Rainy

chronically ill // 23 // they/them

[friendlyfrankenstein]

I know the chronic pain is chronic and all but ow damn augh fuck ouchie

[chronicallyrainy]

Confession:

Being a-spec is lonely.

(mild vent below the cut)

If you're agender, you don't fit in. They ask you to choose a side, girl or boys, but you don't fit. Which do you choose when both are wrong? If you sit out, choose not to choose, you're just being excluded.

If you're aro or ace, you don't really get what defines most of the community. The only thing you have common ground on is a marginalized orientation, and even then, some people argue you don't even have that. Plus, a lot of adult social circles surrounding queerness happen at parties, nightclubs or bars. What happens when that's not your scene?

Above all that, being autistic causes even more complications. Sensory issues, social issues.. it makes it even harder to fit in (or pretend to).

It gets so lonely.

[miinobobeano]

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.

[unwell-radio-transmissions]

starts experiencing new symptom.

“Oh, I wonder if this is related to my-“

Looks up list of FND symptoms.

“Yep, there it is.”

[liberaljane]

Your health may change, but your worth does not.

Keep reading

[disabilityaidpositivity]

Medical device positivity post!

[ID: Digital illustration of a woman with long blonde hair. She’s standing with her armpit hair showing in a rust red tank top, green skirt and an ostomy bag. Text reads, ‘health is not an indicator of worth.’ /End ID]

[cpunkwitch]

Happy disability pride month to:

- quadriplegics and paraplegics

- ambulatory and non ambulatory mobility aid users

- folks with prosthetics, stents and replacements

- jaw pain and other mouth issue havers

- folks with spine issues

- folks with deformed limbs and/or facial features

- folks with chronic pain and or fatigue

- folks with comorbidities

- folks with animal support

- folks with human support

- the bedridden / bedbound

- disabled folk struggling to live on their own

- folks with living assistance

- disabled folk stuck living with others (be it family, roommates etc, toxic or otherwise)

- the blind (of any range)

- disabled poc and disabled bipoc

- disabled queers

- disabled folk with sensory issues

- employed and unemployed disabled folk

- self employed disabled folk

- cripples of all sorts

- those with fibromyalgia, any range of arthritis and autoimmunities

- disabled punks

- folks unable to get aids and assistance

- disabled folk in debt

- chronic migraine and headache havers

- disabled artists

- disabled gardeners

- disabled pet owners

- disabled witches

- disabled heathens and pagans alike

- disabled cis, trans, intersex, altersex and nonconforming folk

- disabled adults

- disabled youth

- disabled folk into sports

- the visibly and invisibly disabled

- the frequent hospital visitors

- disabled adoptees

- birth defect havers

- those disabled through birth, genetics or incidents/injuries

- amputees

- those with rare and incurable conditions

Unhappy month to:

- ableists

- able bodied folk using the term cripple and/or trying to be in the cpunk community

- fakeclaimers

- able bodied people who use rescources that aren't meant for them and/or complain about them

- people who claim glasses and other non mobile related disability aids are mobility aids.

- people who continue to use slurs they can't reclaim as well as general offensive/ableist language (cripple, psycho etc)

- people who talk over the disabled

- people who mock others for their conditions and trauma

- anti-recovery folk

- people refusing to give support that's needed/asked for (meds, aids, company etc)

- anti-vax bitches

- those who don't care about the autoimmune and don't take proper steps like wearing a mask when required and WASHING YOUR DAMN HANDS

- scammers and people who take advantage of those in need

- people who harass disabled people for "proof" or an explanation on their conditions

- people who touch mobility aids without asking

- people who use others addictions as a reason not to support them

- those who think disabled and deformed folk are unsightly

- the anti-homeless

- the "you're not disabled you shouldn't use that" karens

- people who use the disabled for inspiration porn (the "wow you're so strong despite your disability" bs)

- those who treat the disabled like fragile infants

- those who take things away from disabled folk for whatever reason

- those who think disabled people shouldn't have kids or pets

- people using the disabled and/or homeless for clout

- able bodied people using mobility aids just for cosplay

- claiming disabled folk can't cosplay a certain character either because "that mobility aid ruins the cosplay/the character is able bodied" or whatever other reason.

- people who insist disabled folk can't live on their own

- people who try to control or criticize how disabled folk spend their money

- people who think using disabilities, disorders and deformities as the butt of a joke is funny

- people who complain about accessibilities

[only-knives]

hi can you like/rb this post if you are also struggling with loneliness and mainly interact with people online or through doctors/therapy appointments?

i've been so mean to myself about my difficulties with in-person socializing and. i know i'm not alone, or worthless, logically.

but it'd help me, and could help others, to just have that little in-your-face remidner that no, you're not alone... no, you're not a failure... you're just struggling, and that's okay.

i need to take my own advice. always easier to be kinder to others than to ourselves, huh?

[heyitsthatonesmolgay]

In case anyone needs to hear it:

it is not able-bodied to wake up in pain

it is not able-bodied to only walk if you “have to”

it is not able-bodied to want a cane for support

it is not able-bodied to want to use a wheelchair to get around

it is not able-bodied to need a cane or a wheelchair for movement

It is not able-bodied to do or need or want any of these things, but it is normal.

it is normal to wake up with chronic pain

it is normal to avoid walking if you have pain when you do it

it is normal to use a cane

it is normal to use a wheelchair

Just because you’re not able-bodied doesn’t mean you’re not “normal” or not a person (alterhumans notwithstanding).

You are perfectly acceptable how you are, and you don’t need to apologize for being disabled.

[perpetuallyoverit]

when you try to reassure me (i, a chronically ill person who almost died from a severe infection) that i should just “relax” and “regulate my nervous” and “stop stressing” you know what would ACTUALLY keep me from stressing? actual infrastructure and real fucking support. i dont WANT to be “relaxed’.

i want a cardiologist that listens without dismissing my ER trip as “normal” or tries to tell me that I should just work out more.

I want informed consent so I don’t spazz out from a botched IV.

i want the ER doctor to not tell me that my infection that I nearly died from wasn’t “that serious”.

I want a professor who actually respects my accommodations, and doesn’t demand explanations or treat accomodations like a suggestion.

i want a mother and community that is not constantly gaslighting me 24/7 and blaming my real, physical symptoms on stress, "bad vibes", dumb arbitrary shit, or reductive pseudoscience.

i want people who actually fucking listen.

I want my school disability office to not move at the speed of molasses, so I know my health is being treated like a legitimate concern and not some bureaucratic matter.

how am i not supposed to "stress" when healthcare and medical infrastructure ARE NOT designed for conditions where there isn't a "end all, fix all cure" (doctors are only trained to diagnose and treat, not actually listen).

stop blaming everything on “stress” if you can’t even acknowledge that the very systems that are set up to protect us fail us almost on the daily.

[plague-of-insomnia]

people who aren’t in pain all the time don’t understand how much being in constant pain makes it so much harder to do everything… bc pain is so draining and it takes so much more energy/effort to push through it to do anything

so if you have chronic pain and manage to do anything at all today i am proud of you ✨✨

sometimes even just getting out of bed deserves a gold star 🌟

[sugarysakurakitty]

Hey. Hey if you have fibro it's okay to be exhausted. It's okay to need a break. It's okay to not have the spoons to do your favorite activity. It's okay to not have the spoons to work. It's okay to not have the spoons to take care of yourself. It's okay to spend your spoons on recreational things. It's okay to need help. It's okay. You are allowed to exist in whatever way you want to. You don't have to tear yourself apart to be worth loving and living.

[xxx-angie]

a reminder to my fellow disabled people it isn't wrong or make you less of a player for using accessibility options.

a reminder that playing on a low difficulty only or (like with games with minecraft) no difficulty

a reminder that using unlimited health options like in cult of the lamb is not bad or wrong and you are no less of a player for using it

turning brightness high on horror games like tattletale whether its because you are visually impaired or because you cannot handle the fear a low-light scene can cause.

disabled people are not any less a gamer for needing accessibility options. we are not any less a gamer for playing the game on easy. we are not any less a gamer because we are disabled and might not be able to get all the achievements or trophies or whatever a game has available.

we deserve to be able to enjoy the games we want to play

[smilepilled]

happy disability pride month. this year, i hope we can focus properly on people with physical disabilities. every time a conversation goes towards physical disabilities, it gets derailed and turned into a discussion of other disabilities. that's obviously bad, and is rooted into a deeper case of ableism within many spaces.

this year, let's shine some light and focus on people with more physical disabilities

people with missing/compromised limbs

people with compromised/absent motor functions

people who experience constant pains

people who are always exhausted/tired

people with nerve disorders

people who are blind (cannot see to the point of it being dangerous / getting in the way of daily ordeals)

people who have autoimmune diseases (like lupus— PLEASE stop making house md jokes. its uncomfortable obnoxious and treats many real struggles like just a joke/reference to a show)

people who have hearing issues (including those who are "fully deaf", or can barely hear anything instead of not hearing at all)

people who have heart related issues that force them to lay or sit down, etc

people who seizures due to epilepsy or other seizure-inducing issues

people who cant and/or do not speak (with nonverbality included)

people who have bone-related issues that affect their day-to-day life (so for example extreme scoliosis or other malformations)

people who are physically disabled and need mobility aids

people who are physically disabled and dont use mobility aids

people who are physically disabled but cannot get any help (including mobility aids, but goes all the way to a proper diagnosis)

people who became disabled later on in their lives (usually due to accidents but theres more reasons)

people who have limps or cannot walk """properly""" (according to the able bodied society)

lets celebrate the people struggling and surviving with physical disabilities a little more this year. its disability pride month, and i hope we dont forget the people with physical disabilities to talk about non-physical ones. happy disability pride month!

[wholeheartedsuggestions]

please don’t punish yourself for having a body

[genderqueerdykes]

i think it's beyond fucked that medical professionals expect you to deal with misery as long as it's not actually killing you. even when there are procedures and therapies and medications, doctors always wait until the very last second until it's actually life or death. preventative medicine is so hard to find. sick and disabled people are forced to live with misery simply because we're not actively dying.

nobody should have to sit around miserable just because they *technically* can survive this. is it really even surviving when you can't function?

[saltyfoxes-artist]

"Oh I have such a cool idea for a piece of art"

I then get shots 57 times by the chronic pain demon who hates me drawing

[chronicillnesshumor-deactivated]