Where The Wild Magic Sleeps @ceabee-dm - Tumblr Blog

Posts

intheimpalawithdean

charlesoberonn

Servant: Your highness, a party of adventurers has answered your call for help.

King: Excellent. What are they like?

Servant: One of them is a dragon-lady.

King: Interesting. Those are rare around these parts.

Servant: Another is a goblin paladin.

King: Not a role you usually see goblins in.

Servant: A third is a purple-skinned tiefling.

King: I didn't even know they come in that color.

Servant: The last one is a sapient gelatinous cube.

King: What. How did these four even meet?

Servant: They met in a tavern two hours ago, apparently.

he1pm3

hi can we please remember that hidden chronic illness and hidden disabilities exist, you can’t always see someones pain or suffering. That goes for mentally as well. It really sucks being chronically ill and no one believes you or can find anything. Its so hard to advocate for ourselves, it can take forever to get diagnosed. Knowing whats wrong after so long is such a relief, so validating. But anyways july is chronic illness awareness month, so along with hidden disabilities keep in mind theres also hidden chronic illnesses

It’s so distressing when you have a team whose job is meant to be helping you.

The people whose role is to coordinate your care. To advocate for you. To help you access the supports you need. To make living with complex disabilities and chronic illness just a little bit easier.

Instead…

Emails go unanswered for six weeks or more.

Five out of six appointments with the same doctor are cancelled.

Phone calls aren’t returned.

Things you were promised quietly disappear into the void.

Yet somehow the invoices keep arriving.

Charged for services rendered.

What services?

I already spend so much of my limited energy fighting my own body every single day. I shouldn’t have to spend the rest of it fighting the very systems and professionals that are supposed to have my back.

People talk about how exhausting chronic illness is.

What they don’t talk about enough is how exhausting fragmented care is.

The endless chasing.

The constant explaining.

The paperwork.

The waiting.

The feeling that unless you do everyone else’s job for them, nothing happens.

I’m tired.

Not just physically.

I’m tired of having to beg for the care I’m already supposed to be receiving.

No one with a complex disability should have to become their own case manager just to access healthcare. But that’s exactly what so many of us are forced to do.

I don’t want special treatment. I just want the support I’m already supposed to have.

#disabled dm #chronic illness #disability #chronically ill #ndis services #ndis failure #hypermobile ehlers danlos #fatigue #I don’t know what to do any more #I’m so tired #self advocacy #healthcare advocacy #Australia

You know what’s really hard?

Most people don’t realise my tics specifically get worse the more stressed or overstimulated I am.

With some people, I almost never tic. Like when I go out with my Mumpling. She’s incredibly calming and understanding, so in turn, I’m calmer too.

But at home around my family, the tics are intense.

Everyone in our house is disabled. My mum and sibling live with my wife and me, and all four of us have support workers.

At any one time, there can easily be seven or more people in our little three-bedroom house. Thank goodness we have separate living rooms.

So honestly… it’s no wonder I tic more than a clock.

And of course my tics are biggest around my wife because she’s the person I feel safest with. Around her, I can stop masking. I don’t have to desperately hold everything in anymore.

Holding my tics in is exhausting. It’s physically draining, mentally draining, and honestly just soul-destroying after a while.

My family mostly just sees the tics themselves, and how funny they can be. I genuinely don’t mind them laughing. I’d much rather they laugh than get offended by something I can’t control.

But I don’t think they realise that a lot of the time, those big tics aren’t random.

They’re the result of being so stressed and overstimulated that eventually… it all just explodes out. 🤦‍♀️

They aren’t random.

They’re what happens when I’ve been holding everything in for too long.

#functional neurological disorder #fnd #tics #disability #disabled dm #chronic illness #neurodivergent #audhd

vampantheon

on the topic of disabled characters, though, i think a LOT of artists give characters mobility aids that their character wouldn't actually benefit from using.

i'm sort of having a mild brain fog moment rn so i can't fully articulate what i'm on about, but i think a lot of able-bodied artists view things like canes and crutches as interchangeable. and they often don't know enough about the wide range of mobility aids to make an informed decision about what their character might actually use based on their disability

i also think that aids like walkers and rollators are sort of viewed as "cringe" on some level, and many people view them to be "just for old people," so many artists will opt for giving a character who has full-body pain and fatigue a cane (which, in many cases, can potentially WORSEN full-body pain) instead. and a lot of people don't realize that most wheelchair users are able to walk, so they don't consider it an option for characters with chronic pain

vampantheon

idk it's kind of frustrating. i've genuinely never, ever seen a character that uses a rollator before. not once. i cannot name a single one. i know of multiple ocs who are described to have full-body pain, dizziness, and fatigue that are drawn as cane users and are never shown with wheelchairs or walkers, though

vampantheon

it's also sort of sad? i've been diagnosed since i was twelve years old, and i only heard of rollators LAST YEAR. and that was only because i saw one irl and immediately asked what it was. i wonder how many disabled people out there don't even know it's an option solely because they're completely underrepresented online and in media

vampantheon

if you're a creative with a disabled oc, PLEASEEE check out this link. it's a very nice and detailed guide for telling which mobility aids suit someone's needs best. it's incredibly important to make the right choice for your character! mobility aids tell you a LOT about someone's lived experience. picking the right one will communicate to your audience #1 what your character goes through #2 that you UNDERSTAND what your character goes through!

miinobobeano

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.

One thing no one tells you about DM’ing with a chronic illness is that sometimes you’ll wake up to the most unhinged notes you’ve apparently written during a pain-medicated, sleep-deprived crash.

Case in point.

I was planning an arc set in the damned city of Zablina for my homebrew D&D campaign, trying to work out how the party could weaken the BBEG, Lord Vandersign.

Apparently, at about 3am, with insomnia in full swing and my pain meds doing their thing, I came to a very important conclusion.

The party needed to rescue an egg.

The next morning I opened my notes in complete bewilderment.

What sort of egg?

No idea.

Why was it important?

No explanation.

Why an egg?

Your guess is as good as mine.

What I did have was a complete dungeon outline.

This mysterious egg was apparently guarded by guttergorges, undead trolls, another dragon…

…and an undead tarrasque.

Because obviously.

Past Claire left absolutely no notes explaining why this was apparently the single most important egg in the campaign.

Just:

Egg.

Needless to say, that dungeon never made it past the planning stage.

My players have absolutely no idea they almost had to save the world by rescuing a completely unexplained egg from an undead tarrasque.

Honestly, I don’t think Past Claire knew what was in the egg either. 🤣

#disabled dm #ttrpg #dungeons and dragons #world building #chronic illness

fibro-memes

disabled-dyke

begging everyone this disability pride month to stop using just ‘CFS’ when you’re talking about myalgic encephalomyelitis (ME/CFS, because unfortunately ME is also just a word). CFS, chronic fatigue syndrome, completely misrepresents the full disease, making it seem like it’s just ‘tired all the time’. please look up dr fauci’s smear campaign against this illness and why CFS was chosen as a name.

I’m slowly going through my drawings and being brave enough to post them. So. Here is another drawing.

Rosie and her Uncle Mara

A young Roselyn Mercè rushes forward to wrap her favourite, and only (at the time), Uncle Mara in a tight hug, proudly announcing, “I love you, Uncle Mara!” It’s a tiny, ordinary moment between a little girl and the uncle she adores… made all the more precious by the knowledge of everything they have yet to lose.