Treatment is working 🥸 @nathanstreifel had a large part n this. Below is my recant from Facebook. Preface - I am not out of the woods yet but I am feeling life again. No - I do not play thr guitar - but learning. I strongly recommend Michael Scalabrino. He is an awesome, kind human, with the patience I could only wish of having. 🙂 It has been a few months since posting my current events. The reason my communication ceased because it fills me with anxiety when people tell me Castlemans is a rare diseased that I brought upon our selves. It is also puts unnecessary precssure when people want explanations when there aren’t any. Castlemans has many shapes and forms. Mine is ideopathic multisctric Castleman’s and it flared up and this time with a vengeance. The treatments of Rituximab in 2020 seemed to work but only lasted until February. March 2021. We did the sane regiment and it got worst and nobody knew what too do. I decided to take my case to the Mayo Clininc in Jacksonville. Dr. Parrondo knew exactly the problems and set me on an intensive/ aggressive treatment plan. The great thing is that Mayo works dierecly with Dr Jonas here in ATL, A pretty good set up. My weight got as low as 137. Now it is 159. I can eat, feel more sociable, but have to be careful with my compromised immune system Keep in mind, this is only the second round of the powerful chemo. This part two of seven. The phrase cautiously optimistic in the forefront of my mind. A few things have helped - the alone time *hermit life* house where I had to deal with the snakes in my head, I have come to know me and a lot is not pretty and it is up to me to change the narrative, and that I have done. A trip to Justloveforest - a true awakening of the soul and gravitation toward,all love, and Joy. It has come back to me that this world is not a reality. There is more to comes. James Bala Yancey and Nancy Yancey, your messages here and there-really help my sanity. (at Atlanta, Georgia) https://www.instagram.com/p/CVOmj_FpM2m/?utm_medium=tumblr