck silent. Immediately I felt embarrassed for trying, for being led to believe I had any influence. The violation of my body and my being added up to a few months out of his summer. The judge would release him back to his life, back to the 40 people who had written him letters from Ohio. I began to panic; I thought, this can’t be the best case scenario. If this case was meant to set the bar, the bar had been set on the floor.
The morning after the sentencing, my phone screen was stacked with texts and I turned it over saying, not today, on this day I deserve to sleep. My phone kept ringing and I learned that BuzzFeed was waiting for my permission to publish my court statement in full. As soon as it was posted, I remember thinking, what have I done, making myself exposed and vulnerable again. I texted my sister when it hit 20,000 views, thinking that was it, the comments were actually quite nice, and I closed my computer.
I started getting e-mails forwarded to me from Botswana to Ireland to India. I received watercolor paintings of lighthouses and bicycle earrings. A woman who plucked a picture of her young daughter from the inside of her cubicle wrote, This is who you’re saving.
When I received an e-mail that Joe Biden had written me a letter I was sitting in my pajamas eating some cantaloupe. You are a warrior. I looked around my room, who is he talking to. You have a steel spine, I touched my spine. I printed his letter out and ran around the house flapping it in the air.
There was, of course, the wee sprinkle of trolls. Some photos of me leaked and someone said, “She’s not pretty enough to have been raped.” In response I say, damn I wish the world could see me. I wish you could see my big, beautiful head and huge eyes. Perhaps now you are at home imagining me looking like some sort of bloated owl. That’s all right.
When Ashleigh Banfield read my letter on the news I sat stunned watching her speak my words, imagining them being spoken on every television set in the nation. Watching women and men at Gracie Mansion, on the floor of the U.S. House of Representatives, girls in their rooms, gathered together to read each segment, holding my words in their voices. My body seemed too small to hold what I felt.
In the very beginning of it all in 2015, one comment managed to lodge harmfully inside me: Sad. I hope my daughter never ends up like her.
I absorbed that statement. Ends up. As if we end somewhere, as if what was done to me marked the completion of my story. Instead of being a role model to be looked up to, I was a sad example to learn from, a story that caused you to shield your daughter’s eyes and shake your heads with pity. But when my letter was published, no one turned away. No one said I’d rather not look, it’s too much, or too sad. Everyone pushed through the hard parts, saw me fully to the end, and embraced every feeling.
If you think the answer is that women need to be more sober, more civil, more upright, that girls must be better at exercising fear, must wear more layers with eyes open wider, we will go nowhere. When Judge Aaron Persky mutes the word justice, when Brock Turner serves one month for every felony, we go nowhere. When we all make it a priority to avoid harming or violating another human being, and when we hold accountable those who do, when the campaign to recall this judge declares that survivors deserve better, then we are going somewhere.
So now to the one who said, I hope my daughter never ends up like her, I am learning to say, I hope you end up like me, meaning, I hope you end up like me strong. I hope you end up like me proud of who I’m becoming. I hope you don’t “end up,” I hope you keep going. And I hope you grow up knowing that the world will no longer stand for this. Victims are not victims, not some fragile, sorrowful aftermath. Victims are survivors, and survivors are going to be doing a hell of a lot more than surviving.
“Emily Doe” has chosen to remain anonymous.
This is one of the most important things I’ve ever read.
Okay, Susan Miller.
Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. Don’t let caution overwhelm you. I am trying so hard.
Millencolin-Lozin Must
One of the best.
It’s 2016.
Analytics are a thing.
They called her witch because she knew how to heal herself.
Here We Are, Reflections of A God Gone Mad (via ablogwithaview)
@judge-her-not
(via riri1551)
Coming out (as chronically ill...)
As a lesbian, I’ve had to “come out” many times in my life. Sometimes it was a big deal (the first time I told my friends in high school) and sometimes incredibly hard (finally telling my dad 10 years later.). Since I don’t look like the stereotypical “butch” lesbian, I sometimes even have to come out to other gay people. It is sometimes joyous, sometimes heart wrenching and sometimes just annoying. Nevertheless it is something that has made me braver over the years and more resolved in my sense of myself. I am who I am, take it or leave it. I can still remember the excitement and relief of moving from my small rural town to NYC and finally feeling like I could be accepted without fear or shame. As many people who are first coming out can attest, I was very wrapped up in that identity for a few years. I was thrilled to have other friends like me, to learn about LGBT history, to be involved in gay rights campaigns… to learn about, celebrate and love this part of me that I had hidden for so long.
I also started having my first major Crohn’s flare ups that first year of college. If I spent half of my time absorbed in my queer identity, I spent the other half in emergency rooms, in doctors offices and on bathroom floors. I pushed through so many flares to maintain a sense of normalcy at the expense of my own self care. And worst of all, I rarely told the truth to anyone about what was going on in my body. After all… I didn’t look sick.
It’s been over ten years since I was first diagnosed and I am only now beginning to “come out” as chronically ill. I would cringe with shame if I had hidden my sexuality the same way I have hidden my illness for all of these years. I have lied in jobs when I have had to miss work or cancel dates. I stopped wearing clothes that show the scar from my bowel resection. Just this past year I deleted all of the prior social media posts that mentioned my illness because I was afraid the job I was applying for wouldn’t hire me. My biggest infraction, however, is that I simply stayed silent.
I have been thinking about the reasons why it has taken me so long to share my reality and like most things, there are many layers.
Coming out as chronically ill meant I was chronically ill…as in forever and always. I think many of us have a secret hope that we will one day be cured or at least find ourselves in a lengthy remission. There are so many stories out there of other people curing themselves naturally or overcoming the odds. Which is great, but we also have to remember that most diseases exist on a spectrum from mild to severe and all bodies are different. I have been in and out of the hospital since I was a child, I have had a surgery, blood transfusions and have been near death because of my illness. I have been on more medications than I can remember and the after effects of those will be a part of my life forever, regardless of any potential remission. I am finally ready to admit to myself that chronic means forever. And that doesn’t mean I am giving up on my dreams or that I won’t continue to try to live a healthy life despite my illness. But it does mean that I can finally accept that this is a significant part of my life and if has shaped the person I have become.
I was afraid that identifying as chronically ill would somehow take away from people living with “actual disabilities.” I felt guilty that there were days when my illness didn’t affect me and that I could lead a relatively “normal” life. But I’ve come to realize this kind of thinking is actually incredibly abilist. The disabled community is incredibly diverse, just like any other identity-based community. I’d rather everyone on any spectrum of identity embrace and celebrate it. (And f*ck normalcy.) I still have a lot to learn and will continue to educate myself. There are so many incredible disability activists out there and there are many things that we still need to work on within our own community. We all need to share our stories because it it the only experience we can honestly speak to. As long as we make the space and effort to listen to one another, our own voice will not silence others . I am slowly becoming more comfortable with the idea that sharing my story will only add to the collective strength of our community.
…Side note: One of the most significant impacts of coming out is that I now finally have a community to relate to. I can’t imagine what it would be like to not have any gay friends or even any gay people to talk to. But I have gone years without knowing anyone else that has a chronic illness! I have met the most amazing and kind people on Instagram and Tumblr. They do all kinds of rad things that inspire me, but more than anything it helps me know that I am not alone. Chronic illness can be incredibly lonely and exhausting because we are constantly having to explain or defend ourselves to people. I am convinced now that having a supportive community is key to self care and healing.
Crohn’s and other digestive diseases aren’t sexy. More than that, we live in a society where poo is taboo. It is considered impolite and unladylike to even acknowledge that we “use the restroom” (or any other euphemism for taking a poop.) I have had gastro doctors whisper to me when they have to talk about my anus. Well I am sorry, not sorry, but the reality of my disease is that sometimes I can’t stop shitting, sometimes I don’t shit for days, a few weeks ago I shit my pants and I throw up a ton. Going to the doctor sometimes requires that things go in my butt and absolutely requires that I talk about my rectum and my guts. So let’s get over this shit shame because everyone will be healthier if they start talking about their bowels. (*I feel like I have to say that crohn’s is also an autoimmune disease and affects a million other things than just my butt.)
Finally, there is just something about those of us with chronic illnesses that makes us want to smile all the time and say “I’m fine!” Maybe it is because we don’t want to make other people feel uncomfortable or maybe it is because we don’t want them to pity us. I don’t want friends to think they can’t rely on me and I don’t want bosses to think I can’t successfully complete a job. But the reality is my illness will affect my relationships, my work and my life. We have to start acknowledging the complexity of all identities and realize that as much as we may hope, there are no simple solutions. I am not lazy, but I may need to rest more than others. I am incredibly driven, but sometimes I might have to take a day or a week or a month off from work/ school. I love having fun and traveling and being crazy and I also need (and love) to rest and read and lay low for a while. Sometimes I can eat, sometimes I can’t. Sometimes I am feel OK, sometimes I don’t. But I am an amazing, and complex, human being who is more compassionate, stronger and more resilient because of my experience with illness.
My illness is a part of who I am, but not all of who I am. I refuse to hide it anymore or be ashamed of the choices I make in my life because of it. I will not sacrifice my self care for anyone else’s comfort. I refuse to stay silent, or polite or simply smile and say “I’m fine.” I promise to tell my own story and speak out on behalf of others living with chronic illnesses.
Well, fuck. This is good.
90 days.
When you’re on your way to get an iced coffee and your phone alerts you that it’s been 90 days since you put your narcotic prescriptions away because you don’t need them anymore. And then it hits you all at once how badly you wanted a life free from pain medication and your desperation to find that path no matter what. And then your mind goes through all the really difficult and hard and exhausting and isolating and painful and scary shit you went through to get to where you are today. And then you realize you did it—you made it to the other side.
Don’t be strategic or coy. Strategic and coy are for jackas*es. Be brave. Be authentic.
Cheryl Strayed, Tiny Beautiful Things: Advice on Love and Life from Dear Sugar (via wordsnquotes)
Here you go, internet.
Who did your surgery? Dr. Mark Lachiewicz from Emory University Hospital. Dr. Martinuzzi + Dr. Collins from Emory both worked with Dr. L. I also had a GI surgeon brought into the operating room to work on my intestines, but I don’t know his name.
Did you bleed a lot after the surgery? I had no bleeding whatsoever. I woke up from surgery with a pad on and took it off immediately and literally was like, “I do not give a shit if I bleed all over myself,” because I hate pads. But I never did.
Was your hysterectomy vaginal or laparoscopic? What are your scars like? My surgery was laparoscopic, and for any woman who has adhesions - I can’t see vaginal being an option. I had 4 keyhole incisions on the sides of my stomach, a half inch scar where my panty line hits, and an inch scar above my belly button.
Should I get a binder? I did. Should you? I’m not sure. I still like to wear it when I work out. I wore mine on a run tonight.
What was removed? Everything except my left ovary. My tubes are gone. My uterus is gone. My cervix is gone. And fun fact: I had no fucking idea what happened to the vagina after a cervix was removed since that’s kind of the stopping point for it. So I asked ... and they just sew it shut.
How long did you stay in the hospital? Four days. I had some complications related to pain medicine (another topic for another day). Most women seem to stay one night in the hospital for laparoscopic hysterectomies.
Should I keep my ovaries? I only had one ovary left, and I decided to keep it. I asked my surgeon to do all he could do to persevere it. You need to do what’s best for you, but please everything on bilateral oophorectomies.
Guys trends that women HATE
-being an asshole -toxic masculinity -unwarranted dick pics -catcalling -bothering us while we are working -predatory/threatening behavior -obsession over ‘natural’ beauty -body hair comments -always being defensive when we talk about feminism -lack of acceptance for LGBTQ+ women -period jokes
But please, continue to tell us why you hate high waisted shorts
Where is that blue rug from in your Instagram pictures?
It’s a Safavieh rug. I think mine is 8 x 10 (the $469 one). Wayfair had the cheapest price, but a few places sold it.