Aqua Utopia|海の底で記憶を紡ぐ
Sade Olutola

JVL
art blog(derogatory)
wallacepolsom

No title available

⁂
i don't do bad sauce passes
No title available
dirt enthusiast
cherry valley forever
Not today Justin
Peter Solarz
NASA
we're not kids anymore.
TVSTRANGERTHINGS
Three Goblin Art

tannertan36
No title available

Janaina Medeiros
seen from Ukraine

seen from United Kingdom

seen from United Kingdom

seen from Germany

seen from United States

seen from Singapore

seen from Spain
seen from Singapore
seen from Germany

seen from Malaysia

seen from Germany
seen from United Kingdom
seen from Malaysia

seen from United Kingdom
seen from United States
seen from Lithuania
seen from United States

seen from United States
seen from United States
seen from Lithuania
@beppilepsy
People with epilepsy had a higher risk of being hospitalised with COVID and of dying from COVID during the first 15 months of the pandemic,
Official validation for staying inside for two years like I had died at the beginning and was doomed to haunt just this small patch of property. I knew I wasn’t at a greater risk of catching it, but I knew I was in for a bad time if I ever did. (STILL an official Covid virgin btw, 5 vaccinations strong)
All these studies lately are just confirming things I was pretty sure were true, and that’s great and everything cuz it makes me feel smart, but I can’t remember the last time I read a “people with epilepsy are more likely to x” and I was like “well I’ll be god damned, I never thought of that, but sure enough!” I need one of those every once in a while to keep things exciting.
Waking up from VNS Battery Surgery
Anesthesiologist: you had a pretty good seizure after we put you under
Me in my head: well ya turned off my device, didntcha?!? Also what in the ever loving FUCK is a ”pretty good seizure?”
Me out loud: likkkkke whatrewetalkin fiveminutesten??? K nobig donttellmymom
————
Me: *watching TNG in the recovery room*
Young nurse: Heh. Old school.
Me:
https://www.physiciansweekly.com/nearly-50-of-those-with-new-onset-epilepsy-have-comorbid-mood-anxiety-disorders/
You rang?
Happy 100th post to me, I guess! Coulda sworn I hit that mark a while ago. Do they not count reposts?
So anyway it’s been a minute! Just checking in to say I’m alive and officially t-minus six weeks from getting a fancy new VNS battery. The current battery (pun intended) is at 9% and it gives me phone-type anxiety lmao. The new model also monitors your heart rate and sends you a little “calm down” signal, similar to running the magnet across the older model, if your heart rate makes a fast, significant change.
I promise to TRY not to come back assimilated with Borg nanobots, but if I do, just remember what they say about resistance. 😉
Abled bodied people will just never understand how difficult it is to be vertical sometimes. Like I don't mean just standing, but sitting upright too. The longer I can't lay in my bed with my legs horizontal, and back supported on a gentle incline, the worse the pain and the longer it takes to recover.
They only allow one video per post. What even is up with that? It’s 20 fucking 22. I should be able to show you two or three cute things my pets did in one post. 
As promised, my babies.
Dilute tortie = Pippa
Void Cat = Kiddo
Pit mix = Rosie
Weenie = James Buchanan “Bucky” Huls
Kind of a bleak Science Thursday this week. Don’t worry, I’ll post a cat video or something after this.
https://www.news-medical.net/news/20220406/People-with-some-types-of-epilepsy-may-have-a-lower-quality-of-life-study-suggests.aspx?fbclid=IwAR3YdtHD6NOurL-mQBY-5OYIe9OY9XGu7zf50K9RkttN7n5WcqF_cZXE1BY
A new study suggests that people with epilepsy associated with head injuries, especially the type not well controlled by medication, are mor
On average, people with epilepsy live 10–12 years less than those who do not have the condition. Excess mortality is particularly pronounced
An abstract is unavailable.
The study’s participants were all epilepsy patients..
This is actually pretty intriguing
it is not your job to sniff out “fake” disabled people
NEVER harass someone for using accessibility aids - such as a disabled parking space, mobility aids (wheelchair/walker/crutches/cane), a service dog, soundproof headphones, etc. - just because you think they “don’t look disabled.”
Disabled people exist at all ages, races, sizes, genders, economic classes, etc., and we all look different!! Sometimes we will not match the stereotype in your head!
Most disabled people need certain aids in some circumstances and not in others. If you see someone using an aid only part of the time, that does not mean they do not need the aid! And yes, this includes wheelchair users!!
There is no such thing as a service dog certification or registry in the United States. In the United States, if someone brings a service dog into a business and it’s not being disruptive, legally, you must allow it. You have no right to try to decide whether it’s “really” a service dog, and pestering a disabled person to determine whether YOU think they’re really disabled is harassment. If, and only if, the dog is disruptive, the establishment can ask its person to take it outside. That’s it.
When you try to catch “fakers”, real disabled people suffer.
Your harassment of disabled people “just to check they’re not a faker” and your attempts to “shame fakers” make it harder for us to exist in public. There is already so much scrutiny that comes with being disabled, and the constant hunt for “fakers” makes it so much worse.
Add in the fact that violence isn’t unheard of when someone thinks you’re “faking”, and the fact that disabled people literally avoid using medically necessary aids out of fear of harassment, and the whole thing becomes a very real safety concern.
The next time you want to shame someone for having a disabled parking tag you think they don’t need, or for standing up out of their wheelchair, or anything else – think about whether you’re comfortable taking the chance that your harassment is going to make a real disabled person less safe.
On the tiniest chance you catch someone willing to face constant ableism for the super fun time of pretending to be disabled (assuming anyone would DO that), your scrutiny is still adding to a culture where disabled people are constantly treated with suspicion.
Leave disabled people alone – even if you don’t understand our disabilities.
Re-reblogging
A procedure involving the transplant of pig brain cells has been branded ‘very promising’ for curing epilepsy, following a seemi
Squid Game Episode Four has Flashy Lights
I’m not gonna be the flashy lights police and watch all the things, but when I come across something, I’ll post it. If you’re like me - squeamish enough not to watch Squid Game right away, but dark and ultimately bored enough to cave and watch it - you might be around episode 4: “Stick to the Team.” 16 minutes in, there are flashy lights for about four obnoxious minutes. You can skip it and guess what happens during that time.
Speaking of what an amazing human being Greg Grunberg is, back in August I was really sad in the middle of the night and just straight up asked for a Cameo pick-me-up, something I usually reserve as a gift for other people (and almost exclusively from Star TREK alums, so this is a special Star Wars guy), from him. I woke up to this, and the message is universal. “You are AMAZING and you KNOW that” is my mantra now.
Check out this Cameo by Greg Grunberg for Beppy Braud Huls!
CURE Epilepsy today announced they are ringing the Closing Bell® at the New York Stock Exchange to kick off Epilepsy Awareness Month, which
Happy Awareness Month, y’all! I’ve been VERY out of it for a while between needing stomach surgery, having stomach surgery, and getting over stomach surgery, but I’m back! This is why CURE is the superior charity. The epilepsy foundation is celebrating awareness month by using the remarkably tone deaf hashtag #RemoveTheFilter, which is supposed to mean “don’t be ashamed of your epilepsy, talk about it,“ but we’ve had Greg Grunberg’s #TalkAboutIt for years now so it’s not only redundant - my first thought was “hey, some of us need filter apps so we don’t see flashy gifs,” and Steve’s was “wow, sounds a lot like an anti-mask hashtag.” 😬
Just a reminder to NOT HAVE VACCINE GUILT if you have a condition that bumped you up into an earlier group. Anyone in your life who whines because you got yours and they don’t have theirs yet can fuck off. Most of us were WAY more isolated over the past year. We earned this.
Wow, remember this post from when we were CLAMORING for vaccines, and now we still haven’t reached herd immunity because people are assholes?
A Dell Medical School study funded by $2.5 million gift from Coleman Fung Foundation tries to shift where brain functions happen before surg
Some VERY cool stuff going on at my Alma Mater